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Posted Tue, 25 Apr 2017 15:38:08
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Dear colleagues,
We would like to invite you to the MitoSoc symposium on 'The sociology of mitochondrial disorders and novel reproductive technologies'.
This event will take place on Friday 5th May at the BSA Room, Imperial Wharf (London). Information on finding the venue is available at the following link: https://www.britsoc.co.uk/media/21963/BSA_Imperial_Wharf_directions041209.pdf
In February 2015 the UK became the first country to legalise high-profile and controversial mitochondrial donation techniques, which aim to prevent the transmission of inherited disorders by creating offspring using genetic material from three individuals. During the years preceding this legalisation, the debates were largely dominated by ethical issues and safety concerns. Little reference was made to empirical data in relation to affected families and the contribution from social science was limited.
This left unspoken the social, cultural and economic context within which the mitochondrial debates played out, and the complexities of living with mitochondrial disorders, including making sense of diagnosis, family communication and reproductive choices.
This event will be the first to bring together scholars interested in developing sociological thinking around mitochondrial donation. It will also contribute to an interdisciplinary dialogue on the implications of these technologies for policy in the field.
See the programme below.
Please register online at:
http://store.dmu.ac.uk/product-catalogue/faculty-of-health-life-sciences/misc/mitosoc-symposiumthe-sociology-of-mitochondrial-disorders-and-novel-reproductive-technologies
Registration Fees (incl. lunch and refreshments): £20
Several bursaries are available to post-graduate students on a first-come, first- served basis. For more information, please contact: [log in to unmask]<mailto:[log in to unmask]>
This event is supported by the Foundation for the Sociology of Health and Illness and the BSA Human Reproduction Study Group.
**Please feel free to circulate this call in your own networks**
Many thanks
Conference organisers
Cathy and Rebecca
Dr Cathy Herbrand
VC2020 Senior Lecturer in Sociology
Centre for Reproduction Research
DE MONTFORT UNIVERSITY
Programme: MitoSoc Symposium 5th May 2017
10:00-10:15
Welcome and Registration
10:15-10:30
Introduction
10:30-12:00
Missing voices and absent perspectives in the mitochondrial donation debates
Discussant: Rosamund Scott
Neil Stephens: ' Contested politics and mitochondrial donation: boundary work, campaigning and identity when bioethics goes to parliament'
Cathy Herbrand: 'Mitochondrial donation: Who are the potential beneficiaries?'
Erica Haimes: 'Rendering the invisible visible: the roles, values and interests of egg providers in mitochondrial research and therapy'
12:00-13:00
Lunch
13:00-14:30
The complexities of living with mitochondrial disorders
Discussant: Joanna Poulton
Lydia Harper: 'Living with Leber hereditary optic neuropathy: Negotiating stigma in everyday life'.
Julia Tonge: 'The implications of clinical relationships in making reproductive decisions'
Rebecca Dimond: 'Believing in hope: the patients' perspectives on mitochondrial disorders'
14:30-15:00
Coffee break
15:00-16:00
Mitochondrial donation in different contexts
Discussant: Ilke Turkmendag
Jacqueline Luce: 'Participatory knowledge politics of governing mitochondrial replacement techniques'
Sandra Gonzalez-Santos: 'Made in Mexico? Reports of the "world's first' mito baby"'
Ken Taylor: 'Sharpening the cutting edge: additional considerations for the UK debates on embryonic interventions for mitochondrial diseases'
16:15-17:00
Panel discussion: 'Integrating a sociological approach into the interdisciplinary dialogue on mitochondrial donation'
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