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Posted Mon, 16 Jan 2017 08:11:31
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**Apologies for cross-posting**
*Call for Abstracts: (RN16-r)*
13th Conference of the European Sociological Association
www.esa13thconference.eu
29 August – 1 September 2017
Athens, Greece.
Abstract deadline: 1st February 2017
Session organisers: Gillian Martin (University of Malta), Madeleine Murtagh
(University of Bristol, UK), Johannes Sturkbaum (University of Wein,
Austria)
We invite abstract submissions to our panel, Citizen participation,
Genomics and Bio-banking, at the 13th Conference of the European
Sociological Association in Athens, Greece, 29 August – 1 September 2017.
The deadline for abstract submission is 1st February, 2017.
*Short Abstract:*
This session will consider the subjectivities of research participants in
the context of biobanks and genomic research, focusing on consent
limitations, trust, sharing, commercialization, different models and
practices of citizen- and patient participation, and cultural influence in
relation to family, community, religion and IT accessibility.
*Long Abstract:*
This session on Citizen participation, Genomics and Biobanking aims to
attract contributions focusing on the subjectivities of research
participants within the context of biobanks and genomic research.
With the current momentum of genomic research driving the shift to
personalized medicine, the subjectivity of the research participant has
gained increasing attention in the scientific community. Rather than
passive donors of DNA samples, health or lifestyle data, ethical best
practice now aims to put these individuals at the core of the research
process as active partners with the potential to control the way their
samples are used, and to be dynamically updated about research outcomes and
societal impact.
This shift has significant effects on the dynamics within the genomic
research community which are concretized and played out within the context
of biobank governance structures. There is an interesting tension between
facilitating the work of the bio-medical researchers who are driven to
achieve optimum use of, and access to the samples, the governance
structures aimed at addressing ethical and legal rights of participants,
and the social implications of the research process. Issues of consent
limitations, trust, sharing, and commercialization are key issues of
concern and offer important avenues for sociological research. Furthermore,
different models and practices of citizen- and patient participation (e.g.
in the field of public engagement or citizen science) are of interest in
this domain.
The cultural influence on attitudes and beliefs in relation to biobanking
and genomic research is another key area of interest. Current research
shows a marked difference in attitudes in Nordic countries where Biobanking
is well established and public awareness is strong, to many other European
countries where the majority of citizens have very little knowledge about
the implications of genomic research and biobanking. The cultural impacts
of issues such as Family, Community, Religion as well as IT literacy and
accessibility would all be interesting areas for theoretical or empirical
sociological work.
Abstracts must be submitted online at the conference website:
www.esa13thconference.eu. Please see the RN16 Sociology of Health and
Illness CfP document for instructions: http://www.bbmri-eric.eu/wp-
content/uploads/2016/12/ESA_RN16_CallForAbstracts_Athens2017.pdf. For
further information regarding our session, please contact Gillian Martin (
[log in to unmask] ) .
best regards
Gillian, Madeleine and Johannes
Dr. Gillian M Martin BA(Melit.) MSc(Manchester) PhD(Manchester)
Lecturer
Sociology, Faculty of Arts
Room 130, Old Humanities Building
University of Malta
BBMRI.mt
BBMRI-ERIC ELSI
tel +356 23402301
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