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Hi, These may help; Bower and Hayes (1998) Mothering in families with and without a child with disabilities, International Journal of Disability, Development and Education, 45 (3), 313-322 Found overall experiences characterised by similarities rather than differences. Kearney and Griffin, (2001) Between sorrow and joy; being a parent of a child with developmental disability, Journal of Advanced Nursing, 34 (5), 582-592 Again found problems (ie sorrow) were external to the family. Landsman, G (1998) Reconstructing motherhood in the age of "perfect" babies, Signs, 28 (1) Discusses how mothers redefine and challenge their values and priorities and reflects on implications for prenatal testing. Patching, B and Watson, B (1993) Living with children with an ID; parents construct their reality, International Journal of Disability, Development and Education, 40 (2), 115-131 Found notion of 'disabled families' inappropriate as similarities with mainstream families. Grant and Ramcharan also do a good literature review highlighting studies that avoid deficit models but I havent got the ref to hand. It is 2001 if that's any help. Let me know if you want me to get the complete reference. Sara > Hello All, > > I am doing yet more writing on issues of prenatal testing, this time > explicitly discussing issues of parenthood, parent-child relationships, and > family life. One of the texts on which I rely for discussions of family > life, showing that families including children with disabilities fare about > as well as families with only nondisabled children, is an article by Philip > Ferguson printed in the book _Prenatal Testing and Disability Rights_. Is > there other recent work discussing family life and disability by persons > other than Phil Ferguson, so that I can broaden and vary citations -- > especially when critics insist that this happy story can't be true? > > A second, related question concerns specifically the lives of families and > children with significant, multiple impairments of both physical and > cognitive/emotional nature. I would like to read and cite more rich > qualitative or good quantitative studies of family life for this portion of > the disability population, not because I want to support impairment > classifications, but because I am writing for people who do not believe the > social model and who do need "data" they can be forced to contend with. > > Please send all suggestions to me and if you would like to discuss this > topic with me on or off list, I would be grateful. > > Sincerely, > Adrienne > > Adrienne Asch > > Adrienne Asch > > ________________End of message______________________ > > Archives and tools for the Disability-Research Discussion List > are now located at: > > www.jiscmail.ac.uk/lists/disability-research.html > > You can JOIN or LEAVE the list from this web page. > ________________End of message______________________ Archives and tools for the Disability-Research Discussion List are now located at: www.jiscmail.ac.uk/lists/disability-research.html You can JOIN or LEAVE the list from this web page.