Hi all,
Information that may be of interest, and please do pass on to colleagues.
Today Parkinson’s UK launch the results of their ‘Patient and Public Involvement pilot’. The report provides evidence for largely unexplored area of Patient and Public Involvement (PPI) in research – the role of patient organisations.
Through an independent evaluation, we found out about the impact of involvement on both the research and the individuals that took part, the practical challenges to involvement and lessons learnt. We now want to use this evidence to empower researchers and patients to work in partnership, and encourage other organisations to understand new ways that they can support involvement.
You can find the report on our website.
Or download the two page executive summary (PDF, 380KB).
And if you or your organisation would be happy to help us promote this via social media, please see below the relevant links:
Suggested tweet:-New @parkinsonsuk evidence on the impact of PPI in research: www.parkinsons.org.uk/researchinvolvement #howtoinvolve
Or you can click here and retweet.
Download our new evidence on the impact of patient & public involvement & how charities can support it https://t.co/podv5eeQQU#howtoinvolvepic.twitter.com/I3L0ObjP00
— Parkinson's UK (@ParkinsonsUK) November 1, 2016
We have also featured the resource on LinkedIn.
If you have any questions, or should you be interested in sharing this any further, please do not hesitate to contact my colleague:
Isabelle Abbey-Vital
Research Involvement Officer
Parkinson's UK
215 Vauxhall Bridge Road,
London SW1V 1EJ
Tel: 020 7963 9327
Best wishes,
Beckie