Another source for news of developments in the Care Data Program
http://www.ukauthority.com/news/5428/blackburn-with-darwen-to-lead-caredata-
reboot
There might seem to be a number of difficulties in the way - and that these
are being ignored or it is assumed that they will be overcome before
communications with patients are sent out.
Among those I would have thought might cause a delay - in addition to the
need to satisfy Dame Fiona's IIGOP conditions - is the lack of a Direction
to enable the Pathfinders (the draft Direction in the 29th May NHS England
Board meeting was delayed due to a letter from MedConfidential containing 11
points needing answering - by the Chair) and the draft Direction containing
a statement that the items to be extracted would be revised before the
Direction was issued.(watch item 6 in the video of the Board meeting)
The previous list was developed in conjunction with JGPITC at the insistence
of the GPES IAG and scrutinised by the GPES IAG.
The GPES IAG is being abolished at the end of June: I have no idea whether
the JGPITC - or anyone else i.e. BMA and RCGP - has been consulted on the
new list of data items, or how the data requirement will be scrutinised - or
the degree of independence of that scrutiny.
At the NHS England Board Meeting it was pointed out that both the data set
and use/distribution would only be for the Pathfinder stage, and that all
communications needed to make it clear that in future the amount and type of
data being extracted, and the use and distribution of that data would
change: this would require a new Direction: I didn't pick up any suggestion
that it would/should require any further patient communications.
A question for all of you - especially those involved in the Pathfinder
CCGs: how do GPs - or anyone else - provide 'fair processing' in the
circumstances?
And I haven't mentioned the mess over Objections - or the expectation that
DH, the Secretary of State for Health or both will issue a Direction on
Objections - or even the apparent inability of HSCIC to identify the people
who have registered Type 2 Objections with their GPs (which was approved by
GPES IAG using the NHS number for linkage purposes - so the problem would
appear to be with linkage rather than data extraction..)
Interesting times.
Mary Hawking
Retired from NHS on 31.3.13 because of the Health and Social Care Act 2012
"thinking - independent thinking - is to humans as swimming is to cats: we
can do it if we really have to." Mark Earles on Radio 4
blog http://maryhawking.wordpress.com/ And Fred!
http://primaryhealthinfo.wordpress.com/2014/12/01/can-integrated-care-satisf
y-all-of-freds-needs-including-patient-empowerment/
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