Dear Patrick
I live about as far from the coast as possible in the UK and thought I was
reasonably safe from tsunamis.
Obviously I need to retreat to higher ground :)
All the Best
Dave
On 26 May 2012 17:15, Patrick McManus <[log in to unmask]> wrote:
> Davey It's Pat Snaps that keep you going old lad -like a relentless tsunami
> of joy etc
> P snappings
>
> -----Original Message-----
> From: Poetryetc: poetry and poetics [mailto:[log in to unmask]] On
> Behalf Of David Bircumshaw
> Sent: 25 May 2012 12:46
> To: [log in to unmask]
> Subject: Re: VERY HEAVY: I must admit... for over the past six months
>
> This is painful to read or hear, Chris, but also of some interest to me. I
> have symptoms very like those covered by CFS, in my case diagnoses have
> taken the form of 'fibromyalgia', (not established), COPD (established) and
> obstructive sleep apnea (established) plus a helping of other nomenclature
> like 'supraspinatus impingement' and that old favourite 'osteo-arthiritis'.
> All of those together, like system of bad rivers, produce what is very like
> the descriptions of CFS I've read. But, still, in my case, they do not lead
> to a cure, rather instead to minor palliative treatments (ironically these
> include the Australian invented CPAP machine, which is rather like a
> mini-vacuum cleaner, which I have to wear on my head each night :) and
> which
> provides some relief but not that of the panacea it is touted as over
> here).
> My suspicion, in both your case and mine, it is a matter of there being
> undiagnosed factors at work, my own doctors have just put me through
> another
> round of blood-tests, but looking at the history of CFS I notice that it's
> early reports, such as Royal Free Disease, seem to be of a viral nature,
> environmentally viral at that, and I wonder if there's not something like
> that at work. I know that pneumonia has multiple causes, including viral,
> and pneumonia is what my 'exacerbations' develop into if not caught by
> antibiotics in time ( I have become a very alert watcher of the horizon.
> Either that or, in case some wonder if this has nothing to with poetry, I'm
> suffering from the effects of reading snaps by Patrick every week since
> 2003, which could explain things :) - I couldn't resist that - you keep
> fighting man
>
> care
>
> David
>
> On 25 May 2012 10:32, Chris Jones <[log in to unmask]> wrote:
>
> > There has been something which I have been hiding, but now feel I must
> > admit to and begin to make more public. It is very sad and difficult.
> > For this I apologize.
> >
> > Has it now been two years since my younger gay brother committed
> > suicide by hanging himself, I cannot remember, date time has become
> something else.
> >
> > It is now two months and more, over six months, that my treating
> > doctor has refused to provide treatment for a treatable illness, CFS.
> > He has told me that since I am a single man living alone on a boat, I
> > am a drug addict, who does not have a wife to control my drug and
> > alcohol intake! I am sick because I do not have a wife! I am not sick; I
> am an addict!
> >
> > Needless to say, this is a breach of state and federal
> > anti-discrimination law, aside from being blatantly homophobic. Yet
> > for the past six months I have been living in severe disabling pain,
> > not able to sleep. I oppose suicide but pain prevents me from getting
> > enough sleep to hold my sanity so I try to get myself to sleep with
> > the hope that I may not wake again; in severe disabling pain, yet
> > again lying still, gripping my torso, hoping the pain may end, through
> > the long night hours. I no longer wish to live in this sort of pain,
> > although I will refuse the easy way of suicide. And I am spending most
> > hours of the daylight lying still, trying to breathe slowly, hoping
> > the fatigue, pain and severe flu-like illness will leave me alone
> > enough that I may do something. I struggle to cook for myself a meal; let
> alone write and do some more work on my photo art.
> >
> > I am currently composing a letter, which I intend on sending to my
> > medical practice, the NSW Minister for Health, the Federal Minister
> > for Health, the Prime Minister of Australia and the United Nations in
> > New York giving a detailed account.
> >
> > Sorry for this heavy post, but must begin to make this situation more
> > public and have chosen this list as only the beginning. This is the
> > first stage in my fight for life and my right to practice as an artist
> > and poet in Australia which, aside from a basic human right to live
> > pain free, is also my right to practice as an Australian artist. The
> > current political situation is denying me this right. Australia is in
> > breach of human rights and as such in breach of international law. The
> > fight for life, here, has only just started. This is one of my opening
> > shots. I have chosen this list to begin to make this situation public,
> > on an international scale. Action is life. Silence is death. And I
> > will continue to fight, not just for myself but all suffering severe
> > illness and discrimination living with severe illness such as CFS (aka
> > CFIDS... see wwww.cfids.org.)
> >
> > Yours faithfully, Christopher C Jones, BA (Communication) Hons UTS
> >
>
>
>
> --
> David Joseph Bircumshaw
> "We are shallow, mababaw ang kaligayahan."
> -* F. Sionil José*
> Website and A Chide's Alphabet
> http://www.staplednapkin.org.uk
> The Animal Subsides http://www.arrowheadpress.co.uk/books/animal.html
> Facebook: http://www.facebook.com/david.bircumshaw
> twitter: http://twitter.com/bucketshave
> blog: http://groggydays.blogspot.com/
>
--
David Joseph Bircumshaw
"We are shallow, mababaw ang kaligayahan."
-* F. Sionil José*
Website and A Chide's Alphabet
http://www.staplednapkin.org.uk
The Animal Subsides http://www.arrowheadpress.co.uk/books/animal.html
Facebook: http://www.facebook.com/david.bircumshaw
twitter: http://twitter.com/bucketshave
blog: http://groggydays.blogspot.com/
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