Dear All,
I am a new member on the list, and have been viewing the messages for the
past fortnight. The information has been stimulating, intellectual and
interesting - Thank you.
My own specific areas of interest are 'Disability Equality Training' and
'Thalidomide'.
I am a disabled person. My impairment was caused by the drug Thalidomide.
I am in the process of gathering information for a TV documentary which I
hope to be presenting for BBC (Wales) or Channel 4. Subject being the
're-licensing of the drug thalidomide in Great Britain'.
Thalidomide has been re-licensed in the USA & Canada, I have it on 'Good
Authority' that it is likely to be re-licensed in GB within two years'. I
strongly feel that the public over here needs to be aware of the ever
increasing use of 'Thalidomide' for 'research purposes'. Also, that we need
to keep monitoring the situation, before it slips through the back door and
is licensed here before we have had any chance of discussion; consultation
or information etc. with the Government, Drug Companies and Doctors.
Just to set the record straight, I personally am not opposed to Thalidomide
being given to patients, as a last resort or when all other avenues have
failed. However, I am very concerned about the procedures and ad hoc
guidelines used in its administration in GB(Doctors set their own guidelines
and rely on the patients good-will). There is an accident out there waiting
to happen! Unless, like TVAC we ('Thalidomide people' & our allies) are
involved, consulted and informed.
I regularly check the TVAC & other web sites, but information on the
situation is hard to come-by. So, if you hear anything about Thalidomide
particularly with a UK link, if you know of any research or web sites worth
visiting, I should be grateful if you would let me know.
Thank you in advance.
Rosie.
Rosaleen Moriarty-Simmonds BSc (Hons)
RMS - Freelance Journalist & Disability Issues Consultant
e-mail [log in to unmask]
Web Site http://www.rms-cons.demon.co.uk
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