Hi Jane,
I too watched the documentary, and am studying for an MA in disability
studies.
The film reduced me to tears. I have a young son with special needs, and
REALLY do value him for himself. It took time for me to be able to say
'stuff whatyou think' to society, and much sorrow. These families are very
vulnerable, and open to 'miracle cures'.
If we keep trying to change people, how can they feel valued?
I felt that we need to remember that the couple were high achieving
Americans, looking at thier sons future in a competitive world.
I felt that the undercurrent to the film was that by removing the features,
we remove the disability. Infact such radical intervention may surely
disadvantage more .
There were physical concerns too, as to how his face would grow and change
in natural development. after all that surgery.
I believe the family cared for thier son, but didn't really accept his
difference.
People really need to go through a grieving process and come out the other
side. Society often doesn't all for that grief, and it is supressed.
All in all I felt the film was a sad reflection on western society.
Gill.
Gill Dixon. Dyspraxia advisor.
[log in to unmask],co.uk
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