Hi Emma.
There's nothing wrong with blowing your own trumpet! I am an active
member of DAN - who here isn't? (don't worry I'm not expecting
confessions!). I would be wary of discussing anything of a sensitive
nature such as a call to protest openly on-line, especially more so
now because the Police have tweeter accounts - wouldn't want to tip
'um off!, it would have to be in a closed environment.
Speaking from personal knowledge/experience I know quite a lot of
people who use the many varying social media platforms, including
YouTube to raise peoples' awareness of their condition, especially if
it is a less common one, take Hayley Okines for example Hayley has a
rare disease called progeria which turns children old before they have
reached their teens. The media uses the term 'suffers', but the way I
see it, none of us 'suffers' from/with what we've got, we've just get
on with it, right?
I hope in a way this helps you Emma?
Becky.
----- Message from [log in to unmask] ---------
Date: Tue, 26 Jun 2012 16:56:15 +0100
From: Emma Sheppard <[log in to unmask]>
Reply-To: Emma Sheppard <[log in to unmask]>
Subject: research & social media
To: [log in to unmask]
> Hi everyone
>
> An earlier message mentioned Tony Nicklinson and reminded me I'd
> intended to ask your collective opinions on this - what do you think
> about using social and online media (blogs and twitter and so on)
> in research, in terms of both disseminating research and making
> research accessible to non-academic members of the disability
> communities.
>
> I use twitter a lot, and I find it useful in terms of discussing
> activism (and finding ways to be involved - I think saying online
> activism is "slacktivism" ignores that it gives people who find
> traditional forms of activism difficult/inaccessible a voice) and -
> more personally - in connecting with other disabled people who share
> my interests. I recently read a list of academic tweeters
> (http://blogs.lse.ac.uk/impactofsocialsciences/2011/09/02/academic-tweeters-your-suggestions-in-full/) but noticed that only a couple listed disability among their interests; I wonder if this is a lack of awareness or a lack of people talking about research into disability. Or just me not following the right
> people!
>
> With blogging, I know there are blogs out there, but again, they
> seem to be a minority when it comes to research/academia-focused
> blogs - but again, I wonder if that's me not being able to find
> them, rather than them not being there. I wonder if this could be
> considered a possible and useful tool in terms of making research
> accessible - while I am aware that not everyone has the access to
> the internet that I do in this country, or worldwide, I think *not*
> using online and social media - and not doing so thoroughly - is
> damaging to "the cause" (as it were) - of getting our research out
> there, and getting disabled people and allies from outside the
> academic community interested.
>
> Any thoughts? Or people I should be following on twitter?
>
> Emma
>
> (incidentally, I am attempting to put my money where my mouth is in
> this, and welcome any feedback on my own reseach blog, a tiny wee
> thing, http://disabilitysexproject.wordpress.com )
>
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