That is really helpful, thank you.
KT
On Wed, 11 Mar 2009 18:47:31 -0000
Alistair Holmes <[log in to unmask]>
wrote:
> Dear Kathryn,
> Have not done this before so behind loop my reply was
>to point out
> that for her to pay for prescriptions seems wrong given
>the rules. However
> if you look at the University College Shared Care
>guideline on apomorphine
> infusion which can be seen in one iteration at
> http://www.fifeadtc.scot.nhs.uk/interface/fife_scp/apomorphine.pdf
> Page 19 says infusion sets are not prescribable but
>supplied by the District
> Nursing Service
> This seems a very authoritative source for this advice
>and I'm sure the
> trust is v please your relative is paying but a further
>check on background
> with the Parkinson's Disease Society reveals the
>following information sheet
> http://www.parkinsons.org.uk/pdf/FS26_1108_web.pdf
> Which says the same.
> I suggest you challenge them to explain why this has
>been demanded of her,
> if the explaination is because she is in a nursing home
>and DN's do not go
> there, then I would engage with her MP along the lines
>of why are they not
> paying for her necessary nursing care.
> Alistair
>
> -----Original Message-----
>From: Kathryn Law [mailto:[log in to unmask]]
> Sent: 11 March 2009 18:26
> To: [log in to unmask]
> Subject: Re: Paying for infusion sets
>
>
> So are all these accessories for the pump available on
> prescription?
>
> KT
>
> On Wed, 11 Mar 2009 18:18:32 -0000
> Alistair Holmes <[log in to unmask]>
> wrote:
>>From
>> "FP92a Application for prescription charge exemption
>>(medical)
>> A continuing physical disability which means I cannot go
>>out without the
>> help of another person. Temporary disabilties do not
>>count even if they last
>> for several months."
>> I would have thought from your synopsis this clause
>>would apply
>> Alistair
>>
>> -----Original Message-----
>>From: Geoff Schrecker [mailto:[log in to unmask]]
>> Sent: 11 March 2009 17:51
>> To: [log in to unmask]
>> Subject: Re: Paying for infusion sets
>>
>>
>> 2009/3/11 Kathryn Law <[log in to unmask]>:
>>> Does anyone know what the rules are for payment for the
>>>tubing and
>>> infusion sets that are attached to a pump for
>>>subcutaneous
>>> apomorphine in a Parkinsons patient who is under 60?
>>>
>>> My sister in law is now in a nursing home with
>>>Parkinsons and has an
>>> apomorphine pump for 12 hours a day. She has all her DLA
>>>taken to pay
>>> for the home, and is permitted "pocket money" but out of
>>>this she is
>>> expected to pay privately it seems for the tubing and
>>>needles for the
>>> pump, which is apparently £104 per month, which is more
>>>than she has
>>> as pocket money. She is in her mid 50s so still pays for
>>> prescriptions.
>>>
>>> It seems anomalous, as my daughter has an insulin pump
>>>for diabetes
>>> and it appears all the tubing and stuff is supplied
>>>(just as well as
>>> student budgets don't stretch that far!)
>>>
>>> KT
>>
>>
>> A question for your local MP I suspect!
>>
>> Cheers Geoff
>>
>> --
>> Please avoid sending me Word or PowerPoint attachments
>>unless by prior
>> arrangement. See
>>http://www.gnu.org/philosophy/no-word-attachments.html
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