Practicing patients
<snip>
> ......At first glance, the Web site looks like just any other online
> community, a kind of MySpace for the afflicted. Members have user
> names, post pictures of themselves and post updates and
> encouragements. As such, it’s related to the chat rooms and online
> communities that have inhabited the Internet for more than a decade.
>
> But PatientsLikeMe seeks to go a mile deeper than health-information
> sites like WebMD or online support groups like Daily Strength. The
> members of PatientsLikeMe don’t just share their experiences
> anecdotally; they quantify them, breaking down their symptoms and
> treatments into hard data. They note what hurts, where and for how
> long. They list their drugs and dosages and score how well they
> alleviate their symptoms. All this gets compiled over time, aggregated
> and crunched into tidy bar graphs and progress curves by the software
> behind the site. And it’s all open for comparison and analysis. By
> telling so much, the members of PatientsLikeMe are creating a rich
> database of disease treatment and patient experience.......
Bob,
Co administrator Telehealth List Serve and roving editor at large.
http://www.telehealth.net/interviews/pykebio.html
http://bob-thebobblog.blogspot.com/
"The best journeys are the ones that answer questions that at the outset you never even thought to ask." Rick Ridgeway
"There are certain spots in the world where you
can stand that will change the way that you look at things forever" Pete Whitaker
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