Well said Dan!
Original message:
> As disability research list members I have no doubt that we all enjoy a debate.
> But can we all agree on taking care of each other a little more?
> Too often, in recent weeks, there have been a number of hard hitting
> posts that would have benefited from the use of a more considerate
> tone. Not normative. Not official. Not academic. Just relational and
> being with one another.
> Disability research is, for me and I am sure many of us, an opportunity
> to relate with one another about stuff we really care about.
> Let’s keep looking after one another.
> Peace.
> Dan xxx
> Sent from my iPhone
> On 9 May 2018, at 22:26, D.D. Huijg <[log in to unmask]
> <mailto:[log in to unmask]>> wrote:
> There has been a post earlier about peer reviewing as well and without
> similar comments.
> I understand the need to discuss reflections with other scholars, but
> also the ethical points.
> I am wondering what would be an appropriate way to bring a point - as
> the one raised - into the conversation on a list (which might be
> publicly available) without crossing ethical lines. Would that be,
> e.g., by talking in very general terms and not mention the particular
> paper, or not mention the peer review context?
> I am just reflecting on what triggered the response in this case and
> not before?
> On Wednesday, 9 May 2018, Ron Amundson <[log in to unmask]
> <mailto:[log in to unmask]>> wrote:
> I hereby shame Beth for shaming those who shamed Mark for shaming the
> person who asked the "burden" question.
> Oops. Shame on me.
> Ron
> On 5/9/2018 10:55 AM, Beth Omansky wrote:
> Interesting and ironic that some of you are publicly shaming Mark
> Sherry because he pointed out an ethics error in a way that you felt
> was "shaming." You're publicly shaming Mark, multiplied by your
> agreements with the first person who shamed him. And, you have no idea
> who is vulnerable and who is not, but are making assumptions instead.
> How embarrassing for you.
> Beth
> *******************
> Some people feel the rain. Others just get wet.
> Bob Dylan
> *****************
> Beth Omansky, Ph.D.
> Portland, OR
> USA
> [log in to unmask] <mailto:[log in to unmask]>
> -----Original Message-----
> From: Roman, Leslie <[log in to unmask]> <mailto:[log in to unmask]>
> To: DISABILITY-RESEARCH <[log in to unmask]>
> <mailto:[log in to unmask]>
> Sent: Wed, May 9, 2018 1:16 pm
> Subject: Re: "Burden"
> I agree with Dr. Bush and feel shaming is neither warranted nor useful here.
> Leslie
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]
> <mailto:[log in to unmask]>] On Behalf Of Tanvir Bush
> Sent: Wednesday, May 9, 2018 1:05 PM
> To: [log in to unmask] <mailto:[log in to unmask]>
> Subject: Re: "Burden"
> Hi there Mark,
> I think there may be better ways of allowing someone to know they have
> made a mistake without shaming them publically? Deborah’s question is
> not raised in malice but in ignorance of the ethics. She may be new to
> all this and vulnerable too.
> You have made an important point but ‘shaming’ is not a professional
> approach here either..
> Tanvir
> Dr Tanvir Bush
> [log in to unmask] <mailto:[log in to unmask]>
> http://tanvirbush.com <http://tanvirbush.com>
> Twitter: @tanvirnaomi
> Facebook: Tanvir Naomi Bush
> On 9 May 2018, at 20:36, Mark & Molly Sherry
> <[log in to unmask]
> <mailto:[log in to unmask]>> wrote:
> This is a disgraceful, unethical post.
> The process of peer-review MUST be anonymous, and MUST be professional
> - not a poll among hundreds of scholars.
> For all you know, the person who submitted the paper is on this list.
> You have violated basic principles of academic integrity,
> confidentiality, and peer review.
> Shame on you.
> Mark Sherry
> On Wednesday, May 9, 2018, 2:43:15 PM EDT, Deborah Chinn
> <[log in to unmask] <mailto:[log in to unmask]>> wrote:
> Dear all
> A plea to the community for advice...
> From time to time I review papers submitted to the Journal of Applied
> Research in Intellectual Disabilities (JARID). It is one of the few
> journals that focuses on intellectual disability research and has a
> wide range of papers from the very medical model to more critical,
> qualitative and discourse analytic. The Editor in Chief is Chris Hatton
> who is a great - his blog on institutional disablism in health services
> is terrific. I’ve had my own work published in this journal and have
> received very helpful feedback from reviewers.
> The paper I’ve been asked to review is about the experiences of parents
> of children with intellectual disabilities. The authors are not from
> the UK, so perhaps some leeway regarding their use of terminology is
> allowed. However, they make free use of the term ‘burden’ in describing
> the impact of having a child with intellectual disabilities - social
> burden, economic burden, emotional burden etc.
> My initial response was to equate use of the term ‘burden’ with a
> ‘personal tragedy’ disability discourse and recommend that the authors
> take this term out. What do others feel? I could point the authors
> towards literature that looks more critically at the very pervasive
> understanding of disability as misfortune, though the authors are
> currently a million miles away from a more social model understanding.
> I could ask them to reflect on the negative implications of using the
> term and to include some discussion on how the experience of ‘burden’
> is because of social barriers to inclusion for disabled children and
> their parents, rather than the children’s own profiles of capabilities
> and difficulties.
> Are there any published reflections on the term that people know of?
> Have any organisations for disabled people disseminated advice on
> avoiding this term?
> The paper itself is thorough and on its own terms is methodologically
> sound. Any ideas about how I might initiate a helpful dialogue with the
> authors coming from a very different ontological and epistemological
> starting point to my own?
> I’d be really interested to hear your ideas on this.
> Many thanks
> Deborah Chinn
> KCL, London
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> --
> Ron Amundson
> Philosophy Department (Emeritus)
> University of Hawaii at Hilo
> Hilo, HI 96720
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> --
> Best wishes,
> Dyi
> Dieuwertje Dyi Huijg
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