Penny wrote:
> We’ll also be looking into this in relation to the national strategic Hands-on DNA programme being run at Science Centres, to see if any changes are needed to the current recommended practice. We'll issue specific guidance in a couple of weeks, and would welcome input from science centres who run the Question of Taste workshop (Please send this directly to Dr Michaela Livingstone at ASDC)
Hi again
These documents might be useful. btw: The Nuffield Council on Bioethics stuff is out-of-date.
Cheers
Dean
Human Tissue Authority. Code of practice 1: Consent (September 2009)
[Available from http://www.hta.gov.uk ]
Human Genetics Commission. A common framework of principles for direct-to-consumer genetic testing services (July 2010)
[Available from many sources on line, but note that the HGC doesn’t exist any more. Many of the principles in this document would apply to testing in a school context, even though the report was not written with this in mind.]
Joint Committee on Medical Genetics. Consent and confidentiality in clinical genetic practice: Guidance on genetic testing and sharing genetic information (September 2011)
[Available from http://www.bsgm.org.uk/media/678746/consent_and_confidentiality_2011.pdf Excellent and very interesting report, with a useful summary of the legal situation.]
|