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The OTs at the spinal injury unit he attends may also have some suggestions Stephen Kirker MD FRCPI Consultant in Rehabilitation Medicine Addenbrookes Rehabilitation Clinic 9 Box 120 Addenbrookes Hospital Cambridge CB2 2QQ 01223 217870 fax 01223 242038 [log in to unmask] www.EasternRehabGroup.org.uk www.CambridgeAmputeeRehab.org.uk www.papworth.org.uk/rehab -----Original Message----- From: Pain H.S. [mailto:[log in to unmask]] Sent: 15 February 2008 09:03 To: [log in to unmask] Subject: Re: Advice please - spinal injury May be this has already been trawled, but is http://www.spinalnet.co.uk/ any help? Helen Pain (Mrs) Research Assistant SPRING, School of Social Sciences University of Southampton, SO17 1BJ -----Original Message----- From: A discussion list for Assistive Technology professionals. [mailto:[log in to unmask]] On Behalf Of Simon Judge Sent: 14 February 2008 10:24 To: [log in to unmask] Subject: Re: Advice please - spinal injury Ah! Yes, referring to yourself is generally not very useful! It might be that N Thames can help and/or know the appropriate service: http://www.assistech.org.uk/doku.php/services:services & http://tinyurl.com/2vpa9h Cheers. Simon -----Original Message----- From: A discussion list for Assistive Technology professionals. [mailto:[log in to unmask]] On Behalf Of Ian F. Sent: Wednesday, February 13, 2008 11:39 PM To: [log in to unmask] Subject: Re: Advice please - spinal injury Hi Thanks. I should have clarified, I'm an assessor at an HE assessment centre, and I did his original assessment. His condition has deteriorated since I saw him. I've specialised in identifying assistive tech aids for student with complex physical disabilities for several years. I used to have the luxury of having a very small, local client base that allowed me to visit students with complex disabilities at home on several occassions during the assessment process - co-ordinating evaluations of equipment, working with specialist suppliers and even getting local carpenters and IT bods involved in designing solutions that could be tweaked and adjusted on an on-going basis. At the moment, I can't offer this level of support, as the numbers of students coming through for assessment makes it impossible. I was hoping there might be a local, specialist assessment service capable of spending time identifying custom solutions I could refer him to. Ian ----- Original Message ----- From: "Simon Judge" <[log in to unmask]> To: <[log in to unmask]> Sent: Wednesday, February 13, 2008 10:33 AM Subject: Re: Advice please - spinal injury > RE assessments - he should be entitled to an assessment through an HE > assessment centre. > > http://www.nadp-uk.org/resources/links.php > > EA from emptech.info was also compiling a map of centres, but this > doesn't seem to be public yet (EA?). Also, http://www.techdis.ac.uk/ > may be able to help find an appropriate centre. > > > Cheers. > > Simon > > -----Original Message----- > From: A discussion list for Assistive Technology professionals. > [mailto:[log in to unmask]] On Behalf Of Ian F. > Sent: Tuesday, February 12, 2008 10:23 PM > To: [log in to unmask] > Subject: Advice please - spinal injury > > Hi > Wonder if anyone can offer any advice. A student with a spinal injury > contacted me today. He says he cannot attempt to sit and read or use a > computer for even brief periods because of chronic pain, and that he > is only comfortable when he is lying flat on his back, when there is > "no pressure on the spine". I don't have access to the details of his > condition at this time. > > He asked for advice on aids that could allow him to read and undertake > computer based coursework tasks while lying flat on his back. He > thought some way of "projecting the pages of a book onto a screen over his head" > might work. I made some basic suggestions he didn't think would help. > In the end, I could only suggest some specialist equipment suppliers > he could investigate and that he might want to contact AbilityNet or > local British Computer Society volunteers. > > The student studies at University of Essex and I think he could > benefit from expertise I'm not able to offer. Is there a specialist > assessment service I can refer him to, or tell him to ask to be > referred to by his GP or Social Services, where he can try out > potential aids and adaptations that allow him to use computer > equipment and read in bed that take into account any medical > implications of his condition, ideally in the London or Essex area? > Any suggestions on how best to advise this student will be gratefully > received. > > If necessary, I can approach his local education authority to pay for > a specialist assessment. However, I'm concerned that the nature of the > assessment might require involvement of medical specialists, which > might not happen if a private assssment is arranged. It wasn't > possible to explore his current treatment but I got the impression he > is struggling to get medical support that he's happy with, as he also > asked if I knew of any charities he could approach to pay for surgery. > > Maybe people know of a good spinal injuries organisation I can refer > him to that can provide practical, realistic advice and support e.g. > arranging appropriate treatment through the NHS, understanding why > treatment isn't being offered, pursuing alternative options etc? > > Thanks in advance for any suggestions people come up with. > > Regards > Ian Francis > > > ********************************************************************** > This message may contain confidential and privileged information. > If you are not the intended recipient please accept our apologies. > Please do not disclose, copy or distribute information in this e-mail > or take any action in reliance on its contents: to do so is strictly > prohibited and may be unlawful. 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Over a million messages are sent every day by the system. To find out why more and more NHS personnel are switching to this NHS Connecting for Health system please visit www.connectingforhealth.nhs.uk/nhsmail **********************************************************************