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DISABILITY-RESEARCH  July 1999

DISABILITY-RESEARCH July 1999

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Subject:

And that also

From:

Gregor Wolbring <[log in to unmask]>

Reply-To:

[log in to unmask]

Date:

Tue, 6 Jul 1999 08:23:45 -0600 (MDT)

Content-Type:

TEXT/PLAIN

Parts/Attachments:

Parts/Attachments

TEXT/PLAIN (622 lines)





Nature
http://helix.nature.com/wcs/02-1a.html
See the part about disability
and women

Guidelines endorsed for
                    'new social contract' between
                    science and society

                    [BUDAPEST] The World Conference of Science closed in
                    Budapest last Thursday afternoon (1 July) with
delegates
                    from almost 150 countries agreeing on a number of
                    principles and guidelines for implementing what the
                    organizers described as a 'new social contract'
between
                    science and society.

                    Included in the specific suggestions were that
countries
                    provide increased support for the networking of
graduate
                    and postgraduate institutions, that the training of
                    scientific journalists and communicators be enhanced,
                    and that "adequate participatory mechanisms should be
                    instituted to facilitate democratic debate on
scientific
                    policy issues."

                    One proposal was that "ethics and social
responsibility"
                    should be an integral part of the education and
training of
                    all scientists. Existing panels in Unesco and the
                    International Council for Science (ICSU) the two
                    co-organizers of the conference, have been given
                    responsibility for following up on this issue.

                    Another proposal was that campaigns be launched at
                    national regional and global levels to raise awareness
of
                    the contributions of women to science and technology,
                    and that an international network of women scientists
be
                    set up.

                    Both of these latter ideas figure among a set of
                    recommendations intended to enhance the position of
                    women in science adopted after vigorous lobbying by
                    women's groups (see Women's group celebrate
                    successful campaign ').

                    The guidelines also encourage "special efforts" to
ensure
                    the full participation of disadvantaged groups -
                    implicitly including the disabled - in science and
                    technology, ensuring the representation of such groups
in
                    policy-making bodies and forums.

                    Care had been taken by the organizers to avoid
explicitly
                    committing participants in the conference to a calls
for
                    any increased funding, not only from the
industrialized to
                    the developing nations, but also by developing nations
                    themselves.

                    In particular, there was resistance to calls from some
                    nations, in particular delegates from some Muslim
states,
                    to suggest as a target that all countries aim to
eventually
                    spend one per cent of their gross national product on
                    research and development, a target that had been
agreed
                    at the last global science meeting, held 20 years ago
in
                    Vienna (See 'Muslim states split over call for more
                    research spending', 29 June 1999).

                    However the final documents did agree in general that
                    "innovative and cost-effective mechanisms" for funding
                    science should be examined for implementation by
                    "relevant institutions at the regional and
international
                    levels".

                    In particular, the delegates endorsed the idea that a
                    recent initiative by the major G8 creditor countries
to
                    embark on the process of reducing the debt of certain
                    developing countries "will be conducive to a joint
effort
                    by the developing and developed countries towards
                    establishing appropriate mechanisms for the funding of
                    science" (See 'African countries pledge to use debt
relief
                    for science', 29 June 1999).

                    The conclusions of the six-day meeting were expressed
                    in two documents, Declaration on Science and the Use
of
                    Scientific Knowledge, and Science Agenda: Framework
                    for Action known as the Declaration and Framework
                    respectively.

                    Both were adopted unanimously by the final plenary
                    session after several month of consultation with the
                    member states of Unesco and other organizations, and a
                    hectic two days of final drafting (see 'Drafting group
                    weathers the storm', 1 July 1999).

                    The first is a general statement of principle about
the
                    importance of science, as well as the need to respect
a
                    new 'contract' in which society pledges to continue to
                    support science, while in return scientists agree to
                    accept and respect the responsibilities which this
                    support entails.

                    In particular, the Declaration urges "the nations and
the
                    scientists of the world" to "acknowledge the urgency
of
                    using knowledge from all fields of science in a
                    responsible manner to address human needs and
                    aspirations without misusing this knowledge."

                    The sciences, it says, "should be at the service of
                    humanity as a whole, and should contribute to
providing
                    everyone with a deeper understanding of nature and
                    society, a better quality of life and a sustainable
and
                    healthy environment for present and future
generations".

                    While scientific knowledge has led to remarkable
                    innovations that have been of great benefit to
humankind,
                    the Declaration acknolwedges that "the applications of
                    scientific advances and the development and expansion
                    of human activity have also led to environmental
                    degradation and technological disasters, and have
                    contributed to social imbalance or exclusion".

                    "Today, whilst unprecedented advances in the sciences
                    are foreseen, there is need for a vigorous and
informed
                    democratic debate on the production and use of
scientific
                    knowledge," it says. "The scientific community and
                    decision-makers should seek the strengthening of
public
                    trust and support for science through such a debate."

                    The Declaration also says that helping to create a
                    critical mass of national research in the sciences
through
                    regional and international cooperation is especially
                    important for small states and least developed
countries.

                    "The presence of scientific structures, such as
                    universities, is an essential element for the training
of
                    personnel in their own country with a view to a
                    subsequent career in that country.

                    The second document is intended to provide guidelines
                    through which the principles in the first document can
be
                    implemented by national governments, international
                    organizations, professional scientific bodies - indeed
all
                    those keen to promote a responsible relationship
                    between science and society.

                    (Some countries had been keen to describe the
                    Framework as setting out the means for implementing
the
                    principles described in the Declaration - i.e. for the
                    document to represent the instrument for implementing
                    such principles - but others rejected this as implying
a
                    commitment that they were neither prepared, nor
legally
                    in a position, to make.)

                    The Framework argues that the political, economic,
                    cultural and environmental context of science has
                    changed profoundly in recent years, and that the role
of
                    the sciences - including not only the natural sciences
                    such as physical, earth and biological sciences but
also
                    the, biomedical and engineering sciences, social and
                    human sciences - in this changed context needs to be
                    collectively defined and pursued. "Hence the grounds
for
                    a new commitment," it claims.

                    Its first recommendation is that "each country should
aim
                    at having high-quality scientific institutions capable
of
                    providing research and training facilities in areas of
                    specific interest". Where countries are unable to
create
                    such institutions, it says, "the necessary support
should
                    be granted by the international community, through
                    partnership and co-operation".

                    Donor countries and agencies of the United Nations
                    system are urged to foster cooperation in order to
                    increase the quality and efficiency of their support
to
                    research in developing countries. "Their joint effort
                    should be focused on strengthening national research
                    systems, taking into account national priorities and
                    science policies."

                    Governments should identify the needs of the nation
and
                    give priority to support of the public research needed
to
                    achieve progress in the various fields, ensuring
"stable
                    funding" for the purpose. Parliaments should adopt
                    corresponding measures and levels of budget
                    appropriation.

                    Both governments and the private sector, says the
                    Framework, "should achieve an adequate balance
                    between the various mechanisms for funding of
scientific
                    research". In particular, "new funding possibilities
                    should be explored or promoted through appropriate
                    regulation and incentive schemes, with public-private
                    partnerships based on flexible schemes, and
                    governments warranting the accessibility of generated
                    knowledge".

                    On the issue of sharing scientific information and
                    knowledge, the participants in the Budapest meeting
                    agreed that "initiatives to facilitate access to
scientific
                    information sources by scientists and institutions in
the
                    developing countries should be especially encouraged
                    and supported".

                    Research and education institutions are urged to take
                    account of the new information and communication
                    technologies, assess their impact and promote their
use,
                    for example through the development of electronic
                    publishing and the establishment of virtual research
and
                    teaching environments or digital libraries.

                    In particular, it says, "the establishment of an
                    international programme on Internet-enabled science
and
                    vocational education and teaching, together with the
                    conventional system, should be considered to redress
the
                    limitations of educational infrastructure and to bring
                    high-quality science education to remote locations,".

                    A sustained effort by a number of developing countries
                    to increase the emphasis given to traditional
knowledge
                    systems resulted in agreement that such knowledge
                    should be brought closer to modern scientific
knowledge
                    in interdisciplinary projects in areas such as the
                    conservation of biological diversity, the management
of
                    natural resources, the understanding of natural
hazards
                    and the mitigation of their impact.

                    "Local communities and other relevant players should
be
                    involved in these projects," says the Framework.
                    "Individual scientists and the scientific community
have
                    the responsibility to communicate in popular language
                    the scientific explanations of these issues and the
ways
                    in which science can play a key role in addressing
                    them."

                    On the question of technology transfer and the
                    contribution of science to economic growth, the
                    guidelines emphasize that "innovation is no longer a
                    linear process arising from a single advance in
science,"
                    and that it "requires a systems approach involving
                    partnerships, linkages between many areas of knowledge
                    and constant feedback between many players."

                    Possible initiatives for achieving this include
                    co-operative research centres and research networks,
                    technology 'incubators' and research parks, and
transfer
                    and advisory bodies for small and medium enterprises.

                    "Specific policy instruments, including initiatives to
                    encourage national innovation systems to address
                    science-technology links, should be developed taking
                    into account global economic and technological
                    changes." it says. In particular, "it is imperative to
tackle
                    the issue of endogenous generation of technologies
                    starting from problems that pertain to developing
                    countries.

                    The 'brain-drain' - an issue of concern to many
                    developing countries - is referred to as an "
asymmetric
                    migration of trained personnel from the developing to
the
                    developed countries".

                    In order to mitigate this - and to sustain
high-quality
                    education and research in developing countries - the
                    delegates agreed that Unesco "may catalyse more
                    symmetric and closer interaction of science and
                    technology personnel across the world, and the
                    establishment of world-class education and research
                    infrastructure in the developing countries" - both the
                    priorities of bodies such as the Third World Academy
of
                    Sciences.

                    On the issue of science education, the participants to
the
                    World Conference agreed that this should be given the
                    "highest priority" by government, with particular
                    attention to the elimination of the effects of gender
bias
                    and bias against disadvantaged groups, raising public
                    awareness of science and fostering its popularization.

                    "Research in science and technology education needs to
                    be furthered nationally and internationally through
the
                    establishment and networking of specialized centres
                    around the world," it says.

                    Governments are urged to provide increased support to
                    regional and international programmes of higher
                    education and to networking of graduate and
                    postgraduate institutions, with special emphasis on
                    North-South and South-South cooperation.

                    "These are important means of helping all countries,
                    especially the small or least developed among them, to
                    strengthen their scientific and technological resource
                    base," says the Framework.

                    Although not reference is made to specific proposals -
                    such as the setting up of an International Centre for
                    Science Communication in London - the delegates
                    agreed that governments, international organizations
and
                    relevant professional institutions "should enhance or
                    develop programmes for the training of scientific
                    journalists, communicators and all those involved in
                    increasing public awareness of science".

                    In particular, an international programme on promotion
                    of scientific literacy and culture accessible to all
should
                    be considered "in order to provide appropriate
                    technology and scientific inputs in an easily
                    understandable form that are conducive to the
                    development of local communities".

                    The guidelines refrain from saying explicitly that
                    governments should reduce their spending on military
                    research in order to free up funds for more work on
the
                    problems directly affecting developing countries.

                    But the Declaration urges governments and society at
                    large "to be aware of the need to use natural and
social
                    sciences and technology as tools to address the root
                    causes and impacts of conflict," adding that
"investment
                    in scientific research which addresses them should be
                    increased".

                    And the Framework suggests that a dialogue should be
                    promoted between representatives of governments, civil
                    society and scientists "in order to reduce military
                    spending and the orientation of science towards
military
                    applications".

                    Reflecting comments such as those received from Sir
                    Robert May, the British government's chief scientific
                    adviser (See 'Rebuilding public trust in science and
                    science advice', 24 June 1999), the delegates endorsed
                    that statement that scientists and scientific bodies
                    "should consider it an important responsibility to
                    provide independent advice to the best of their
                    knowledge".

                    In particular, governments - in cooperation with the
                    agencies of the United Nations system and
international
                    scientific organizations - were urged to strengthen
                    international scientific advisory processes "as a
                    necessary contribution to intergovernmental policy
                    consensus-building at regional and global levels and
to
                    the implementation of regional and international
                    conventions".

                    This coincides with the views recently expressed by,
for
                    example, Bruce Alberts, the president of the US
National
                    Academy of Sciences, that there should be more
activity
                    at the global level focussed on providing top-level
                    scientific advice to those engaged in decision on
topics
                    requiring a strong scientific input (See 'Science and
the
                    World's Future', 13 May 1999).

                    On the question of intellectual property, the final
                    documents do not include any direct reference to
                    concerns expressed about, for example, patents issues
on
                    genetic material, expressing the view that "all
countries
                    should protect intellectual property rights and
recognize
                    that access to data and information is essential for
                    scientific progress".

                    Indeed the Declaration states that "measures should be
                    taken to enhance those relationships between the
                    protection of intellectual property rights and the
                    dissemination of scientific knowledge that are
mutually
                    supportive".

                    But the document also acknowledges the need to
                    "consider the scope, extent and application of
                    intellectual property rights in relation to the
equitable
                    production, distribution and use of knowledge".

                    And the Framework adds that in developing an
                    appropriate international legal framework, the World
                    Iintellectual Property Organization (WIPO), in
                    cooperation with relevant international organizations,
                    "should constantly address the question of knowledge
                    monopolies".

                    It also says that the World Trade Organisation, during
                    new negotiations of the Trade Related Intellectual
                    Property [TRIPS] Agreement, "should incorporate into
                    this Agreement tools aimed at financing the
advancement
                    of science in the South with the full involvement of
the
                    scientific community".

                    In making its final amendments to the conference
                    documents, the drafting committee had rejected demands
                    from some member states for explicitly endorsing the
                    idea proposed by Nobel laureate Sir Joseph Rotblat
that
                    all science graduates be required to take a form of
                    Hippocratic oath, promising to behave responsible (See
'
                    Rotblat makes a hit with call for a Hippocratic oath
', 27
                    June 1999; also ' Science and ethical behaviour', 10
June
                    1999).

                    However the Framework stresses that ethics and
                    responsibility of science "should be an integral part
of
                    the education and training of all scientists", on the
                    grounds that "it is important to instil in students a
                    positive attitude towards reflection, alertness and
                    awareness of the ethical dilemmas they may encounter
in
                    their professional life".

                    Research institutions, it suggests, should foster the
study
                    of ethical aspects of scientific work. Scientific
                    institutions are urged to respect the freedom of
scientists
                    to express themselves on ethical issues and to
denounce
                    misuse or abuse of scientific or technological
advances.

                    Furthermore, the Framework says, scientific
                    associations "should define a code of ethics for their
                    members", while non-governmental organizations and
                    scientific institutions "should promote the
establishment
                    of ethics committees in their field of competence".

                    A major stress is contained in the Framework document
                    on the need to ensure "the full participation of women
in
                    the planning, orientation, conduct and assessment of
                    research activities".

                    All countries are urged to " contribute to the
collection
                    of reliable data, in an internationally standardized
                    manner, for the generation of gender-disaggregated
                    statistics on science and technology". Measures aimed
at
                    attaining social equity in all scientific and
technological
                    activities, including working conditions, "should be
                    designed, implemented and monitored" says the
                    document.

                    On the relationship between modern science and "other
                    systems of knowledge" the delegates called on
                    governments to "formulate national policies that allow
a
                    wider use of the applications of traditional forms of
                    learning and knowledge", while at the same time
                    "ensuring that its commercialization is properly
                    rewarded.

                    This is a reference to recent concerns at Western
                    companies seeking patent protection on such forms of
                    knowledge, epitomized by the dispute over rights to
                    knowledge about the medicinal properties of the
                    products of the Indian 'neem' tree.

                    The Declaration describes the need "to further develop
                    appropriate national legal frameworks to accommodate
                    the specific requirements of developing countries and
                    traditional knowledge, sources and products, to ensure
                    their recognition and adequate protection on the basis
of
                    the informed consent of the customary or traditional
                    owners of this knowledge.

                    Finally in terms of follow-up activities, the
Framework
                    says that Unesco, in cooperation with ICSU, should act
                    as a clearing house such activities. In particular the
two
                    bodies "should develop concrete initiatives for
                    international scientific cooperation, together with
                    relevant United Nations organizations and bilateral
                    donors".

                    At the same time, the delegates acknowledged that the
                    follow-up to the conference "will be executed by many
                    partners who will retain their responsibilities for
their
                    own action" - a clear indication that much of the
                    responsibility for the successful implementation of
the
                    guidelines rests with national governments and
regional
                    organizations.

                    DAVID DICKSON

                    The full texts of the final documents can be found as
                    follows:

                    Declaration on Science and the Use of Scientific
                    Knowledge,

                    Science Agenda: Framework for Action


Dr. Gregor Wolbring
Dept. of Biochemistry and Molecular Biology
Faculty of Medicine
University of Calgary
3330 Hospital Drive NW
Calgary, T2N 4N1
Alberta, Canada
Phone 1403-220-5448
Fax 1-403-283-4740
eFax 1-603-761-3704
e-mail [log in to unmask]
webpage: http://www.thalidomide.ca/gwolbring








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