Dear Members, I would highly appreciate it if anyone would give me an explanation or answer on my question. I want to know what is an appropriate term (s) to explain following philosophy/concept . I think, a slogan, “Nothing about us without us”, clearly shows the basic philosophy of disability movement in western society, i.e., “we (disabled people) are the one who really experience/fight/suffer disability, hence we (disabled people) are the subject/actor/decision maker on this issue, not anyone else (e.g., doctors, etc.)” I.e., make "being disabled people (having experience of disability)" absolute qualification (prerequisite) to be an actor/decision maker on disability issue. In Japanese disability studies, such concept is explained by one word “toujisya” or by two words “toujisya syutai”. Then, I was wondering if this concept can be explained by one or two terms in English. (“Toujisya” means “party involved / party interested / privy”, and “syutai” means actor / subject. I.e., when you say “toujisya syutai”, above concept is already explained.) The reason I asked this is that “Toujisya” is a buzzword in Japanese disability studies. Without this word, disability cannot be discussed in Japanese. Even the latest book on disability studies, which written by Mr. Nakanishi, Chair of DPI Japan and leading gender scholar, Ms. Ueno, also titled “toujisya syuken”. (syuken means sovereignty). However, I cannot find the appropriate word to translate this "toujisya" into one or few words in English, then I always “explain” by a sentence, like above. I could not find such term (s)/expression in English books of disability studies, but was thinking there may be one to explain this concept, e.g., "involved-actor principle"? Thank you for your help in advance! Cheers kenji kuno [log in to unmask] ________________End of message______________________ Archives and tools for the Disability-Research Discussion List are now located at: www.jiscmail.ac.uk/lists/disability-research.html You can JOIN or LEAVE the list from this web page.