Does the register NEED to hold personally identifiable data (rather than a
pseudonymous ID) for audit? NO it does not. Have those operating the
register obtained the informed consent of those on the database? EXTREMELY
UNLIKELY. The St Vincent targets can be measured perfectly well without the
register holding personal identifiable information... Diabetic Patients
(when asked!) do not want to share their personal information without
consent.
>-----Original Message-----
>From: [log in to unmask]
>[mailto:[log in to unmask]]On Behalf Of Chris Burton
>Sent: 21 June 1998 13:43
>To: [log in to unmask]
>Subject: RE: diabetic centres
>
>
>We have had a regional diabetic register for several years, and like
>everyone else, cervical cytology and mammography registers too.
>
>It is used primarily for outcomes audit (not process or
>intermediate outcome
>like HbA1c which is done by practices) and as an informal prompt to
>practices. Without it assessment of progress towards targets, eg
>St Vincent,
>is impossible to measure.
+++++++++++++++++++++++++++++++++++++++++++++
+ Dr Alan Hassey, [log in to unmask] +
+ RCGP Health Informatics Group & JCG +
+++++++++++++++++++++++++++++++++++++++++++++
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