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DISABILITY-RESEARCH  March 2015

DISABILITY-RESEARCH March 2015

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Subject:

SV: Research about personal assistance - call for participants (PAs and disabled employers)

From:

Susanne Berg <[log in to unmask]>

Reply-To:

Susanne Berg <[log in to unmask]>

Date:

Sun, 8 Mar 2015 17:36:46 +0100

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (196 lines)

Basic social model - you get disabled by society, you are not disabled as a
characteristic. I personally could also make a grand argument for the
scrapping of the term person with impairment as being the other side of the
oppressive coin ... but I doubt it would be very productive at the moment. 

If you want to research the specific situation of being the employer for
someone you also receive personalised services from then your query needs to
reflect that. Personally, I don't see any other point in the query. Unless
you specifically want to investigate if disabled people are different in the
employer role than non-disabled? Or maybe if society disables us as
employers? 

My problem is that the way you shape the questions/problem will hugely
effect the answers you get. 

And if we continue to label us then we will never escape that label. 

Susanne Berg


-----Ursprungligt meddelande-----
Från: Steven Graby [mailto:[log in to unmask]] 
Skickat: den 8 mars 2015 17:16
Till: [log in to unmask]
Kopia: [log in to unmask]; liz
Ämne: Re: Research about personal assistance - call for participants (PAs
and disabled employers)

Hi Susanne and Liz

(I didn't know there was a limit of 2 messages per day to the list - I'm
sure I have seen exchanges between people with more than 2 messages each in
the same day. If this doesn't send today, I'll try again tomorrow.)

I'm not really sure what you mean by "more classes of employers" - a
disabled employer is simply an employer who is disabled. I didn't mean that
phrase to imply anything more than the sum of its parts. I want to interview
disabled people who employ PAs - I thought "disabled employers" was the
shortest, and thus most suitable for an email subject line, way to say that.

I didn't necessarily mean to imply that personal assistance as it is now is
either good or bad - in fact, that's exactly what I want to find out
people's (both PAs' and employers') thoughts and opinions about! I fully
expect - and want - to get a broad spectrum of differing opinions about
that, probably including people who think it is fine as it is as well as
people who think it should be changed in several different directions. And,
as Liz says, it will be very interesting to see if PAs and employers have
substantially different positions on this.

Steve

On 08/03/2015, Liz Ellis <[log in to unmask]> wrote:
> Hi Susanne,
>
> I guess Steve will clarify (but not today, as he's used up his ration 
> of two emails :D), but I took 'disabled employers' to distinguish from 
> non-disabled employers who employ PAs on behalf of a disabled person.
>
> Interesting question about personal assistance improving for whom.  Be 
> interesting to see how employers' suggested improvements compare with 
> those of employees.
>
> Liz
>
>
> On 8 Mar 2015, at 14:44, Susanne Berg wrote:
>
>> Doesn't your 3rd query - "if (and how) they think personal assistance 
>> could be changed for the better" - imply that personal assistance is 
>> less than good now? And do you mean better for them personally or 
>> better organised as a public service? Also, I didn't know there were 
>> such a thing as a "disabled employer". In my innocence I thought 
>> there were employers and employees.
>> But
>> who knows .. maybe you social model guys can explain if there's more 
>> classes of employers out there.
>>
>> Sorry to be a bit brutal. There's few things that irritate me 
>> nowadays. I guess you just caught me on a bad day.
>> Susanne
>>
>> -----Ursprungligt meddelande-----
>> Från: The Disability-Research Discussion List 
>> [mailto:[log in to unmask]] För Steven Graby
>> Skickat: den 8 mars 2015 15:26
>> Till: [log in to unmask]
>> Ämne: Research about personal assistance - call for participants (PAs 
>> and disabled employers)
>>
>> Hello all
>>
>> I am a PhD student in the Centre for Disability Studies at the 
>> University of Leeds, and I am looking for people interested in taking 
>> part in my PhD research about personal assistance for disabled 
>> people.
>>
>> I want to interview two groups of people:
>> - disabled people who employ or have employed personal assistants 
>> (PAs);
>> - and people who work or have worked as PAs.
>>
>> I want to interview both groups of people about:
>> - their experiences of employing, or working as, PAs;
>> - their thoughts and opinions about personal assistance and how it 
>> works at present;
>> - and if (and how) they think personal assistance could be changed 
>> for the better.
>>
>> Each interview will probably take around 1-2 hours (but can be split 
>> into shorter parts if necessary for accessibility reasons). I can 
>> either travel to meet you (within the UK) and interview you at a 
>> place of your choosing, or I can interview you by phone or Skype 
>> (audio or video call).
>>
>> If you would like to take part in this research, but you have access 
>> issues that would make any of these options difficult for you, please 
>> contact me and we can arrange an interview in a form that is 
>> accessible for you.
>>
>> For further information about my research, see my research website:
>> https://sgraby.wordpress.com/my-research/
>>
>> If you are interested in taking part in this research, please reply 
>> to this email or fill in the contact form on my website:
>> https://sgraby.wordpress.com/contact-me/
>>
>> If you have any concerns about this research, you can also contact my 
>> supervisors, Dr Alison Sheldon and Dr Simon Prideaux, at 
>> [log in to unmask] and [log in to unmask]
>>
>> If you know anyone else who you think may be interested in this 
>> research, please forward this email to them or give them the link to my
website.
>>
>> Thanks in advance
>>
>> Steve Graby
>> Postgraduate Research Student, Centre for Disability Studies, 
>> University of Leeds
>>
>> ________________End of message________________
>>
>> This Disability-Research Discussion list is managed by the Centre for 
>> Disability Studies at the University of Leeds 
>> (www.leeds.ac.uk/disability-studies).
>>
>> Enquiries about list administration should be sent to 
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>> This Disability-Research Discussion list is managed by the Centre for 
>> Disability Studies at the University of Leeds 
>> (www.leeds.ac.uk/disability-studies).
>>
>> Enquiries about list administration should be sent to 
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>
> ________________End of message________________
>
> This Disability-Research Discussion list is managed by the Centre for 
> Disability Studies at the University of Leeds 
> (www.leeds.ac.uk/disability-studies).
>
> Enquiries about list administration should be sent to 
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