I refer you to my editorial in the first "Autonomy". http://www.larry-arnold.net/Autonomy/index.php/autonomy/article/view/5/html
There has been continuing harm to autistic people as a group by pseudo scientific deconstruction of our autobiographical discourses in the literature, I would give the example of Happe’s work in Friths “Autism and Asperger Syndrome” an essay that Happe has since recanted, but as the publication is still in print, it is cited, forever constructing us as unreliable autobiographers.
I also refer you to Damian Milton http://www.birmingham.ac.uk/schools/education/courses/postgraduate-research/profiles/damian-milton.aspx and the articles you will find under his name, in particular:
Milton, D. (2014) Autistic expertise: A critical reflection on the production of knowledge in autism studies. Autism DOI:10.1177/1362361314525281
Milton, D. and Bracher, M. (2013) Autistics speak but are they heard? Medical Sociology Online. Vol. 7(2): 61-69.
Milton, D., Mills, R. and Pellicano, L. (2012) Ethics and Autism: Where is the Autistic Voice? Commentary on Post et al. Journal of Autism and Developmental Disabilities. Published online 11/12/12.
If you want to consider this seriously you need to look at the impact of people who use us a stepping stone up the academic ladder.
research does not satisfy a higher code of ethical practice so far as emancipatory research is concerned unless it does address and attempt to redress the injustices of past “scholarship” in this area.
Larry
From: The Disability-Research Discussion List [mailto:[log in to unmask]] On Behalf Of KUMIKO KIDO
Sent: 21 May 2014 15:44
To: [log in to unmask]
Subject: Writing researcher's own story
Hello,
I am an international PhD student at Sheffield Hallam University, currently I am interested in writing private family story of individual with autism. Does anyone know the articles that are written about researchers' own private stories in the academic papers and the dilemma when they talk their private stories publicly.
Thank you.
Kumiko Kido
--
Sheffield Hallam University
PhD Faculty of Development & Society
Kumiko Kido
E-mail:[log in to unmask]
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