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NHS Evidence – ethnicity and health

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Newsletter 10

June 2010

 

The newsletter highlights news and developments in ethnicity and health, lists additions to our collection and provides information on forthcoming events.  Please feel free to distribute this newsletter to any interested colleagues, friends and relevant e-mail networks. 

 

News

 

Ethnicity testing for adoption

The leading article in the current issue of ‘Archives of Disease in Childhood’ discusses the increasing use of commercial “DNA ancestry or ethnicity testing kits” that use blood or saliva to “provide a breakdown of racial origins” for social care workers when looking to place a child in fostering or adoption.  As well as disregarding the cultural, religious and linguistic characteristics of ethnicity, this testing has contributed to an “excessive emphasis” on the ethnic needs of a child’s placement over other relevant factors such the child’s “health and development needs”.  The authors conclude that these tests can reach incorrect conclusions, and even when correct only give vague hints about culture, religion and language and so “their use for determination of ethnicity should be strongly discouraged”.

 

Ethnic differences in blood pressure begin in adolescence

A recent study published in ‘Hypertension’ has discovered that divergences in blood pressure between white and ethnic minority groups begin in adolescence and are “particularly striking” for boys.  The study also found that socioeconomic disadvantage had a “disproportionate effect” on blood pressure for ethnic minority girls.  The results signal the need for the early prevention of cardiovascular diseases that could have adverse effects in later life, especially for young people of minority ethnic origin.

 

New ‘Better Health’ website

The Race Equality Foundation has launched the ‘Better Health’ website which has been designed to help frontline practitioners implement evidence based practice in their workplace as well as the promotion of race equality in their everyday work.  The site also hosts the newest editions of the “Better Health” briefing series.  SCEH/ CEEHD welcome this new site, and are working closely with REF on this initiative.

 

New Additions

The following resources have been added to the ethnicity and health specialist collection during April and May.

 

Cancer:

Oral cancer screening in the Bangladeshi community of Tower Hamlets: a social model

Incidence of oral cancer in the UK has risen by 22% in the last decade, with certain black and minority ethnic groups having an elevated risk of developing the condition due to certain risk factor behaviours.  This paper describes an oral cancer screening activity appropriate to the needs of a Bangladeshi community at high risk of oral cancer, which was carried out between 2006 and 2008 in Tower Hamlets, East London.

 

Perceived barriers to flexible sigmoidoscopy screening for colorectal cancer among UK ethnic minority groups: a qualitative study

Current evidence indicates that there are disparities in uptake rates for screening programmes between UK ethnic minority groups and the white population.  This study explores the barriers to the uptake of sigmoidoscopy (FS) screening among ethnic minorities in the UK. 

 

The risk of prostate cancer amongst black men in the United Kingdom: the PROCESS cohort study

In the US, African American men have a greater risk of developing prostate cancer than white men.  This study investigates whether the same is true for first generation black Caribbean and black African men in the UK.

 

 

Cardiovascular Disease:

Out-of-hospital cardiac arrest in South Asian and white populations in London: database evaluation of characteristics and outcome

A comparison of out-of-hospital cardiac arrest (OOHCA) characteristics in white and south Asian populations in Greater London.

 

Emergence of ethnic differences in blood pressure in adolescence: the determinants of adolescent social well-being and health study

Blood pressure is known to track from late childhood to adulthood and this may give some indication to the cause of ethnic differences in cardiovascular disease (CVD). This study explores ethnic differences in changes to blood pressure between early and late adolescence in the UK.  A related study investigating the relationship between inflammatory markers and ethnic differences in CVD conducted with infants is available here

 

 

Client Groups:

Healthy ageing, healthy living project

This report of a project conducted by Age Concern looks into increasing the participation of older people from non-mainstream groups in health promotion activity.  As a result of the project, patient information was made available by Age Concern for African - Caribbean and south Asian older people. 

 

Inequalities experienced by Gypsy and Traveller communities: a review

Evidence from a wide range of gypsies' and travellers' experiences is drawn together by this review to set out clearly the full extent of the inequalities and discrimination they face.  A review of existing evidence provides a basis to address these inequalities.

 

Interactions between a deaf child for whom English is an additional language and his specialist teacher in the first year at school: combining words and gestures

A description is given of the interactions between a specialist teacher and a nursery-aged pre-lingual deaf child from a Somali speaking family, where English is an additional language. 

 

The involvement of Chinese older people in policy and practice: aspirations and expectations

The active involvement of Chinese older people in research and the promotion of their quality of life are explored in this report.

 

‘Unheard voices’: listening to refugees and asylum seekers in the planning and delivery of mental health service provision in London

Asylum seekers and refugees are more likely to experience poorer mental health than native populations.  This research audit and good practice guide on the provision of mental health services and the mental health needs of refugees and asylum seekers is intended for use by health providers, service users, local authorities and other key statutory and voluntary agencies working with refugees and asylum seekers in London.

 

Will community-based support services make direct payments a viable option for black and minority ethnic service users and carers?

More and more people are choosing the ‘direct payments’ scheme for personal assistance over those services supplied by local authorities.  This discussion paper explains the legislation on ‘direct payments’, summarises the growing research that indicates black and minority ethnic (BME) service users and carers are not fully able to access ‘direct payments’ and explores ways in which the ‘direct payments’ scheme can be effective for BME service users and carers.

 

 

Cultural Competence:

Patient satisfaction with different interpreting methods: a randomized controlled trial

As a result of increasing numbers of limited-English-proficient (LEP) patients, a number of different interpreting methods for these patients have been developed.  This randomised controlled trial evaluates the impact of interpreting method on patient satisfaction in a USA setting.

 

 

Diabetes:

Discovering the research priorities of people with diabetes in a multicultural community: a focus group study

It is government policy to involve service users in research, but there is a lack of published research about involving patients from minority ethnic groups and people from deprived areas.  This study aims to discover the desired research priorities of people with diabetes from a multicultural inner city community and compare these with expert-led research priorities.

 

 

Ethnicity Linked Disorders:

The social consequences of sickle cell and thalassaemia: improving the quality of support

This is number 17 in the Race Equality Foundation’s, “Better Health” briefing series. (See news story above about their ‘Better Health’ site) 

 

 

Health Promotion and Preventative Services:

A systematic review of the literature on black and minority ethnic communities in sport and physical recreation

This systematic review examines participation in sport and physical recreation by black and minority ethnic communities in the UK.

 

 

Infectious Diseases:

'Experts', 'partners' and 'fools': exploring agency in HIV treatment seeking among African migrants in London

The concept of the informed or 'expert' patient who is able to have a meaningful input into the direction and management of their own health care and treatment has increasingly dominated discourse concerning health and wellbeing in the UK.  This study investigates how migrants from Africa with HIV perceive their relationships with their doctor and how this affects their treatment and health care.

 

 

Mental Health:

Bringing dementia out of the shadows for BME elders: a report on the work of the ethnic minorities dementia advocacy project (EMDAP)

The Ethnic Minorities Dementia Advocacy Project (EMDAP) aimed to raise awareness of dementia and dementia advocacy amongst black and minority ethnic (BME) communities, make existing advocacy services aware of the need to make their services more accessible to BME communities and to support advocacy providers through training and the sharing of expertise.  This report evaluates the success of the project.

 

Celebrating our cultures: guidelines for mental health promotion with black and minority communities

This guide is intended for use by public health and health promotion specialists, voluntary sector workers, primary care workers, mental health workers and local authority workers amongst others and aims to provide information and evidence about mental health promotion, support local workers to plan and deliver effective interventions, and offer examples of mental health promotion with different communities.  Specific guidance is available for those working with African - Caribbean and south Asian communities as well as for those working with refugees and asylum seekers.  

 

Dancing to our own tunes: reassessing black and minority ethnic mental health service user involvement

An investigation by the National Survivor User Network into the experiences of black and minority ethnic people's participation in mental health service user involvement initiatives.

 

Suicide prevention for BME groups in England, report from the BME suicide prevention project: executive summary

The overwhelming message from the BME Suicide Prevention Project is that more information and better knowledge of prevention is needed for services to be equitable and for BME groups to benefit from the success of the National Suicide Prevention Strategy (NSPS).

 

Suicide rates in people of south Asian origin in England and Wales: 1993-2003

As ethnicity is not recorded on death certificates, calculating suicide rates for south Asians in the UK is difficult.  Using new technology this study aims to calculate and assess changes over time for south Asian origin population suicide rates.

 

 

Neurological Disorders:

Cross-language generalization following treatment in bilingual speakers with aphasia: a review

This review focuses on the potential transfer or generalisation of positive effects from a treated to an untreated language in bilingual or multilingual people with primary acquired aphasia.

 

Issues and principles in service delivery to communicatively impaired minority bilingual adults in neurorehabilitation

The need to develop effective culturally appropriate clinical approaches for minority ethnic adults with communication impairments is highlighted by demographic and epidemiological trends coupled with the healthcare needs of ethnic minority populations.  With a special focus on bilingual adults with aphasia this study explores the current clinical needs and complexities in service delivery to communicatively impaired minority ethnic adults. 

 

 

Respiratory Disorders:

Demographic data in asthma clinical trials: a systematic review with implications for generalizing trial findings and tackling health disparities

Factors related to asthma, including morbidity, prevalence, adverse events, mortality and healthcare utilization, vary widely among ethnic and other socio-demographic groups.  Recommendations have been made to report and analyse ethnic and demographic information in clinical trials as a means of tackling this variation.  This systematic review aims to determine the extent to which ethnic and other socio-demographic information is reported in publications from randomised controlled trials of asthma interventions.

 

 

Service Delivery:

Access to services with interpreters: user views

The Home Office Citizenship Survey in 2001 indicated that 36% of people from minority ethnic groups spoke languages other than English at home with just under 14% of them needing somebody to interpret some or all of the questions for them in the survey.  This report investigates the experiences of people who need interpreters to access and use health, welfare and other services.

 

Effective methods of engaging black and minority ethnic communities within health care settings

This is number 18 in the Race Equality Foundation’s “Better Health” briefing series.

(See news story above about their better health site)

 

Better together: a guide for people in the health service on how you can help to build more cohesive communities

This guide by the Institute of Community Cohesion and the Department of Health is intended to aid health workers and NHS trusts to contribute to community cohesion in the communities in which they operate and to examine how community cohesion can impact on health, wellbeing and health inequalities. 

 

Forthcoming Events:

 

July:

Critical Link 6

The theme of this conference is ‘Interpreting in a Changing Landscape’. The aim is to explore political, legal, human rights, trans-national, economic, socio-cultural, and sociolinguistic aspects of public service/community interpreting.

 

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Formerly known as the Specialist Library for Ethnicity and Health