Dear Emma:
It looks like Jenny Morris has been able to link to great resources here.
Just wanted to quickly mention that another place where you can find links to many disability blogs in general (albeit not necessarily research focused) is the blog roll at
http://disstud.blogspot.com/
The only weakness is that some of the links lead to blogs that haven't been updated in as much as a year or three. In some cases, even these blogs can be an interesting read (some text does have enduring value)
Someone else mentioned "Blogging Against Disablism Day" (also not research based per se) the most recent of which is found here;
http://blobolobolob.blogspot.com/2012/05/blogging-against-disablism-day-2012.html
a good place to find blogs that are more likely to be updated once in a while.
I don't know if you would count my blog as an academic blog. But although I don't update it as often as I used to, I have used this to link to various sources of information, including reports on the situation of people with disabilities in developing countries:
http://wecando.wordpress.com/
(for more resources on disability in developing countries, scroll down to the bottom of any page here to browse the blog roll)
Another blog focused on information on disability in Tanzania, by the Information Center on Disability in Tanzania:
http://disabilityintanzania.blogspot.com/
On disability rights in Uganda:
http://disability-uganda.blogspot.com/
Not a blog, but two web sites that can lead to yet more resources on disability in developing countries:
http://gdrl.org
http://AskSource.info
Andrea
On Jul 2, 2012, at 6:57 AM, jennymorris wrote:
> Hi Emma, I think there's a lot of potential for using social and online
> media in research, not only for the purposes you describe but also for
> disseminating research in the context of debates on policies which affect
> disabled people's lives. I've now stopped work having spent more than 20
> years using research to try and influence government disability policy but
> have started a blog http://jennymorrisnet.blogspot.co.uk/ . I haven't
> written anything for a couple of months but am intending to return to
> writing more in the autumn. Apart from being an opportunity to 'rant in
> retirement' it's also an attempt to a) inject research evidence into online
> activism and b) try and ensure that current policy discussions are informed
> by knowledge of the past since in my experience politicians and civil
> servants spend a lot of time reinventing the wheel! One recent,
> non-disability, example was the media attention paid to research on children
> in care - which basically repeated findings of a research project I was
> involved in ten years ago. I used twitter to alert one of the journalists
> to the research and she retweeted it.
>
> I was particularly interested in your blogpost which discussed pain (and
> indeed in your discussion of impairment and disability in your first
> blogpost). Related to this type of discussion is the way current government
> policy treats 'illness', in particular the application of the
> biopsychosocial model. I've written a blogpost
> http://jennymorrisnet.blogspot.co.uk/2012_04_01_archive.html about this but,
> if you haven't come across them, the links I give in that post to analyses
> by Debbie Jolly
> http://www.dpac.uk.net/2012/04/a-tale-of-two-models-disabled-people-vs-unum-
> atos-government-and-disability-charities-debbie-jolly/ and Gill Thorburn
> http://www.internationalgreensocialist.org/wordpress/?page_id=1716 are also
> very interesting. Sue Marsh's blog, Diary of a Benefit Scrounger
> http://diaryofabenefitscrounger.blogspot.co.uk/ (which I'm sure you've
> come across) is also of course an illustration of the impact of chronic
> illness and its relationship to disability.
>
> One example of a very effective use of social media to disseminate research
> is the two Spartacus reports about the likely impact of the change from DLA
> to PIP. http://wearespartacus.org.uk/ The Guardian did an interesting
> article on how the dissemination of the first report 'went viral'
> http://www.guardian.co.uk/society/2012/jan/17/disability-spartacus-welfare-c
> uts-campaign-viral
>
> Another way in which social media is used to disseminate research is when
> websites like False Economy http://falseeconomy.org.uk/ , Touchstone
> http://touchstoneblog.org.uk/ , and Full Fact http://fullfact.org/
> challenge government and media - often by the analysis of statistics but
> sometimes also by drawing on and/or linking to published research. Though
> these websites have broader interests, they do include disability. So, for
> example, False Economy's blogpost on disability hatecrime
> http://falseeconomy.org.uk/blog/disability-hate-crime drew attention to
> research by Strathclyde University on how newspapers are reporting
> disability.
>
> I couldn't see Ben Baumberg's name on the list of academic tweeters -
> disability is one of his research interests and he and the inequalities blog
> are worth following: @BenBaumberg; http://www.benbaumberg.com/ and
> http://inequalitiesblog.wordpress.com/
>
> And finally, I'm on twitter if you want to follow me! @jennifermor Have
> just followed you and look forward to reading more of your blog. And if
> anyone else recommended blogs to you 'off list' in response to your inquiry,
> I'd be interested to hear about them - as I'm sure would some other
> subscribers.
>
> Jenny
>
>
> -----Original Message-----
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]] On Behalf Of Emma Sheppard
> Sent: 26 June 2012 16:56
> To: [log in to unmask]
> Subject: research & social media
>
> Hi everyone
>
> An earlier message mentioned Tony Nicklinson and reminded me I'd intended to
> ask your collective opinions on this - what do you think about using social
> and online media (blogs and twitter and so on) in research, in terms of both
> disseminating research and making research accessible to non-academic
> members of the disability communities.
>
> I use twitter a lot, and I find it useful in terms of discussing activism
> (and finding ways to be involved - I think saying online activism is
> "slacktivism" ignores that it gives people who find traditional forms of
> activism difficult/inaccessible a voice) and - more personally - in
> connecting with other disabled people who share my interests. I recently
> read a list of academic tweeters
> (http://blogs.lse.ac.uk/impactofsocialsciences/2011/09/02/academic-tweeters-
> your-suggestions-in-full/) but noticed that only a couple listed disability
> among their interests; I wonder if this is a lack of awareness or a lack of
> people talking about research into disability. Or just me not following the
> right people!
>
> With blogging, I know there are blogs out there, but again, they seem to be
> a minority when it comes to research/academia-focused blogs - but again, I
> wonder if that's me not being able to find them, rather than them not being
> there. I wonder if this could be considered a possible and useful tool in
> terms of making research accessible - while I am aware that not everyone has
> the access to the internet that I do in this country, or worldwide, I think
> *not* using online and social media - and not doing so thoroughly - is
> damaging to "the cause" (as it were) - of getting our research out there,
> and getting disabled people and allies from outside the academic community
> interested.
>
> Any thoughts? Or people I should be following on twitter?
>
> Emma
>
> (incidentally, I am attempting to put my money where my mouth is in this,
> and welcome any feedback on my own reseach blog, a tiny wee thing,
> http://disabilitysexproject.wordpress.com )
>
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