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Dear James,
As you are in Oxford, I would recommend getting in touch with someone at ETHOX http://www.ethox.org.uk/ or Helex http://www.dph.ox.ac.uk/helex . Both deal with these sorts of issues.
And I think the short answer is yes, there is something there worth worrying about – or at least considering.
Cheers,
Christine
Dr. Christine McCarthy Madsen
Manager of Infrastructure & Innovation
BDLSS, Bodleian Libraries
Osney One
t. 01865 283864
From: Research Data Management discussion list [mailto:[log in to unmask]] On Behalf Of James Wilson
Sent: 11 February 2013 14:38
To: [log in to unmask]
Subject: Risks of de-anonymizing data
Dear Colleagues,
Here at the Damaro Project we’ve started fretting about the increased risk of anonymized medical (& social sciences) data being de-anonymized as more and more datasets become available and the opportunities for cross-searching increase. We’ll be preparing some RDM training for medical researchers shortly, and it would be good if we knew a bit more about the issues involved. Is this even something worth worrying about (I’m not very familiar with medical data)? Could any of you point us in the direction of any advice?
Yours All,
James
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Dr. James A. J. Wilson,
Project Manager, DaMaRO Project
University of Oxford IT Services,
13 Banbury Road, Oxford. OX2 6NN
Tel. (01865) 613489
email: [log in to unmask]