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Dear Karen, in addition to the other suggestions, your colleague might try the occupational therapy department of your local social services. Regards Jackie Evans -----Original Message----- From: Discussion list for disabled students and their support staff. [mailto:[log in to unmask]]On Behalf Of DIS-FORUM automatic digest system Sent: 13 July 2007 00:02 To: [log in to unmask] Subject: DIS-FORUM Digest - 11 Jul 2007 to 12 Jul 2007 (#2007-149) There are 3 messages totalling 330 lines in this issue. Topics of the day: 1. question for a collegue (3) ---------------------------------------------------------------------- Date: Thu, 12 Jul 2007 11:11:36 +0100 From: Karen Farmer <[log in to unmask]> Subject: question for a collegue Hi all,=20 A colleague of mine has just found out that two of her children have a = rather rare progressive condition called neurofibromatosis (type NF1) - = would anyone be able to advise as to how she can find out if she is = entitled to any help with transport to hospital for their treatment = sessions (she does not drive)? Or any other help.=20 I've suggested that she check out the "Contact a Family" website, as they = usually have advice/information, but I'm stumped as to where else she = might try looking. Who does one contact with regard to checking entitlement to appropriate = benefits/allowances (attendance allowance or similar) - as although we are = both aware that these things exist, neither of us has any idea of where to = start looking or who to approach.=20 If anyone has any pointers or advice to offer, perhaps I could ask you to = respond to me off-list, to save the rest of dis-forum from being inundated = with this.=20 [log in to unmask] Thanks! K Karen Farmer DSA Needs Assessor Learning Support University of Bedfordshire Park Square, Luton LU1 3HZ Tel: 01582 74 3422=20 Internal ext: 3422 Fax: 01582 489349 ------------------------------ Date: Thu, 12 Jul 2007 12:34:55 +0100 From: Judith Stansfield <[log in to unmask]> Subject: Re: question for a collegue Local Citizens Advice Bureau? - they have an immense database + local knowledge Cheers Judith ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Judith Stansfield Farm Cottage, 24 East Road, Melsonby,Richmond DL10 5NF [log in to unmask] 01325 718139 07990572365 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ -----Original Message----- From: Discussion list for disabled students and their support staff. [mailto:[log in to unmask]] On Behalf Of Karen Farmer Sent: 12 July 2007 11:12 To: [log in to unmask] Subject: question for a collegue Hi all, A colleague of mine has just found out that two of her children have a rather rare progressive condition called neurofibromatosis (type NF1) - would anyone be able to advise as to how she can find out if she is entitled to any help with transport to hospital for their treatment sessions (she does not drive)? Or any other help. I've suggested that she check out the "Contact a Family" website, as they usually have advice/information, but I'm stumped as to where else she might try looking. Who does one contact with regard to checking entitlement to appropriate benefits/allowances (attendance allowance or similar) - as although we are both aware that these things exist, neither of us has any idea of where to start looking or who to approach. If anyone has any pointers or advice to offer, perhaps I could ask you to respond to me off-list, to save the rest of dis-forum from being inundated with this. [log in to unmask] Thanks! K Karen Farmer DSA Needs Assessor Learning Support University of Bedfordshire Park Square, Luton LU1 3HZ Tel: 01582 74 3422 Internal ext: 3422 Fax: 01582 489349 ------------------------------ Date: Thu, 12 Jul 2007 12:53:48 +0100 From: Paul Hubert <[log in to unmask]> Subject: Re: question for a collegue --10732665-19764-1184241228=:3996 Content-type: TEXT/PLAIN; CHARSET=US-ASCII Content-transfer-encoding: QUOTED-PRINTABLE Depending on local resources/funding, a local affiliate of DIAL UK (Disabil= ity Information and Advice Line) may be more useful - there's a Dunstable o= rganisation listed on their website, and you can look for others - http://= www.dialuk.info/findadial/index.asp A Google search turns up an organisation called the Neurofibromatosis Assoc= iation (UK) http://www.nfauk.org/ which may have useful info (although thei= r website at a glance looks a bit 'medical'). Paul Former CAB and DIAL person -----Original Message----- From: Discussion list for disabled students and their support staff. [mailt= o:[log in to unmask]] On Behalf Of Judith Stansfield Sent: 12 July 2007 12:35 To: [log in to unmask] Subject: Re: question for a collegue Local Citizens Advice Bureau? - they have an immense database + local knowl= edge Cheers Judith ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Judith Stansfield Farm Cottage, 24 East Road, Melsonby,Richmond DL10 5NF [log in to unmask] = =20 01325 718139 07990572365 ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ -----Original Message----- From: Discussion list for disabled students and their support staff. [mailto:[log in to unmask]] On Behalf Of Karen Farmer Sent: 12 July 2007 11:12 To: [log in to unmask] Subject: question for a collegue Hi all,=20 A colleague of mine has just found out that two of her children have a rath= er rare progressive condition called neurofibromatosis (type NF1) - would a= nyone be able to advise as to how she can find out if she is entitled to an= y help with transport to hospital for their treatment sessions (she does no= t drive)? Or any other help.=20 I've suggested that she check out the "Contact a Family" website, as they u= sually have advice/information, but I'm stumped as to where else she might = try looking. Who does one contact with regard to checking entitlement to appropriate ben= efits/allowances (attendance allowance or similar) - as although we are bot= h aware that these things exist, neither of us has any idea of where to sta= rt looking or who to approach.=20 If anyone has any pointers or advice to offer, perhaps I could ask you to r= espond to me off-list, to save the rest of dis-forum from being inundated w= ith this.=20 [log in to unmask] Thanks! K Karen Farmer DSA Needs Assessor Learning Support University of Bedfordshire Park Square, Luton LU1 3HZ Tel: 01582 74 3422 Internal ext: 3422 Fax: 01582 489349 --10732665-19764-1184241228=:3996 Content-type: TEXT/HTML; CHARSET=US-ASCII Content-transfer-encoding: QUOTED-PRINTABLE <!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 3.2//EN"> <HTML> <HEAD> <META HTTP-EQUIV=3D"Content-Type" CONTENT=3D"text/html; charset=3Dus-ascii"= > <META NAME=3D"Generator" CONTENT=3D"MS Exchange Server version 6.5.7036.0"> <TITLE>RE: question for a collegue</TITLE> </HEAD> <BODY> <!-- Converted from text/plain format --> <P><FONT SIZE=3D2>Depending on local resources/funding, a local affiliate o= f DIAL UK (Disability Information and Advice Line) may be more useful - the= re's a Dunstable organisation listed on their website, and you can look for= others - <A HREF=3D"http://www.dialuk.info/findadial/index.asp">http= ://www.dialuk.info/findadial/index.asp</A></FONT></P> <P><FONT SIZE=3D2>A Google search turns up an organisation called the Neuro= fibromatosis Association (UK) <A HREF=3D"http://www.nfauk.org/">http://www.= nfauk.org/</A> which may have useful info (although their website at a glan= ce looks a bit 'medical').</FONT></P> <P><FONT SIZE=3D2>Paul</FONT> <BR><FONT SIZE=3D2>Former CAB and DIAL person</FONT> </P> <P><FONT SIZE=3D2>-----Original Message-----</FONT> <BR><FONT SIZE=3D2>From: Discussion list for disabled students and their su= pport staff. [<A HREF=3D"mailto:[log in to unmask]">mailto:DIS-FORUM@= JISCMAIL.AC.UK</A>] On Behalf Of Judith Stansfield</FONT></P> <P><FONT SIZE=3D2>Sent: 12 July 2007 12:35</FONT> <BR><FONT SIZE=3D2>To: [log in to unmask]</FONT> <BR><FONT SIZE=3D2>Subject: Re: question for a collegue</FONT> </P> <P><FONT SIZE=3D2>Local Citizens Advice Bureau? - they have an immense data= base + local knowledge Cheers Judith ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</FO= NT></P> <P><FONT SIZE=3D2>Judith Stansfield</FONT> <BR><FONT SIZE=3D2>Farm Cottage, 24 East Road, Melsonby,Richmond DL10 5NF s= [log in to unmask] </FONT> <BR><FONT SIZE=3D2>01325 718139 07990572365</FONT> <BR><FONT SIZE=3D2>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~</FONT> </P> <BR> <P><FONT SIZE=3D2>-----Original Message-----</FONT> <BR><FONT SIZE=3D2>From: Discussion list for disabled students and their su= pport staff.</FONT> <BR><FONT SIZE=3D2>[<A HREF=3D"mailto:[log in to unmask]">mailto:DIS-= [log in to unmask]</A>] On Behalf Of Karen Farmer</FONT> <BR><FONT SIZE=3D2>Sent: 12 July 2007 11:12</FONT> <BR><FONT SIZE=3D2>To: [log in to unmask]</FONT> <BR><FONT SIZE=3D2>Subject: question for a collegue</FONT> </P> <BR> <P><FONT SIZE=3D2>Hi all, </FONT> </P> <P><FONT SIZE=3D2>A colleague of mine has just found out that two of her ch= ildren have a rather rare progressive condition called neurofibromatosis (t= ype NF1) - would anyone be able to advise as to how she can find out if she= is entitled to any help with transport to hospital for their treatment ses= sions (she does not drive)? Or any other help. </FONT></P> <P><FONT SIZE=3D2>I've suggested that she check out the "Contact a Fam= ily" website, as they usually have advice/information, but I'm stumped= as to where else she might try looking.</FONT></P> <P><FONT SIZE=3D2>Who does one contact with regard to checking entitlement = to appropriate benefits/allowances (attendance allowance or similar) - as a= lthough we are both aware that these things exist, neither of us has any id= ea of where to start looking or who to approach. </FONT></P> <P><FONT SIZE=3D2>If anyone has any pointers or advice to offer, perhaps I = could ask you to respond to me off-list, to save the rest of dis-forum from= being inundated with this. </FONT></P> <P><FONT SIZE=3D2>[log in to unmask] </FONT> </P> <P><FONT SIZE=3D2>Thanks!</FONT> </P> <P><FONT SIZE=3D2>K</FONT> </P> <P><FONT SIZE=3D2>Karen Farmer</FONT> <BR><FONT SIZE=3D2>DSA Needs Assessor</FONT> <BR><FONT SIZE=3D2>Learning Support</FONT> <BR><FONT SIZE=3D2>University of Bedfordshire</FONT> <BR><FONT SIZE=3D2>Park Square, Luton</FONT> <BR><FONT SIZE=3D2>LU1 3HZ</FONT> </P> <P><FONT SIZE=3D2>Tel: 01582 74 3422</FONT> <BR><FONT SIZE=3D2>Internal ext: 3422</FONT> <BR><FONT SIZE=3D2>Fax: 01582 489349</FONT> </P> </BODY> </HTML> --10732665-19764-1184241228=:3996-- ------------------------------ End of DIS-FORUM Digest - 11 Jul 2007 to 12 Jul 2007 (#2007-149) ****************************************************************