Hi Liz
I conducted a piece of work with 12 disabled co-researchers within an
emancipatory model completed 1999 for my PhD
The ethical standards are much higher in any work with people and there
is always the question in whose interests? Even though all have a stake
I had to get a signed consent as the work contributed to my PhD to
demonstrate an emancipatory model working for transformative change.
An agreement between researchers and a demonstrated intent to
collaborate would be the way to go in any collaborative resesarch with
anyone. Provided co-researchers have demonstrated their willingness to
collaborate this should be sufficient including within research
involving those with any experience of disability.Funders and academic
bodies just want proof no coercion has taken place
It would be appropriate to then have a formal consents process for
respondents as you say.
Townsley R. Williams C. and Bashford L. (1995) Parallel Text: Making
Research Accessible to People with Intellectual Disabilities Norah Fry
Research Centre, University of Bristol International Journal of
Disability,
Norah Fry have done alot of work with people with intellectual
disabilities or Learning Disabilities in the English context
I am sure other people will have some suggestions
Pauline
Dr Pauline Boyles
Senior Disability Advisor
Funding and Planning Directorate
Level 12
Grace Neill Block
Wellington Hospital
Extension 82436
Mobile 027 545 4394
DDI 04 806 2436
-----Original Message-----
From: The Disability-Research Discussion List
[mailto:[log in to unmask]] On Behalf Of Liz Ellis
Sent: Tuesday, 12 June 2012 01:26
To: [log in to unmask]
Subject: Co-researchers consenting to become researchers?
Hello all,
I was wondering if anyone who has been involved in co-research,
especially with people labelled as having learning difficulties or other
'vulnerable' groups, have experienced the need (from funding bodies or
institutions) to gain informed consent from the potential
co-researchers?
People participating in research clearly need to give consent and as
researchers we are morally obliged to ensure that consent is informed in
all cases, but does this in anyone else's experience apply to any
co-researchers working in participatory or inclusive research where the
co-researchers are not respondents but going to be interviewing disabled
and non-disabled respondents from whom informed consent would be sought?
I've not come across any discussion of this issue in the literature, but
obviously I might have missed it.
Kind regards,
Liz Ellis
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