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David, The screening programme will most likely be implemented via the Regional newborn screening laboratories who already have the blood spots for PKU, CHT, Sickle and MCADD screening. Regards Paul Griffiths -----Original Message----- From: Williams David G (RLN) City Hospitals Sunderland - Clinical Scientist [mailto:[log in to unmask]] Sent: 18 August 2005 13:32 To: [log in to unmask] Subject: Re: To sweat or not, that's the question I suspect that the implementation will depend on the local take up of the suggested protocol by the Paediatricians. and also whether or not a laboratory can be found to do the blood spot IRT's. As Mark Twain put it "Reports of my death have been greatly exaggerated" - ditto sweat tests. Of course, whether or not we would be keen to see the back of them is quite another matter! -----Original Message----- From: O'Connor John (Royal Devon and Exeter Foundation Trust) [mailto:[log in to unmask]] Sent: 18 August 2005 12:09 To: [log in to unmask] Subject: To sweat or not, thats the question I came across the following PDF, http://www.ich.ucl.ac.uk/newborn/download/nationalLaboratoryAlgorithm.pdf which is referenced from the national electonic library of health, screening website http://libraries.nelh.nhs.uk/screening/viewResource.asp?uri=http://libraries .nelh.nhs.uk/common/resources/?id=95742 The following link states that all babies should be screened by this protocol by April 2007 http://libraries.nelh.nhs.uk/screening/viewResource.asp?keywordID=14202&attr ibuteText=Neonatal%20Screening&uri=http%3A//libraries.nelh.nhs.uk/common/res ources/%3Fid%3D95709 A summary of the recommendations can be found here http://www.ich.ucl.ac.uk/newborn/download/CFrecommendations.pdf The first recommendation states Recommendation 1: No alternative protocol should be offered to those who do not want testing of blood spot samples - they would have to opt out of CF screening altogether. So I am guessing the days of sweat testing are numbered and macroduct systems are gathering dust or perhaps not. How is everyone gearing up for this. Cheers John ------ACB discussion List Information-------- This is an open discussion list for the academic and clinical community working in clinical biochemistry. Please note, archived messages are public and can be viewed via the internet. Views expressed are those of the individual and they are responsible for all message content. ACB Web Site http://www.acb.org.uk List Archives http://www.jiscmail.ac.uk/lists/ACB-CLIN-CHEM-GEN.html List Instructions (How to leave etc.) http://www.jiscmail.ac.uk/ ------ACB discussion List Information-------- This is an open discussion list for the academic and clinical community working in clinical biochemistry. Please note, archived messages are public and can be viewed via the internet. Views expressed are those of the individual and they are responsible for all message content. ACB Web Site http://www.acb.org.uk List Archives http://www.jiscmail.ac.uk/lists/ACB-CLIN-CHEM-GEN.html List Instructions (How to leave etc.) http://www.jiscmail.ac.uk/ This material has been checked by us for computer viruses using InoculateIT and although no virus has been found by us, we cannot guarantee that it is completely free from such problems and we do not accept any liability for loss or damage which may be caused. This communication is intended solely for the addressee and is confidential. If you are not the intended recipient, any disclosure, copying, distribution or any action taken or omitted to be taken in reliance on it, is prohibited and may be unlawful. Any information, materials, graphics, and/or opinions posted by the Sender are those of the respective Sender and do not necessarily reflect the opinion of Birmingham Children's Hospital NHS Trust unless explicitly stated to the contrary. ------ACB discussion List Information-------- This is an open discussion list for the academic and clinical community working in clinical biochemistry. Please note, archived messages are public and can be viewed via the internet. Views expressed are those of the individual and they are responsible for all message content. ACB Web Site http://www.acb.org.uk List Archives http://www.jiscmail.ac.uk/lists/ACB-CLIN-CHEM-GEN.html List Instructions (How to leave etc.) http://www.jiscmail.ac.uk/