 |
 |
G'day! Suggest you ask Sandy Oliver your second question (I don't know if she's on this list): http://www.ioe.ac.uk/research/SSRU_38.html Guidelines generally, would be worth contacting the consumer participation working group in G-I-N (Guidelines International Network). Your first question is tougher: there's not many places that do it in a formal way, so evaluation isn't going to be extensive either - Australia and maybe Netherlands. Most countries don't have national formularies and I don't know that it happens at other levels (consumer involvement). Australia also has consumer participation in the funding deliberations, but again, I don't know whether that (PBAC) has been evaluated. You could ask Consumers' Health Forum of Australia. Some relevant descriptive/qualitative reports from the consumers' point of view they have online coming out of some aspects of that work (but not PBAC deliberations) that can give you a sense of what it looks like from the consumer representative side: https://www.chf.org.au/pdfs/rep/rep-research_report-an_analysis_of_the_contribution_of_health_consumer_representatives.pdf https://www.chf.org.au/pdfs/rep/rep-376-consumer-input-into-adec-summary-evaluation.pdf https://www.chf.org.au/rep-727-TGAConsultationReport-Apr11.chf https://www.chf.org.au/pdfs/chf/HV-JUNE2011_Graham.pdf https://www.chf.org.au/pdfs/ahc/ahc-2005-3-history-consumer-medicine-information.pdf https://www.chf.org.au/pdfs/hvo/hvo-2008-3-consumer-action-medicines-political-change.pdf (What it generally looked like from the government's side, but not specifically pharmaceutical: https://www.chf.org.au/pdfs/rep/rep-good-practice-consumer-representation-response.pdf) To contact the CHF: https://www.chf.org.au/ Hilda On Thu, Jun 6, 2013 at 11:03 AM, Watkeys Jacqui (RBK) Walsall Healthcare NHS UK <[log in to unmask]> wrote: > Hi All,**** > > ** ** > > Wonder if someone can help me?**** > > ** ** > > I am looking for information for a colleague on any studies that have > evaluated the use of patients/members of the public in determining which > drugs/medicines should be included in formularies / prescribing guidelines. > **** > > **** > > Put another way studies that focus on patients participating in service > planning activities or lobbying for policy change**** > > ** ** > > I am struggling to locate anything.**** > > ** ** > > Can anyone help?**** > > ** ** > > Kind regards**** > > ** ** > > *Jacqui Watkeys BA MCLIP** > *Head of Library and Knowledge Services > Library and Knowledge Services > Tel: 01922 656628 ext: 6628 > Walsall Healthcare NHS Trust, Walsall Manor Hospital, Moat Road, Walsall > West-Midlands, WS2 9PS.**** > > [image: Description: Description: Description: prom]**** > > www.walsallhealthcare.nhs.uk**** > > ** ** > > This email and any files transmitted with it are confidential and intended > solely for the use of the individual or entity to whom they are addressed. > If you have received this email in error please notify the system manager. > This message contains confidential information and is intended only for the > individual named. If you are not the named addressee you should not > disseminate, distribute or copy this e-mail. >