Thanks for sharing these Marta.
I found the emphasis on the ability to anonymise data in the PIS
worrying:
"In addition, there is an increasing emphasis on ‘Open Science’ and some
scientific journals are now making deposition of Open Data – i.e. data
that can be accessed by anyone – condition of publication. Therefore
anonymised data may also be shared with other researchers around the
world. We take steps to ensure that data analysed outside the CBSU are
stripped of any personally identifiable information that could link them
to an individual, including in the case of brain imaging data ensuring
that facial features cannot be reconstructed. This means that your
identity will never be disclosed to anyone else, unless we first seek
written permission from you."
This is a bold, and probably unsupportable promise.
Instead, shouldn't we be promoting the use of managed access
repositories for human subject data?
Yours
Neil
PS: I have a paper up on BioRxiv on the subject -
http://biorxiv.org/content/early/2016/11/03/084921
On 2016-12-16 13:49, Marta Teperek wrote:
> Dear All,
>
> Many researchers at Cambridge ask about open consent forms and
> supporting information sheets. The MRC CBU at Cambridge agreed to
> share their templates with others - see attached.
>
> Three projects have already used these templates for their ethics
> review - all approved.
>
> I thought that some of you might find these useful as well.
>
> Best wishes,
>
> Marta
>
> Marta Teperek, PhD
>
> Research Data Facility Manager
>
> Cambridge University Library / Research Operations Office
>
> e-mail: [log in to unmask]
>
> tel. 01223 333138 (Friday - Wednesday)
>
> tel. 01223 761652 (Thursday)
>
> Twitter: @martateperek [1]
>
> You can arrange a meeting with me here [2]
>
> Have you already seen our data management plan support service?
> http://www.data.cam.ac.uk/DMPsupport [3]
>
>
>
> Links:
> ------
> [1] https://twitter.com/martateperek
> [2]
> https://calendar.google.com/calendar/embed?src=veud0sn3qlfo8o5p7r4abac968%40group.calendar.google.com&ctz=Europe/London
> [3] http://www.data.cam.ac.uk/DMPsupport
|