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In reading through the thread, I can see commonalities which we may further work on so as we could share galvanizing ideas that each of our respective circumstances may benefit from. We may consider working on effectively envoking Article 4.3 of the UN CRPD in the activities of collecting and analyzing data. We could look at and study various methodologies that have been used like that of the Disability Rights Promotion International and other groups. Accuracy in the numbers of Persons with Disabilities is still a goal, yes difficult to attain but realizable. It must come from the sector if data collection of government should be considerate of the sector's situations. Let's move on and continue sharing. Lauro Original message: > This is a common experience and the issues mentioned by others are true > with regard to unwilingness to identify > In New Zealand we have census questions related to major impairment > groups: physical intellectual sensory psychiatric other and sub groups > under each forming at least 10 categories (eg bending agility, mobility > under physical) > While this is not in keeping with a social model it at least gives an > idea of numbers which last time 2006 approached 20% > A post census follow up is now happening to get more information about > impact on community participation > We are also trying to gather similar data using the same categories to > get information about access to health services which is not provided > using census data > For me this is a compromise but it at least creates some visibility and > puts us on the graph as well as the map! > UN Convention Monitoring report 2012/13 AND 2011/12 identifies gaps in > health service responsiveness exacerbated by lack of data around > disability and the health needs of disabled people particularly > intellectually disabled people. > Thanks > Pauline > Dr Pauline Boyles | Senior Disability Advisor > Service Development & Integration Unit | SIDU > Wairarapa, Hutt Valley and Capital & Coast DHBs > Private Bag 7902 | Riddiford Street | Newtown, WELLINGTON 6242 > DDI (04) 806 24376| Ext 82436| Mobile: 0275454394| Email: > [log in to unmask] > -----Original Message----- > From: The Disability-Research Discussion List > [mailto:[log in to unmask]] On Behalf Of Lauro Purcil > Sent: Friday, 30 August 2013 23:05 > To: [log in to unmask] > Subject: Re: Census Population of People with disability world wide > Importance: High > Your story Tsitsi is a common experience. Unless, one asserts to be > asked the needed questions the enumerators tend to just ignore and take > for granted the objective to really get the facts rather than to give in > to their hesitations. > Another aspect that gives reason to the unreliabiity of censuses is the > continuing issue on definition of Persons with Disabilities. > Regards, > Lauro > Original message: >> I totally agree, the census data is unreliable. For instance, when we >> had our Census in Zimbabwe in 2012, the enumerator did not ask me a >> single question related to disability. I was the 10th household of the >> day, and I believe this was the same with the other 9 households. When >> I asked him if there are questions related to disability, he said to >> me with a straight face 'I just looked at you all (we were 3) and saw >> that you do not have a disability, so there was no need to ask such >> kind of questions.'. When I challenged him how he knew that we were >> not disabled, he said that I cant see it. I then asked him to ask one >> of the questions related to disability on the questionnaire. The >> question was asking if I had problems using my hands when doing >> households chores, and also if I had any condition such as epilepsy. >> Then I asked him how he can tell if by just mere looking at me if I >> have those conditions. He then said, 'The problem is that some of >> these questions are too sensitive so I would rather not ask people' - >> I was damn shocked, so you can imagine when the statistics came out, > how wrong they were. >> Unfortunately, he was in an 'activist's house' I then told him to >> start the whole questionnaire all over again, asking me each and every >> question, with me making sure he does that. I could see the discomfort >> but he did it anyway because I had threatened him to report him to his >> authorities, if he kept on not asking people such kind of questions. I >> then thought, did this guy receive any form of training before >> executing his duties? Does he know why these questions are asked? >> I was then forced to do a small survey to just check how many other >> people were not asked disability-specific questions. Out of my 21 >> students, none of them was asked such a question apart from them >> having counted in different constituencies. I also went for lunch at >> our senior common room, I asked my fellow lecturers if anyone had been >> asked any question related to disability, the response was not >> surprising - none. Here we go with our national statistics!!!!! I can >> even imagine if such kind of enumerators would ask questions related >> to income, jobs, and level of education to disabled people because >> they would just think that these issues are beyond their > comprehension!!! >> From that day, I became sceptical about our national statistics on > disability. >> On 30 August 2013 03:35, Keith Armstrong <[log in to unmask] >> <mailto:[log in to unmask]>> wrote: >> The major problem with Census data is. in order to measure impairment >> in the community is the perceived safety the population has with >> sharing personal information to the Census maker. Many disabled people >> deny they have an impairment at job interview because of fear (often >> justified) of employment discrimination. Nor will it measure the >> degree of impairment (essential for planning for resource needs) in > the population. >> ________________End of message________________ >> This Disability-Research Discussion list is managed by the Centre for >> Disability Studies at the University of Leeds >> (www.leeds.ac.uk/disability-studies >> <http://www.leeds.ac.uk/disability-studies>). >> Enquiries about list administration should be sent to >> [log in to unmask] >> <mailto:[log in to unmask]> >> Archives and tools are located at: >> www.jiscmail.ac.uk/lists/disability-research.html >> <http://www.jiscmail.ac.uk/lists/disability-research.html> >> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > page. >> -- >> Dr Tsitsi Chataika >> Department of Educational Foundations >> University of Zimbabwe >> Faculty of Education >> P.O. Box MP167, Mt Pleasant >> Harare, Zimbabwe >> Work: +263 (0)4 303 211 Ext. 16061 >> Mobile:+263 (0) 774 429 687 >> Skype: tcblessed >> Email: [log in to unmask] <mailto:[log in to unmask]> >> http://uz-ac.academia.edu/TsitsiChataika >> <http://uz-ac.academia.edu/TsitsiChataika> >> Host of of Inclusive Development (Disability Mainstreaming) fb Group - >> http://www.facebook.com/groups/346410018799635/439468526160450/?notif_ >> t=group_comment >> <http://www.facebook.com/groups/346410018799635/439468526160450/?notif >> _t=group_comment> >> International Day of Persons with Disabilities, 3 December 2013: > Theme: >> "Break barriers, open doors: for an inclusive society for all" >> ________________End of message________________ >> This Disability-Research Discussion list is managed by the Centre for >> Disability Studies at the University of Leeds >> (www.leeds.ac.uk/disability-studies). >> Enquiries about list administration should be sent to >> [log in to unmask] >> <mailto:[log in to unmask]> >> Archives and tools are located at: >> www.jiscmail.ac.uk/lists/disability-research.html >> <http://www.jiscmail.ac.uk/lists/disability-research.html> >> You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > page. > ________________End of message________________ > This Disability-Research Discussion list is managed by the Centre for > Disability Studies at the University of Leeds > (www.leeds.ac.uk/disability-studies). > Enquiries about list administration should be sent to > [log in to unmask] > Archives and tools are located at: > www.jiscmail.ac.uk/lists/disability-research.html > You can VIEW, POST, JOIN and LEAVE the list by logging in to this web > page. ________________End of message________________ This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to [log in to unmask] Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.