I almost dare not comment, clearly I risk being besmirched by what may be
perceived as having a less sympathetic view to the negative issues of
embodiment and social construction of disability then that of Mr.
Shakespeare. However, in describing disabled children I fail to see any
empathy for anyone of any make or stature (other then himself) in Mr.
Shakespeare's communication here:
http://www.bbc.co.uk/ouch/columnists/tom/201106_index.shtml.
It seems driven by sarcasm, which is hard to get past.
That we struggle to live with others because of our distaste for the burden
of it is a universal condition (my view). Perhaps it is too difficult for a
lot of us to see past our own bias's and quiet the clamoring of our own
perspective long enough to appreciate the perspectives of another (Which
seems fundamental to dismantling any ideas that do hurt us or those we care
about or could care about). Isn’t it our perspectives that move us to
action? Unless I am able to see your perspective as meaningful to you I am
in no position to understand your action/inaction. Seems simple enough yet
nearly impossible to achieve universally.
Using our wit to communicate sarcastically about such important issues feels
disabling and part of the problem. By that I mean, if we are interested in
the ability to see all people, regardless of ability, as worth caring about.
Mr. Shakespeare seams to assume that those involved in Ashley’s life are
somehow flawed. Maybe they don’t drool, limp, or grind their teeth
involuntarily but they are nonetheless burdensome and need fixing because of
their ideas. If I understand Mr. Shakespeare’s implication correctly the
ideas of the ethicists and parents involved in Ashley’s case are deficient.
Apparently these ideas are deficient enough to warrant his and accordingly
our scorn. I wonder if Mr. Shakespeare’s sentiment detracts from his
argument because it is exclusive, meaning one needs to be on the RIGHT side
of it to be worthy of respect. If we stand behind arguments such as these
and try to further the cause of inclusion and rights of the disabled person
it seems hypocritical. Searching for greater meaning becomes hypocrisy when
the action harms others intentionally.
BJ – Orono - USA
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