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Thanks for all the replies I have received on this subject; they have
been (mostly) passed on to my colleague (in another NHS Trust). 
For information, they decided that the GP of the diagnosed child (who
has one year to live) and the GP of the other child will discuss the
issue and decide how to progress.

Nic

-----Original Message-----
From: Tim Trent [mailto:[log in to unmask]] 
Sent: 25 May 2004 12:16
To: [log in to unmask]
Subject: Re: Infectious or genetic illness

Stuart and Antoinette and I illustrate three of the many facets of data
being passed to us by well meaning individuals, and three very distinct
reactions to it, personal reactions.  It certainly is a medical ethics
issue, but it also contains sensitive data.  What if we had been
speaking of
infectious diseases like Measles (Notifiable disease), or Chlamydia, or
of
at risk contact with a person who is HIV positive?

I have different reactions to being told about those, and each has
different
significance to my life and to my relationship with my wife.

Measles:  Thank you.

Chlamydia:  Oh lord.  Where did that come from and how do I tell my
wife?

HIV:  As Chlamydia, but with the added complication of the assumptions
made
about source of infection, plus the hysteria that surrounds it as an
alleged
death sentence




Tim Trent - Consultant
Direct: +44(0)1344 392644 Mobile:+44(0)7710 126618
email: [log in to unmask]
Marketing Improvement Limited, Abbey House, Grenville Place, Bracknell,
United Kingdom, RG12 1BP
http://www.marketingimprovement.com



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