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Thanks Rich, The public bought the kits but were not participants. No study has yet taken place. No one received kits before IRB approval as far as I know. They used first funds in to pay for an IRB. I think it is important to look at because crowd sourcing changes the dynamics. I talked to them and they want to fix this and do the right thing. I told them I would ask. Thanks for your response. I think the article was harsh and more critical no one talked to them first. This will not exactly breed transparency. The critics are seasoned PI. Ethics yes , firing squad no. What should they do now? Ideas all? Best Amy Amy Price Empower 2 Go Building Brain Potential Http://empower2go.org Sent from my iPad On 28 Jul 2013, at 08:27 AM, "Richard Saitz" <[log in to unmask]> wrote: > Amy > Based on the article and the comments I can't tell if the project was IRB approved before enrolling participants or not. If it wasn't, then that is a problem... > Rich > > Sent from my iPad > > On Jul 27, 2013, at 10:36 PM, Amy Price <[log in to unmask]> wrote: > >> Dear All. >> >> http://blogs.scientificamerican.com/molecules-to-medicine/2013/07/25/ubiome-ethical-lapse-or-not/?WT.mc_id=SA_sharetool_Twitter Jessica Richman YOUR BIOME, This is a citizen science project that crowd sourced funding for research. This article is very opposed. Value your views on how to handle this… >> >> Best >> Amy > > BMJ advances healthcare worldwide by sharing knowledge and expertise to improve experiences, outcomes and value. This email and any attachments are confidential. If you have received this email in error, please delete it and kindly notify us. If the email contains personal views then BMJ accepts no responsibility for these statements. The recipient should check this email and attachments for viruses because the BMJ accepts no liability for any damage caused by viruses. Emails sent or received by BMJ may be monitored for size, traffic, distribution and content. BMJ Publishing Group Limited trading as BMJ. A private limited company, registered in England and Wales under registration number 03102371. Registered office: BMA House, Tavistock Square, London WC1H 9JR, UK.