There's also the National Organization for Rare Disorders: https://rarediseases.org/ which has a database of information on rare diseases
Best wishes
Jane
Jane Cooper
Librarian | Northamptonshire Healthcare NHS Foundation Trust
Richmond Library | William Kerr Building | Northampton General Hospital | Northampton | NN1 5BD
Tel: 01604 523818 | E-mail: [log in to unmask] | Web: www.nhft.nhs.uk/library
Follow us on Twitter: @NHFTNHSLibrary
-----Original Message-----
From: UK medical / health care library community / information workers <[log in to unmask]> On Behalf Of Tilly Davenport
Sent: 16 June 2023 16:06
To: [log in to unmask]
Subject: Resources for niche medical information
Hi all,
Is anyone aware of any resources similar to Orphanet for information on rare diseases / other niche medical topics?
Mainly for the purpose of reading around a subject during literature searches to gain some general understanding.
Thank you!
Tilly Davenport (she/her)
Cardiff and Vale UHB Assistant Librarian University Library Service Cardiff University
Archie Cochrane Library
Routledge Academic Centre
University Hospital Llandough
Penarth
CF64 2XX
Tel: 02920 715497
E-mail: [log in to unmask]
########################################################################
To unsubscribe from the LIS-MEDICAL list, click the following link:
https://www.jiscmail.ac.uk/cgi-bin/WA-JISC.exe?SUBED1=LIS-MEDICAL&A=1
This message was issued to members of www.jiscmail.ac.uk/LIS-MEDICAL, a mailing list hosted by www.jiscmail.ac.uk, terms & conditions are available at https://www.jiscmail.ac.uk/policyandsecurity/
This e-mail and any files transmitted with it are confidential and intended solely for the use of the individual or entity to whom they are addressed. Any views or opinions expressed are those of the author and do not represent the views of the Trust unless explicitly stated. The information contained in this email may be subject to public disclosure under the Freedom of Information Act 2000. Unless the information is legally exempt from disclosure, the confidentiality of this email and your reply cannot be guaranteed.
########################################################################
To unsubscribe from the LIS-MEDICAL list, click the following link:
https://www.jiscmail.ac.uk/cgi-bin/WA-JISC.exe?SUBED1=LIS-MEDICAL&A=1
This message was issued to members of www.jiscmail.ac.uk/LIS-MEDICAL, a mailing list hosted by www.jiscmail.ac.uk, terms & conditions are available at https://www.jiscmail.ac.uk/policyandsecurity/
|