You are invited to attend a meeting on care.data at Queen Mary University of London
ORGANISED BY PROF RICHARD HORTON (The LANCET) and PROF ALLYSON POLLOCK (QMUL)
Saturday 05 April 2014
Chair Richard Horton, Editor of The Lancet
09.30 Coffee
10:00 How robust are the current legal protections: DPA and Section 251
Michel Coleman and Peter Roderick
10:10 Why was Part 9 of the Health and Social Care Act 2012 necessary?
10.50 What is happening to public health data: cuts to ONS data collection, future of census data
Health Statistics Users group Rep
11.05 What are the governance concerns? Brief review of HSCIC, CAG, and GP data controllers and CSUS
Med Confidential; others TBC
11.20 The Scottish and Welsh position regarding data sharing
11.30 The government’s proposed amendment
Lord David Owen
11.45 Proposals for new legislation: discussion led by Peter Roderick
12.00 Proposal for action
What should be done next - Academy of Medical Royal Colleges, MRC, Wellcome, ESRC, Royal Statistical Society (and campaign groups: BMA, RSA, UNITE, KONP)
12.45 LUNCH (provided)
Clark-Kennedy Lecture Theatre
Innovation Centre
Barts and The London School of Medicine and Dentistry
Queen Mary University of London
Whitechapel
5 Walden Street
London
E1 2EF
Map: http://www.qmul.ac.uk/about/howtofindus/whitechapel/index.html
Whitechapel station: Hammersmith & City, District, and Overground
Shadwell station: DLR and overground (10-15 min walk)
Bus: 25, 205, D3
Please RSVP as soon as possible:
https://care-dot-data-meeting.eventbrite.co.uk
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