My personal style of communication is inherently linked with the progressive
nature of Fredrich’s Ataxia. That is to say, my style of communication is
unique to me, as my experience of Friedreich’s Ataxia is unique to me. Some
of the factors that affect my communication are dysarthria, nystagmus,
severe vision impairment, hearing loss, severe loss of mobility, and other
physical abnormalities. These prove to be intensely problematic in terms of
my communication, and I have had to work around these factors when I try to
keep up my conversations with people. In doing so, I have had to deal with
the disappointments of various debilitating stereotypes, stigma, and
disutilities which in fact have no basis in reality.
Most of the time, empathy is an element that has to be discovered by the
other person in communication; it is too easily a missing ingredient. It is
important to listen to us before arriving at conclusions, to withhold
judgment and defaulting into stereotypes. We need to be treated as equals.
Most of all, I have found it is most important to remember that no two
people are the same, and people with disabilities must be treated equally
and individually.
Read more here:
https://petergibilisco.wordpress.com/2019/07/17/is-it-possible-to-give-peopl
e-with-friedreichs-ataxia-respect/
Yours Sincerely,
Peter Gibilisco, B Bus (Acc) Ph.D. (Melb).
Honorary Fellow University of Melbourne.
New Book: 6 & 1/2 Years on a Dunghill: Life in Specialist Disability
Accomodation.
See my web-site http://petergibilisco.com.au/
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