bims-librar Biomed News on Biomedical librarianship
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Issue of 2020‒02‒16 │
seventeen papers selected by │
Thomas Krichel (Open Library │
Society) │
http://e.biomed.news/librar │
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1. Health information seeking behaviour: a concept analysis.
2. Mixed-methods library evaluation integrating the patron, library, and
external perspectives: The case of Namibia regional libraries.
3. TeSS: a platform for discovering life science training opportunities.
4. Information Management in Healthcare and Environment: Towards an
Automatic System for Fake News Detection.
5. Social media is a source of health-related misinformation.
6. Google Medical Update: Why Is the Search Engine Decreasing Visibility
of Health and Medical Information Websites?
7. Search engines, cognitive biases and the man-computer interaction: a
theoretical framework for empirical researches about cognitive biases in
online search on health-related topics.
8. An agent-based model about the effects of fake news on a norovirus
outbreak.
9. Evolving Role of Social Media in Health Promotion: Updated
Responsibilities for Health Education Specialists.
10. Understanding the preferences of Australian men for accessing health
information.
11. Quality of information about oral cancer in Brazilian Portuguese
available on Google, Youtube, and Instagram.
12. YouTube as a source of information about orthodontic clear aligners.
13. Health Professionals' Perception Related to Communication
Technologies for Access to Information about Crack.
14. The contributor roles for randomized controlled trials and the
proposal for a novel CRediT-RCT.
15. A Weekly, Evidence-Based Health Letter for Caregivers (90Second
Caregiver): Usability Study.
16. Qualitative evaluation of paediatric surgical otolaryngology content
on YouTube.
17. Evaluating the perceptions of the transgender and non-binary
communities of pelvic radiotherapy side effect information booklets.
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Health Info Libr J. 2020 Feb 12.
1. Health information seeking behaviour: a concept analysis.
Zimmerman MS, Shaw G
BACKGROUND: In 2007, Lambert and Loiselle conducted an extensive concept
analysis of the term health information seeking behaviour (HISB) to examine
the concept's level of maturity and critically analyse its characteristics.
Since their groundbreaking work, HISB has evolved with the proliferation of
ICTs. The Internet is now a common and often preferred medium for the
pursuit of health information.
OBJECTIVES: The previous analysis spanned 42 years of literature; this
article describes an analysis of the last 10 years of literature on HISB and
how online seeking has caused the concept to evolve in the literature.
METHODS: This study used the concept analysis methodology employed by
Lambert and Loiselle in the original analysis. It also included a systematic
search conducted in five databases to identify studies from 2007 to 2017,
using similar inclusion criteria from the original study.
RESULTS: Of the more than 500 articles retrieved, 85 journal articles met
the inclusion criteria. Consistent with the original work, articles that
included outcomes were identified as either behavioural or cognitive.
CONCLUSION: Most of the attention of the works studied focused on
individuals and their information source preferences. This HISB analysis can
be incorporated with studies to understand how various communities seek
information in online versus non-online contexts.
Keywords: Internet; concept analysis; consumer health information;
information and communication technologies (ICTs); information seeking
behaviour; review, literature
DOI: https://doi.org/10.1111/hir.12287
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32052549
Eval Program Plann. 2020 Jan 27. pii: S0149-7189(19)30146-6.
2. Mixed-methods library evaluation integrating the patron, library, and
external perspectives: The case of Namibia regional libraries.
Yim M, Fellows M, Coward C
The article presents a mixed-methods evaluation of regional libraries in
Namibia, which incorporates three perspectives: the patron perspective
(library users), the library perspective (library staff, management, and
related officials), and the external perspective (including evaluators and
monitoring data). Seven data collection methods were used: patron surveys,
patron panel studies, focus group discussions, key informant and staff
interviews, secondary data analysis, media analysis, and observations. The
goal of the evaluation was to assess library performance for both formative
and summative purposes by addressing evaluation questions on areas such as
library services, use, and operations. Building upon the literature review
of how mixed-methods approaches can contribute to library evaluation, the
aim of this article is to show how a mixed-methods evaluation can be
designed to examine multi-faceted library performance and to illustrate how
the evaluation design allows information complementarity and can be utilized
to present diverse viewpoints of the above three perspectives. The
evaluation design, analysis process, and lessons learned from this study may
be useful to evaluators engaged in evaluation of public services or programs
(including public libraries) that examine multiple aspects of service
performance and involve a variety of stakeholders.
Keywords: Mixed-methods approach; Performance evaluation; Public library
DOI: https://doi.org/10.1016/j.evalprogplan.2020.101782
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32035405
Bioinformatics. 2020 Feb 11. pii: btaa047. [Epub ahead of print]
3. TeSS: a platform for discovering life science training opportunities.
Beard N, Bacall F, Nenadic A, Thurston M, Goble CA, Sansone SA, Attwood TK
SUMMARY: Dispersed across the Internet is an abundance of disparate,
disconnected training information, making it hard for researchers to find
training opportunities that are relevant to them. To address this issue, we
have developed a new platform - TeSS - which aggregates geographically
distributed information and presents it in a central, feature-rich portal.
Data are gathered automatically from content providers via bespoke scripts.
These resources are cross-linked with related data- and tools registries,
and made available via a search interface, a data API and through widgets.
AVAILABILITY AND IMPLEMENTATION: https://tess.elixir-europe.org.
SUPPLEMENTARY INFORMATION: Supplementary data are available at
Bioinformatics online.
DOI: https://doi.org/10.1093/bioinformatics/btaa047
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32044952
Int J Environ Res Public Health. 2020 02 08. pii: E1066.
4. Information Management in Healthcare and Environment: Towards an
Automatic System for Fake News Detection.
Lara-Navarra P, Falciani H, Sánchez-Pérez EA, Ferrer-Sapena A
Comments and information appearing on the internet and on different social
media sway opinion concerning potential remedies for diagnosing and curing
diseases. In many cases, this has an impact on citizens' health and affects
medical professionals, who find themselves having to defend their diagnoses
as well as the treatments they propose against ill-informed patients. The
propagation of these opinions follows the same pattern as the dissemination
of fake news about other important topics, such as the environment, via
social media networks, which we use as a testing ground for checking our
procedure. In this article, we present an algorithm to analyse the behaviour
of users of Twitter, the most important social network with respect to this
issue, as well as a dynamic knowledge graph construction method based on
information gathered from Twitter and other open data sources such as web
pages. To show our methodology, we present a concrete example of how the
associated graph structure of the tweets related to World Environment Day
2019 is used to develop a heuristic analysis of the validity of the
information. The proposed analytical scheme is based on the interaction
between the computer tool-a database implemented with Neo4j-and the analyst,
who must ask the right questions to the tool, allowing to follow the line of
any doubtful data. We also show how this method can be used. We also present
some methodological guidelines on how our system could allow, in the future,
an automation of the procedures for the construction of an autonomous
algorithm for the detection of false news on the internet related to health.
Keywords: environment; fake news; graph; healthcare; reinforcement learning
DOI: https://doi.org/10.3390/ijerph17031066
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32046238
Evid Based Nurs. 2020 Feb 11. pii: ebnurs-2019-103222. [Epub ahead of print]
5. Social media is a source of health-related misinformation.
Rolls K, Massey D
Keywords: nursing; primary care; world wide web technology
DOI: https://doi.org/10.1136/ebnurs-2019-103222
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32046968
Int J Environ Res Public Health. 2020 Feb 12. pii: E1160.
6. Google Medical Update: Why Is the Search Engine Decreasing Visibility
of Health and Medical Information Websites?
Strzelecki A
The Google search engine answers many health and medical information queries
every day. People have become used to searching for this type of
information. This paper presents a study which examined the visibility of
health and medical information websites. The purpose of this study was to
find out why Google is decreasing the visibility of such websites and how to
measure this decrease. Since August 2018, Google has been more rigorously
rating these websites, since they can potentially impact people's health.
The method of the study was to collect data about the visibility of health
and medical information websites in sequential time snapshots. Visibility
consists of combined data of unique keywords, positions, and URL results.
The sample under study was made up of 21 websites selected from 10 European
countries. The findings reveal that in sequential time snapshots, search
visibility decreased. The decrease was not dependent on the country or the
language. The main reason why Google is decreasing the visibility of such
websites is that they do not meet high ranking criteria.
Keywords: Google; health information websites; medical update; search
engine; search visibility
DOI: https://doi.org/10.3390/ijerph17041160
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32059576
Med Health Care Philos. 2020 Feb 13.
7. Search engines, cognitive biases and the man-computer interaction: a
theoretical framework for empirical researches about cognitive biases in
online search on health-related topics.
Russo L, Russo S
The widespread use of online search engines to answer the general public's
needs for information has raised concerns about possible biases and the
emerging of a 'filter bubble' in which users are isolated from
attitude-discordant messages. Research is split between approaches that
largely focus on the intrinsic limitations of search engines and approaches
that investigate user search behavior. This work evaluates the findings and
limitations of both approaches and advances a theoretical framework for
empirical investigations of cognitive biases in online search activities
about health-related topics. We aim to investigate the interaction between
the user and the search engine as a whole. Online search activity about
health-related topics is considered as a hypothesis-testing process. Two
questions emerge: whether the retrieved information provided by the search
engines are fit to fulfill their role as evidence, and whether the use of
this information by users is cognitively and epistemologically valid and
unbiased.
Keywords: Cognitive biases; Hypothesis testing; Information retrieval;
Man–machine interaction; Web search engine
DOI: https://doi.org/10.1007/s11019-020-09940-9
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32056071
Rev Epidemiol Sante Publique. 2020 Feb 06. pii: S0398-7620(20)30147-4.
8. An agent-based model about the effects of fake news on a norovirus
outbreak.
Brainard J, Hunter PR, Hall IR
BACKGROUND: Concern about health misinformation is longstanding, especially
on the Internet.
METHODS: Using agent-based models, we considered the effects of such
misinformation on a norovirus outbreak, and some methods for countering the
possible impacts of "good" and "bad" health advice. The work explicitly
models spread of physical disease and information (both online and offline)
as two separate but interacting processes. The models have multiple
stochastic elements; repeat model runs were made to identify parameter
values that most consistently produced the desired target baseline scenario.
Next, parameters were found that most consistently led to a scenario when
outbreak severity was clearly made worse by circulating poor quality disease
prevention advice. Strategies to counter "fake" health news were tested.
RESULTS: Reducing bad advice to 30% of total information or making at least
30% of people fully resistant to believing in and sharing bad health advice
were effective thresholds to counteract the negative impacts of bad advice
during a norovirus outbreak.
CONCLUSION: How feasible it is to achieve these targets within communication
networks (online and offline) should be explored.
Keywords: Agent-based-models; Bulles de filtres; Désinformation; Fake
news; Filter bubbles; Modèles à base d’agents; Norovirus; Outbreak;
Épidémie
DOI: https://doi.org/10.1016/j.respe.2019.12.001
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32037129
Int J Environ Res Public Health. 2020 Feb 12. pii: E1153.
9. Evolving Role of Social Media in Health Promotion: Updated
Responsibilities for Health Education Specialists.
Stellefson M, Paige SR, Chaney BH, Chaney JD
The use of social media in public health education has been increasing due
to its ability to remove physical barriers that traditionally impede access
to healthcare support and resources. As health promotion becomes more deeply
rooted in Internet-based programming, health education specialists are
tasked with becoming more competent in computer-mediated contexts that
optimize both online and offline consumer health experiences. Generating a
better understanding of the benefits and drawbacks to using social media in
the field is important, since health education specialists continue to weigh
its advantages against potential concerns and barriers to use. Accordingly,
this Special Issue aims to explore social media as a translational health
promotion tool by bridging principles of health education and health
communication that examine (1) the method with which social media users
access, negotiate, and create health information that is both actionable and
impactful for diverse audiences; (2) strategies for overcoming challenges to
using social media in health promotion; and (3) best practices for
designing, implementing, and evaluating social media forums in public
health. In this commentary, we discuss the updated communication and
advocacy roles and responsibilities of health education specialists in the
context of social media research and practice.
Keywords: health education; health promotion; social media
DOI: https://doi.org/10.3390/ijerph17041153
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32059561
Aust J Prim Health. 2020 Feb 13.
10. Understanding the preferences of Australian men for accessing health
information.
Hodyl NA, Hogg K, Renton D, von Saldern S, McLachlan R
With men currently reporting an increased desire to manage their own health,
this mixed-methods study aimed to identify the preferred communication
channels to support their access to information. Adult cisgender men (n=410)
completed an anonymous survey that assessed current methods, preferences and
barriers to accessing health information for general, minor, serious and
private health concerns. Seven focus groups, attended by 69 men, further
explored health-seeking behaviour. Survey results demonstrated the top
methods to access information were through the GP or specialist and online
searches, with rates differing by age and the type of health concern. Most
men (>85%) reported information-seeking for serious concerns, while ~30% did
not seek information for minor or private issues. For all ages, the top
preferred methods for accessing information included GP or specialists,
online searches and pharmacists, with other preferences varying by age,
severity and sensitivity. Analysis of the focus group discussions revealed
five key themes that help explain men's decisions and actions about seeking
health-information: (i) denial; (ii) delayed information seeking; (iii)
social constructs of masculinity; (iv) difficulty initiating discussions
about health; and (v) perceived trust and validity of information. This
study has provided insight into how information can be tailored to
communicate effectively with men of different ages. This will support
appropriate health-seeking behaviours in response to minor, serious and
private health concerns.
DOI: https://doi.org/10.1071/PY19142
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32050082
Med Oral Patol Oral Cir Bucal. 2020 Feb 10. pii: 23374. [Epub ahead of print]
11. Quality of information about oral cancer in Brazilian Portuguese
available on Google, Youtube, and Instagram.
Passos KK, Leonel AC, Bonan PR, Castro JF, Pontual ML, Ramos-Perez FM,
Perez DE
BACKGROUND: To evaluate the quality of oral cancer information in Brazilian
Portuguese on Google, YouTube, and Instagram.
MATERIAL AND METHODS: The first 100 links of each platform characterized the
initial sample. The websites and Instagram were evaluated using the JAMA
benchmarks, the Discern instrument, and the Flesch readability index (Flesch
Reading Ease). The existence of Health on the Net (HON) code was also
registered on websites. The usefulness of each video on YouTube was
classified as not useful, slightly useful, moderately useful, or very useful.
RESULTS: Thirty-four websites, 39 Instagram posts, and 57 videos were
evaluated, of which 18 (33.3%) websites and 19 (48.7%) Instagram posts
covered only 2 of the 4 JAMA benchmarks. For the Discern instrument, 20
(37%) and 18 (33.3%) websites exhibited low and moderate reliability,
respectively, while 26 (66.7%) Instagram posts were of low confidence. The
level of intelligibility of both websites and Instagram was difficult. Only
three websites exhibited the HONcode. Forty-one (71.9%) videos on YouTube
were moderately useful.
CONCLUSIONS: Information on oral cancer on the Internet in Brazilian
Portuguese is of low quality. Thus, educational and governmental
institutions have a responsibility to produce and indicate reliable sources
of information for the population.
DOI: https://doi.org/10.4317/medoral.23374
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32040464
Angle Orthod. 2020 Feb 11.
12. YouTube as a source of information about orthodontic clear aligners.
Ustdal G, Guney AU
OBJECTIVES: To evaluate the content, reliability, and quality of videos
about orthodontic clear aligners on YouTube.
MATERIALS AND METHODS: Researchers used the Google Trends website to
determine that the most frequently used search term for orthodontic clear
aligners on the Internet was: "Invisalign." A search was then conducted on
YouTube using the key word "Invisalign." From the first 140 results, 100
videos were selected for analysis. A 13-point content score was used to
classify poor-content and rich-content videos, and the global quality scale
(GQS) was used to examine quality of the videos. To evaluate reliability of
the information, a five-question scale was used. The Mann-Whitney U-test, χ2
test, and Pearson correlation coefficients were used for statistical
evaluations.
RESULTS: Of the YouTube videos, 33 were classified as rich content and 67 as
poor content. Most videos (73%) were uploaded by laypeople, and most
uploaders (71%) were women. The most commonly discussed content was
instructions (65%), followed by procedure (57%) and pain (52%). Regarding
the GQS, most of the videos were evaluated as moderate quality (51%).
Compared with the poor-content video group, the rich-content video group had
a significantly higher GQS score (P = .004). There was no significant
difference between the poor-content and rich-content groups regarding
information reliability (P > .05).
CONCLUSIONS: Video content on YouTube relating to aligner orthodontics was
generally insufficient. The quality of videos was moderate, but the
reliability of information was generally poor. Specialists should refer
patients to reliable sources of information.
Keywords: Clear aligners; Invisalign; Social media; YouTube
DOI: https://doi.org/10.2319/072419-491.1
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32045297
Int J Prev Med. 2020 ;11 1
13. Health Professionals' Perception Related to Communication
Technologies for Access to Information about Crack.
Novais MAP, De Liberal MMC, Nappo SA, Zucchi P
Background: The aim of this study is to identify the information and
communication technologies used by health professionals to assist in
training and updating of technical and scientific knowledge about crack,
exchange of experiences, and development of programs to prevent consumption
and treatment of addicts.
Methods: The qualitative methodology was used, constructed an intentional
sample by criteria and applied research techniques through semi-structured
interviews, triangulation of the analysis, and key informants. The study
resulted in the presentation of differences between the way key informants
and health professionals sought information.
Results: Internet was the preferred source; however, key informants sought
information on sites of scientific journals and reference centers, while
health professionals did free searches on the internet to consume
information.
Conclusions: The literature does not reflect a broad scope of the specific
area, but relates the problem of access to health information to other
characteristics. The sources of information about crack are focused on
digital technologies, the internet and its specific tools. It also finds
that health professionals are not being capacitate solidly on the subject of
study.
Keywords: Crack cocaine; and communication technology; health
professionals; information
DOI: https://doi.org/10.4103/ijpvm.IJPVM_197_19
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32042398
Ann Transl Med. 2019 Dec;7(24): 812
14. The contributor roles for randomized controlled trials and the
proposal for a novel CRediT-RCT.
Zhang Z, Wang SD, Li GS, Kong G, Gu H, Alfonso F
Background: The past decade has witnessed a rapid increase in the number of
contributors per article, which has made explicitly defining the roles of
each contributor even more challenging. The Contributor Roles Taxonomy
(CRediT) was developed to explicitly define author roles, but there is a
lack of empirical data on how CRediT is used in clinical trials. This study
aimed to provide empirical data on the use of CRediT in randomized
controlled trials (RCTs) and discuss some limitations of CRediT. A new
taxonomy (CRediT-RCT) is proposed to explicitly define the author roles in
RCTs.
Methods: The electronic database of PubMed was searched from July 2017 to
October 2019 to identify component trials with a randomized controlled
design. Publications from the Public Library of Science (PLoS) were included
because they embed the CRediT roles within the authors' metadata rather than
solely as a separate paragraph of text.
Results: A total of 446 articles involving 4,185 authors were included in
the study. Most authors participated in the study's conceptualization
(44.9%) and investigation (48.8%), but only a fraction of the authors
participated in software management (7.4%). Many CRediT roles were
correlated with each other: the strongest correlation was the one between
funding acquisition and conceptualization (correlation metric =0.39),
followed by the one between conceptualization and methodology (0.37). The
authors who acquired funding (OR: 2.06; 95% CI: 1.54-2.76; P<0.001), did
project administration (OR: 1.54; 95% CI: 1.17-2.03; P=0.002), performed
supervision (OR: 2. 60; 95% CI: 1.93-3.52; P<0.001), wrote the original
draft (OR: 4.83; 95% CI: 3.54-6.60; P<0.001), or were the first author (OR:
7.85; 95% CI: 5.71-10.87; P<0.001), were more likely to be the corresponding
author. Also, while the original draft writing was significantly associated
with the designation of the first author (OR: 37.49; 95% CI: 25.29-57.57;
P<0.001), the first author did not perform review and editing (OR: 0.55; 95%
CI: 0.40-0.75; P<0.001), supervision (OR: 0.49; 95% CI: 0.36-0.67; P<0.001),
or resource management (OR: 0.71; 95% CI: 0.50-1.00; P=0.053). We further
propose a novel Contributor Roles Taxonomy for Randomized Controlled Trials
(CRediT-RCT) which includes 10 roles.
Conclusions: The present study provides empirical data on the use of CRediT
for RCTs, and some limitations of the taxonomy are discussed. We further
propose a new CRediT-RCT which includes 10 roles.
Keywords: Contribution; authorship; contributor roles; randomized
controlled trial; taxonomy
DOI: https://doi.org/10.21037/atm.2019.12.96
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32042828
JMIR Form Res. 2020 Feb 12. 4(2): e14496
15. A Weekly, Evidence-Based Health Letter for Caregivers (90Second
Caregiver): Usability Study.
Milios A, McGrath P, Baillie H
BACKGROUND: Informal caregivers are family members or close friends who
provide unpaid help to individuals with acute or chronic health conditions
so that they can manage daily life tasks. The greatest source of health
information is the internet for meeting the needs of caregivers. However,
information on the internet may not be scientifically valid, it may be
written in language that is difficult to read, and is often in very large
doses. 90Second Caregiver is a health letter whose aim is to disseminate
knowledge to caregivers in a user-friendly, weekly format, in order to
improve their wellbeing.
OBJECTIVE: The main objective was to test a sample of 90Second Caregiver
health letters in order to assess their usability and to optimize the design
and content of the health letters.
METHODS: Usability research themes were assessed using semi-structured phone
interviews, incorporating the Think Aloud method with retrospective
questioning.
RESULTS: Usability was assessed in the context of five main themes:
understandability and learnability, completeness, relevance, and quality and
credibility of the health letter content, as well as design and format.
Caregivers generally provided positive feedback regarding the usability of
the letters. The usability feedback was used to refine 90Second Caregiver in
order to improve the design and content of the series. Based on the results
of this study, it may be of maximum benefit to target the series towards
individuals who are new to caregiving or part-time caregivers, given that
these caregivers of the sample found the letters more useful and relevant
and had the most positive usability experiences.
CONCLUSIONS: The findings assisted in the improvement of the 90Second
Caregiver template, which will be used to create future health letters and
refine the letters that have already been created. The findings have
implications for who the 90Second Caregiver series should be targeting (ie,
newer or part-time caregivers) in order to be maximally impactful in
improving mental health and wellbeing-related outcomes for caregivers, such
as self-efficacy and caregiving knowledge. The results of this study may be
generalizable to the examination of other electronic health information
formats, making them valuable to future researchers testing the usability of
health information products. In addition, the methods used in this study are
useful for usability hypothesis generation. Lastly, our 90Second delivery
approach can generate information useful for a set of similar products (eg,
weekly health letters targeted towards other conditions/populations).
Keywords: anxiety; caregivers; depression; health information; hope;
mental health; persuasive design; stigma; usability
DOI: https://doi.org/10.2196/14496
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32049064
J Laryngol Otol. 2020 Feb 13. 1-3
16. Qualitative evaluation of paediatric surgical otolaryngology content
on YouTube.
Ward B, Bavier R, Warren C, Yan J, Paskhover B
OBJECTIVE: This study evaluated the quality of YouTube content focusing on
common paediatric otolaryngology procedures, as this content can influence
the opinions and medical decisions of patients.
METHODS: A total of 120 YouTube videos were compiled to review using the
terms 'adenoid removal', 'adenoidectomy', 'ear tubes', 'tympanostomy',
'tonsil removal' and 'tonsillectomy'. The Discern criteria was used to rate
the quality of health information presented in each video.
RESULTS: The mean bias Discern score was 3.18 and the mean overall Discern
score was 2.39. Videos including US board certified physicians were rated
significantly higher (p < 0.001) than videos without (bias Discern score =
3.00 vs 2.38; overall Discern score = 3.79 vs 1.55). The videos had been
viewed a total of 176 769 549 times.
CONCLUSION: Unbiased, high quality videos on YouTube are lacking. As
patients may rely on this information when making medical decisions, it is
important that practitioners continually evaluate and improve this video
content. Otolaryngologists should be prepared to discuss YouTube content
with patients.
Keywords: Adenoids; Social Media; Tonsillectomy; Tympanostomy
DOI: https://doi.org/10.1017/S002221512000016X
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32051041
Radiography (Lond). 2019 Oct 15. pii: S1078-8174(19)30146-4.
17. Evaluating the perceptions of the transgender and non-binary
communities of pelvic radiotherapy side effect information booklets.
Burton H, Pilkington P, Bridge P
INTRODUCTION: Patients undergoing radiotherapy for pelvic cancers will often
experience acute and late toxicity which can result in symptoms which have a
significant impact on psychosocial functioning and quality of life. Having
written information regarding these symptoms enables informed
decision-making and ongoing support. Transgender and non-binary communities
are a marginalised but steadily growing subsection of the radiotherapy
patient population yet their needs differ from those of the general
population. This study aimed to evaluate the relevance of the pelvic
radiotherapy patient information booklets with regard to this communities.
METHODS: An online survey was distributed via social media to evaluate the
perceptions of these communities of four commonly distributed pelvic
radiotherapy information booklets.
RESULTS: There were 19 full responses and most participants expressed
discomfort regarding being provided with (11/19) or picking up (10/19) the
booklets. Although most (11/19) agreed that the material in the booklets was
relevant, the same number felt that the wording was not. Some of the
language and assumptions made regarding the transgender and non-binary
communities were incorrect and had the potential to cause distress.
CONCLUSION: The importance of providing guidance and support to these
communities was identified.
IMPLICATIONS FOR PRACTICE: Further research is required to establish how
best to provide inclusive patient information for transgender and non-binary
individuals.
Keywords: Information booklets; Pelvis; Radiotherapy; Transgender
DOI: https://doi.org/10.1016/j.radi.2019.09.008
URL: http://pubmed.ncbi.nlm.nih.gov/pubmed/32052785
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