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PSCI-COM  April 2012

PSCI-COM April 2012

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Subject:

New European project – Introduction and request for existing resources

From:

"Palm Marisha (RW3) CMFT Manchester" <[log in to unmask]>

Reply-To:

psci-com: on public engagement with science

Date:

Tue, 3 Apr 2012 19:48:32 +0000

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (79 lines)

Dear All

Re: New European project – Introduction and request for existing resources

My colleagues and I would like to introduce an exciting new project and ask for your support. European Patients’ Academy on Therapeutic Innovation (EUPATI), funded by the Innovative Medicines Initiative, is a patient-driven initiative to change the landscape in the EU by increasing the capacities and capabilities of well-informed patients to be effective advocates and advisors in medicines development [http://www.patientsacademy.eu/]. The project was launched in February 2012 and over the next 5 years it will work to create educational modules on all aspects of the development of new medicines.

Do you want to join the EUPATI network?

EUPATI has been set up with patients all across Europe and will be developed by a consortium of interested groups. We are keen to collaborate and develop our network of partners and other groups who are interested in the outcome of the project, so please let us know that you would like to part of our network and be kept up-to-date on the developments within the project by clicking here http://www.patientsacademy.eu/eupati-network

Can you help EUPATI to collect existing resources?

One of the first stages of this project is to reach out to patient organisations, pharmaceutical industries and research establishments to review existing educational and training resources on medicines development. We can only do this with your help, and in order to make sure that we are collating all relevant materials, we would be very grateful if you could upload the resources that you use, or are aware of, by following:  www.patientsacademy.eu/suggest<http://www.patientsacademy.eu/suggest>

Please note that the deadline for submitting resources is Friday 4 May.

Cascade this email to your networks

If you wish to cascade this email further to other relevant organisations we would be very grateful. Please contact us at [log in to unmask]<mailto:[log in to unmask]> to let us know the names of the organisations to which you have cascaded the email and their classification (e.g. patient group, research establishment, healthcare organisation, etc.) to give us an idea of the reach of our search.

Thank you!

Thank you very much for your time and for any information that you provide. If you have any questions about EUPATI or the review of existing resources, please do not hesitate to email [log in to unmask]<mailto:[log in to unmask]>

Kind regards

Marisha

Follow us on twitter @eupatients<http://www.twitter.com/eupatients>, LinkedIn<http://www.linkedin.com/groups/EUPATI-European-Patients-Academy-on-4339729>, Facebook<http://www.facebook.com/patientsacademy.eu> or Google+<http://gplus.to/eupati>
Or visit our website at www.patientsacademy.eu<http://www.patientsacademy.eu>

Dr Marisha Palm
Public Programmes Research and Evaluation Officer
Nowgen, A Centre for Genetics in Healthcare
Manchester Academic Health Science Centre
The University of Manchester
NIHR Manchester Biomedical Research Centre
Central Manchester University Hospitals NHS Foundation Trust
The Nowgen Centre
29 Grafton St
Manchester M13 9WU

Tel: +44 (0)161 276 3215

Email: [log in to unmask]<mailto:[log in to unmask]> or [log in to unmask]<mailto:[log in to unmask]>
Websites: www.nowgen.org.uk<http://www.nowgen.org.uk/> and www.geneticseducation.nhs.uk<http://www.geneticseducation.nhs.uk/>

Privacy and Confidentiality Notice: The information contained in this e-mail is intended for the named recipient(s) only. It may contain privileged and confidential information.  If you are not an intended recipient, you must not copy, distribute or take any action in reliance on it. If you have received this e-mail in error, we would be grateful if you would notify us immediately.  Thank you for your assistance.
 
Please note that e-mails sent or received by our staff may be disclosed under the Freedom of Information Act (unless exempt).

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