JISCMail - EVIDENCE-BASED-HEALTH Archives

G'day!

Suggest you ask Sandy Oliver your second question (I don't know if she's on this list): http://www.ioe.ac.uk/research/SSRU_38.html

Guidelines generally, would be worth contacting the consumer participation working group in G-I-N (Guidelines International Network).

Your first question is tougher: there's not many places that do it in a formal way, so evaluation isn't going to be extensive either - Australia and maybe Netherlands. Most countries don't have national formularies and I don't know that it happens at other levels (consumer involvement). Australia also has consumer participation in the funding deliberations, but again, I don't know whether that (PBAC) has been evaluated. You could ask Consumers' Health Forum of Australia. Some relevant descriptive/qualitative reports from the consumers' point of view they have online coming out of some aspects of that work (but not PBAC deliberations) that can give you a sense of what it looks like from the consumer representative side:

https://www.chf.org.au/pdfs/rep/rep-research_report-an_analysis_of_the_contribution_of_health_consumer_representatives.pdf

https://www.chf.org.au/pdfs/rep/rep-376-consumer-input-into-adec-summary-evaluation.pdf

https://www.chf.org.au/rep-727-TGAConsultationReport-Apr11.chf

https://www.chf.org.au/pdfs/chf/HV-JUNE2011_Graham.pdf

https://www.chf.org.au/pdfs/ahc/ahc-2005-3-history-consumer-medicine-information.pdf

https://www.chf.org.au/pdfs/hvo/hvo-2008-3-consumer-action-medicines-political-change.pdf

(What it generally looked like from the government's side, but not specifically pharmaceutical: https://www.chf.org.au/pdfs/rep/rep-good-practice-consumer-representation-response.pdf )

To contact the CHF: https://www.chf.org.au/

Hilda

On Thu, Jun 6, 2013 at 11:03 AM, Watkeys Jacqui (RBK) Walsall Healthcare NHS UK <[log in to unmask]> wrote:

Hi All,

Wonder if someone can help me?

I am looking for information for a colleague on any studies that have evaluated the use of patients/members of the public in determining which drugs/medicines should be included in formularies / prescribing guidelines.

Put another way studies that focus on patients participating in service planning activities or lobbying for policy change

I am struggling to locate anything.

Can anyone help?

Kind regards

Jacqui Watkeys BA MCLIP
Head of Library and Knowledge Services
Library and Knowledge Services
Tel: 01922 656628 ext: 6628
Walsall Healthcare NHS Trust, Walsall Manor Hospital, Moat Road, Walsall West-Midlands, WS2 9PS.

www.walsallhealthcare.nhs.uk

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