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Dear all,
We invite paper proposals for our panel “Patients’ digital lives: Exploring reconfigurations of knowledge in healthcare and biomedical research” at the Swiss Anthropological Association Annual Meeting "Knowledge (Trans)Formations in Anthropology", to be held in Zurich, 22-23 November 2018.
The submission deadline is June 30th 2018. Prospective panel participants are kindly requested to submit their paper proposals including an abstract of max. 2000 characters using the digital forms only, which you can reach using this link: http://www.sagw.ch/en/seg/colloques/paper-submission/Panel-2.html
Patients’ digital lives: Exploring reconfigurations of knowledge in healthcare and biomedical research
Panel organizers: Nolwenn Bühler (UNINE and UNIL) & Giada Danesi (UNIL)
Keynote: Prof. Nelly Oudshoorn, University of Twente
This panel seeks to explore the ways in which digital technologies, from web-based social network to self-tracking devices, transform the production and circulation of health knowledge among/on patients. Due to their widespread accessibility, digital technologies have turned out to be powerful tools in the empowerment of patients and the democratization of health knowledge reconfiguring the relationship between lay and medical expertise (Callon and Rabeharisoa 2003; Pols 2014). For example, these technologies have contributed to the development of citizen science initiatives (Ajana 2017), the creation of new kinds of biosociality (Akrich 2010; Callon and Rabeharisoa 2004), the transformation of the clinical encounter and of boundaries between clinic and research (Hogle 2016). The delegation of responsibility to citizens/patients for their own health also opens up a space for increased medical surveillance and generates normative injunctions to stay healthy and comply to treatment (Dow Schüll 2016; Lupton 2014; Schermer 2009). However, the idea of a “universal responsible, informed, and connected citizen/patient” promoted in health policy discourses about patients’ empowerment invisibilises the ways in which access to these technologies and participation to the production and circulation of health knowledge are stratified according to social class, ethnicity, gender, age etc. (Baum et al. 2014; Brodie et al. 2000; Cotton and Gupta 2004).
This panel aims at questioning the impact of digitalization on the production and circulation of health knowledge by focusing on the multiplicity of assemblages connecting actors, tools, expertise, and practices in different healthcare contexts. It will especially address the entanglement between lay and medical expertise and the transformation of care practices and biomedical research, considering the diversity of social and material conditions, and cognitive and symbolic resources of users engaging with digital health. We welcome critical and empirical papers going beyond the figure of the “universal empowered and connected citizen/patient” and accounting for the complexity of these assemblages. What are the conditions of possibility for citizens/patients to engage with health digital technologies and biomedical knowledge? In which ways do they use them to access, produce, and share health knowledge? How do digital lives invisibilise other forms of knowledge, practices, and biosociality? To what extent digital tools reinforce or transform preexisting health inequalities? How are the spheres of daily life, clinical encounters, and biomedical research reconfigured through health digitalization? Areas where these questions are especially salient are non-communicable diseases, personalized health, reproductive medicine, epidemiology, genomics and oncology.
References
Ajana, Btihaj. 2017. Digital Health and the Biopolitics of the Quantified Self. Digital Health 3: 1-18.
Akrich, Madeleine. 2010. From Comunities of Practice to Epistemic Communities: Health Mobilizations on the Internet. Sociological Research Online 15(2): 10.
Baum, Fran, Lareen Newman, and Katherine Biedrzycki. 2014. Vicious Cycles: Digital Technologies and Determinants of Health in Australia. Health Promotion International 29(2): 349–360.
Brodie, M, R E Flournoy, D E Altman, et al. 2000. Health Information, the Internet, and the Digital Divide. Health Affairs 19(6): 255–265.
Callon, Michel and Rabeharisoa, Vololona. 2003. Research “in the Wild” and the Shaping of New Social Identities. Technology in Society 25(2): 193-204.
Callon, Michel and Rabeharisoa, Vololona. 2004. Gino’s Lesson on Humanity: Genetics, Mutual Entanglements and the Sociologist’s Role. Economy and Society 33(1): 1-27.
Cotten, Shelia R, and Sipi S Gupta. 2004. Characteristics of Online and Offline Health Information Seekers and Factors That Discriminate between Them. Social Science & Medicine 59(9): 1795–1806.
Dow Schüll, Natasha. 2016. Data for Life: Wearable Technology and the Design of Self-Care. BioSocieties 11(3): 317–333.
Hogle, Linda F. 2016. Data-Intensive Resourcing in Healthcare. BioSocieties 11(3): 372–393.
Lupton, Deborah. 2014. The Commodification of Patient Opinion: The Digital Patient Experience Economy in the Age of Big Data. Sociology of Health & Illness 36(6): 856–869.
Lupton, Deborah. 2015. Health Promotion in the Digital Era: A Critical Commentary. Health Promotion International 30(1): 174–183.
Pols, Jeanette. 2014. Knowing Patients: Turning Patient Knowledge into Science. Science, Technology, & Human Values 39(1): 73-97.
Schermer, Maartje. 2009. Telecare and Self-management: Opportunity to Change the Paradigm? Journal of Medical Ethics 35: 688-691.
Giada Danesi, PhD
FNS Senior Researcher
STS Lab & IP
Université de Lausanne | Faculté des Sciences Sociales et Politiques
Quartier UNIL-Mouline | Bâtiment Géopolis | CH-1015 Lausanne
Bureau 5247, 5ème étage
Tél.+41 21 692 32 82
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