Anthropology, Genetic Diversity and Ethics - Milwaukee, WI
The workshop is designed to provide a forum for the discussion of the
ethical issues faced by researchers and students interested in the
genetics of human populations. In order to maximize communication and
discussion, we plan on short presentations followed by group discussion.
Each session will begin with three or four of the invited participants
presenting their views and research on a specific topic. They will
facilitate the group discussion that follows. While only a few
individuals will be discussion leaders for a topic all participants are
invited to join the discussion. Attendees will then break into smaller
groups for discussion of specific cases or problems. The small groups
will be arranged in advance to include an anthropologist, ethicist and
geneticist. After the small group sessions the larger group will
reconvene and share information. However, depending on the number of
additional participants, this plan may be modified.
The specific topics and the invited participants/facilitators are:
Session I Feb. 12 1-4pm
Issues Relating to Population Identification
1. Who should identify human groups for genetic study: scientists, group
representatives or governments?
2. Should researchers try to avoid using socially defined group
boundaries in designing genetic studies? Why or why not?
3. What about nested human groups in which research on a part may have
implications for the whole?
Speakers: John Moore
Frank Dukepoo
Eric Juengst
Mike Bamshad
Session II Feb. 12, 4-5:30
Ancient DNA : A special case of population identification
Speakers: Frederika Kaestle
Dennis O'Rourke
Friday evening;
Dinner at the Park East Hotel
Speaker: Alice Martin, JD, PhD
Dr. Martin has conducted genetic research on the Hutterites and is
currently a
Patent attorney with Barnes and Thornburg
Session III February 13, 9-12
Issues Relating to Informed Consent
1. What does "informed consent" mean when both group and individual are
involved?
2. What collective risks and potential benefits should be disclosed for
genetic diversity research
3. What methods of community consultation are effective in securing
informed, voluntary group participation?
4. Does permission from the national, state or local government to
conduct a project have meaning for the particular population studied?
5. How should researchers deal with ex-patriate communities whose views
about participating in genetic diversity research differ from their
community of origin?
6. To what extent can group retain the traditional rights of individuals
to confidentiality and free withdrawal from research in genetic diversity?
Speakers:
Henry Greely
Albert Flores
Charmaine Royal
Morris Foster
Lunch at the Hefter Center
Session IV Successful Research Collaborations Feb. 13 1-3:30
1. How have successful interactions between populations and researchers
been
achieved?
2. How can the culture of the population be taken into account in the
design and implementation of these projects?
Speakers: Lynn Jorde/Dr. Naidu
Jonathan Friedlaender
Jeffrey Long
Session V Issues Relating to Research Outcomes Feb 13 4-5:30
1. What commercial reciprocity arrangements are realistic and
appropriate?
2. Should the social identities of participating groups be disclosed in
publication?
Speakers: Henry Greely
Jonathan Friedlaender
Morris Foster
Jeffrey Long
Dinner at Karl Ratzch's
> For further information, you can contact:
> Angela C. Shand [[log in to unmask]]
> Department of Anthropology
> University of Wisconsin-Milwaukee
> Milwaukee, WI 53201
> Phone: 414-229-6000
> Fax: 414-229-5848
>
Rachelle D. Hollander, Program Director
Societal Dimensions of Engineering, Science, & Technology
NSF 4201 Wilson Blvd. Rm.995
Arlington VA 22230
703-306-1743 fax -0485 [log in to unmask]
www.nsf.gov/sbe/sber/sdest
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