Dear Kathryn,
Have not done this before so behind loop my reply was to point out
that for her to pay for prescriptions seems wrong given the rules. However
if you look at the University College Shared Care guideline on apomorphine
infusion which can be seen in one iteration at
http://www.fifeadtc.scot.nhs.uk/interface/fife_scp/apomorphine.pdf
Page 19 says infusion sets are not prescribable but supplied by the District
Nursing Service
This seems a very authoritative source for this advice and I'm sure the
trust is v please your relative is paying but a further check on background
with the Parkinson's Disease Society reveals the following information sheet
http://www.parkinsons.org.uk/pdf/FS26_1108_web.pdf
Which says the same.
I suggest you challenge them to explain why this has been demanded of her,
if the explaination is because she is in a nursing home and DN's do not go
there, then I would engage with her MP along the lines of why are they not
paying for her necessary nursing care.
Alistair
-----Original Message-----
From: Kathryn Law [mailto:[log in to unmask]]
Sent: 11 March 2009 18:26
To: [log in to unmask]
Subject: Re: Paying for infusion sets
So are all these accessories for the pump available on
prescription?
KT
On Wed, 11 Mar 2009 18:18:32 -0000
Alistair Holmes <[log in to unmask]>
wrote:
>From
> "FP92a Application for prescription charge exemption
>(medical)
> A continuing physical disability which means I cannot go
>out without the
> help of another person. Temporary disabilties do not
>count even if they last
> for several months."
> I would have thought from your synopsis this clause
>would apply
> Alistair
>
> -----Original Message-----
>From: Geoff Schrecker [mailto:[log in to unmask]]
> Sent: 11 March 2009 17:51
> To: [log in to unmask]
> Subject: Re: Paying for infusion sets
>
>
> 2009/3/11 Kathryn Law <[log in to unmask]>:
>> Does anyone know what the rules are for payment for the
>>tubing and
>> infusion sets that are attached to a pump for
>>subcutaneous
>> apomorphine in a Parkinsons patient who is under 60?
>>
>> My sister in law is now in a nursing home with
>>Parkinsons and has an
>> apomorphine pump for 12 hours a day. She has all her DLA
>>taken to pay
>> for the home, and is permitted "pocket money" but out of
>>this she is
>> expected to pay privately it seems for the tubing and
>>needles for the
>> pump, which is apparently £104 per month, which is more
>>than she has
>> as pocket money. She is in her mid 50s so still pays for
>> prescriptions.
>>
>> It seems anomalous, as my daughter has an insulin pump
>>for diabetes
>> and it appears all the tubing and stuff is supplied
>>(just as well as
>> student budgets don't stretch that far!)
>>
>> KT
>
>
> A question for your local MP I suspect!
>
> Cheers Geoff
>
> --
> Please avoid sending me Word or PowerPoint attachments
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