******************************** Please remove this footer before replying.----- Original Message -----From: [log in to unmask] href="mailto:[log in to unmask]">Jean Greening-Jackson (Occupational Health)To: [log in to unmask] href="mailto:[log in to unmask]">[log in to unmask]Sent: Tuesday, March 02, 2010 1:56 PMSubject: Re: [OCC-HEALTH] PleurodesisThank you. I'd actually seen this and got the information, but my query is about reasonable adjustments, and if I'm being over cautious! I don't think I am, and the fact that the consultant didn't give a definitive answer about manual handling makes me feel I probably am right. I await with interest to see if there are any more responses.
From: [log in to unmask] [mailto:[log in to unmask]] On Behalf Of Jay Chapman
Sent: 02 March 2010 12:16
To: [log in to unmask]
Subject: Re: [OCC-HEALTH] PleurodesisThe following may be of help:-Living With LAMIn the early stages of LAM, you usually can go about your daily activities, including attending school, going to work, and performing common physical activities such as walking up a hill. Later on, it may be harder for you to be active. You also may require oxygen full time.
Ongoing medical care is important. Treatment by a pulmonologist who specializes in LAM is recommended. These specialists are usually located at major medical centers.
It is important for you to take good care of your health. This means following the same healthy lifestyle that is recommended for all Americans, including eating a healthy diet, being as physically active as you can, and getting plenty of rest. You also should not smoke.
You should check with your doctor before traveling by air or traveling to remote areas where medical attention is not readily available. You also should ask about travel to places where the amount of oxygen in the air is low.
If your lung function is normal, pregnancy may be an option, but you should discuss it first with both a pulmonologist who specializes in LAM and your obstetrician.
Most doctors do not recommend oral contraceptives (birth control pills) containing oestrogen. You also should avoid oestrogen-rich foods. Progesterone may be used as a contraceptive.
Key Points About Lymphangioleiomyomatosis (LAM)
- LAM is a rare lung disease that mostly affects women in their mid-forties. It is sometimes seen in older women as well. It almost never affects men.
- In LAM, clumps of cells and cysts grow throughout the lungs. Over time, they destroy the normal lung tissue and block the flow of air. They also reduce oxygen intake by the lungs.
- More than 1 out of every 3 women with LAM develops growths called angiomyolipomas (AMLs) in their kidneys.
- There are two forms of LAM: sporadic LAM, in which the disease comes on for unknown reasons, and LAM that appears in people with a rare inherited disease called tuberous sclerosis complex (TSC).
- Doctors do not yet know what causes LAM. The recent discovery of similarities between LAM and TSC has begun to provide some valuable clues about the genes involved in both conditions.
- The symptoms of LAM include shortness of breath (especially following periods of exertion), chest pain, and a frequent cough, sometimes with bloody phlegm.
- LAM can lead to other serious conditions, including a collapsed lung, blood in the urine, and abdominal swelling.
- To confirm or rule out LAM, doctors usually do a chest x ray, lung function tests, blood tests, pulse oximetry, high resolution CT scans, and lung biopsy.
- Doctors have not yet found any treatments to slow or stop the growth of the cell clusters or cysts that are the main features of LAM. As a result, most treatments are aimed at relieving symptoms and preventing complications. These treatments include inhaled bronchodilators, oxygen therapy, removal of air or fluid from your chest or abdominal cavities, and lung transplantation.
- Several medicines are now being investigated as possible treatments for LAM, including rapamycin.
- Most people with LAM can usually continue to be active in the early stages of the disease. If the condition becomes worse, they may not be able to be active, and they may need oxygen full time.
RegardsJC******************************** Please remove this footer before replying.----- Original Message -----From: [log in to unmask] href="mailto:[log in to unmask]">Jean Greening-Jackson (Occupational Health)To: [log in to unmask] href="mailto:[log in to unmask]">[log in to unmask]Sent: Tuesday, March 02, 2010 10:48 AMSubject: [OCC-HEALTH] PleurodesisI have lady with Lymphangioleiomyomatosis who, as a result of Pneumothorax now has had bilateral pleurodesis.( lots of big words today!)She works with special needs children in school, and I advised as an adjustment that she did not undertake manual handling ( some of these are big children) at least until I had a medical report.She is now ready to go back to school, but the Consultant hasn't really advised about this issue, even though I asked specifically.My instinct is to request this adjustments remains in place, as her next and only option, should her condition deteriorate is a lung transplant. Does any one have an experience to share or advice on the matter?Jean Greening-Jackson.BSc ( Hons) RGN HV.Registered Specialist Practitioner in Occupational Health.Department of Employee HealthSixth FloorCity Exchange61 Hall IngsBradfordBD1 5SG01274 43488207771884084The information in this e-mail is intended for the recipient or entry to whom it is addressed. It may contain privileged and confidential information, and if you are not the intended recipient please notify sender and delete the message from your system immediately.******************************** Please remove this footer before replying.OCC-HEALTH ARCHIVES: http://www.jiscmail.ac.uk/lists/occ-health.html
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