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Call for papers:
----------------
(Note Revised Deadline)
Special issue of the Health Informatics Journal
Integrated Health Records (IHR): Practice and Technology
This special issue follows on from the workshop of the same name held
and the National eScience Centre (NeSC) on the 9th-10th March 2006
(http://www.nesc.ac.uk/esi/events/648/).
(This is an open call for papers, i.e. it is not restricted to workshop
attendees.)
Background
Although the principle goal of Integrated Health Records is to improve
care through timely and location independent access to medical records,
this (complex enough) objective is becoming increasingly linked with
ambitious agendas relating to e-Health (e.g., personal access to health
services and information) and e-Science (e.g., use of clinical data for
research). At the same time, many of the anticipated problems associated
with IHR delivery (e.g., data quality, clinical acceptance,
confidentiality, meshing national and local priorities and systems, fit
with clinical practice) have come to the fore in the context of
ambitious national
implementation programmes, such as "Connecting for Health"
(formally NPfIT). It is timely, therefore, to reflect on and share
experiences of delivering the IHR, as well as on its emerging relations
with e-Science and e-Health.
Call for papers
Papers for this special issue sought from healthcare practitioners,
social care workers, clinical researchers, social scientists,
e-Scientists and policy makers interested in the problems associated
with accessing and integrating health care data for service delivery and
research. The special issue will aim to highlight a range of
socio-technical issues pertaining to the deployment of robust, secure,
trusted, ethically acceptable and usable systems.
While the problems raised by data integration in healthcare mirror those
encountered in many areas of e-Science, the use of Grid technologies
does not yet feature strongly in IHR delivery plans. We see an
opportunity for the e-Science community to learn of the context and
problems of clinical record system integration (where, for example, the
boundaries between clinical practice and research are becoming
increasingly blurred), and for the community of healthcare practitioners
and researchers grappling with record integration to learn how e-Science
and Grid technologies may be of benefit to them. We would therefore be
pleased to receive papers from the members of the eScience community who
are grappling with the problems of medical records integration for
research purposes.
Reflecting on the dual themes of "practice" and "technology", papers of
between 3000 and 4000 words are invited on (but not limited to) the
following topics:
* Clinical record keeping practice and their implications for IHR.
* IHR implications for clinical practice (e.g. data quality,
confidentiality).
* Issues raised by the (re-)use of clinical and social data for
research purposes.
* Change management.
* Inter-organisational coordination of practices, data sets,
data quality measures and coding schemes.
* Relations/communication between users and developers of
IHR systems.
* Requirements capture for IHR (techniques, barriers etc).
* Security and confidentiality.
* Technologies and standards to support data integration and IHR
(current solutions as well as the potential role for Grid
technologies).
* The relationship between IHR, e-Health and e-Science agendas.
Revised Timetable:
Papers due: 1st December 2006
Referee reports and notification of acceptance: 1st Feb 2007 Camera
ready copies: 1st April 2007
Paper submissions and queries by e-mail to:
Mark Hartswood ([log in to unmask])
For further details about the HIJ see:
http://www.sagepub.com/journal.aspx?pid=9185
For formatting instructions see:
http://www.sagepub.com/journalManuscript.aspx?pid=9185&sc=1
Special issue editors:
Professor Rob Procter
(Research Director,
National Centre For e-Social Science.)
Professor Jessie Kennedy
(School of Computing, Napier University, eSI Research Theme Leader)
Dr Mark Rouncefield
(Computing Department, Lancaster University)
Dr Dave Martin
(Computing Department, Lancaster University)
Dr Mark Hartswood
(School of Informatics, Edinburgh University)
Dr Roger Slack
(School of Informatics, Edinburgh University)
Alex Voss
(School of Informatics, Edinburgh University)
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