Mo
Firstly, sorry to hear about this. I am sure you have done all the
research possible and now know more about the condition and how it
affects you than anyone, so all the best for living with it in the
future.
Secondly, it is something I have heard of but only in one person and I
can't think of who. I can always remember much more about a rare
condition if I can remember the person who had it. Not much help I'm
afraid but it might go a little way to answering your question about
awareness. If I remember more I will contact again.
Thanks
Lindsey
-----Original Message-----
From: [log in to unmask] [mailto:[log in to unmask]] On
Behalf Of Maureen McBain
Sent: 29 December 2006 12:49
To: [log in to unmask]
Subject: [OCC-HEALTH] Wegener's Granulomatosis
Dear list members
I know some of you personally and others not at all. So please let me
re- introduce myself. I currently work at Robert Gordon University in
Aberdeen
doing evluation research and am the current Chair of the RCN OHN Forum
Scotland and those of you that know me will be aware that I am
passionate
and committed to OH nursing practice, management, education and reseach
as
I see them all as being equally important to the profession.
However although in my role as a researcher I have excellent information
and research resources to hand simply becasue I work within an higher
education context. And it has been about and year and a half since my
last
practice potition as I went back to work as an OHN in one or our local
paper mills and therefore enjoyed "dual role" for a number of
months,spliting my time bewteen research and practice.
But I now want to try and find out if any of you have ever heard
of "Wegener's Garnulomatosis". The reason I ask is that I was diagnosed
with this serious life threatening illness four years ago and have been
trying to live with it ever since. When I was first diagnosed none of
the
GP's in my practce had ever seen a case and netiher had I! My renal
function tests have always been clear so my prognoses is said to be good
as
in I should live to 60 maybe 65 (if one believes the current
statistics).
So I guess I want to know if any of you have ever heard of it and if so
were the employees able to continue working or not? A USA survey in 1997
showed that the majority who worked >40 hrs per week had to reduce their
hours but few 8% actually changed occupation.
I am not looking for information of support groups becasue to my
knowlledge
there is no support group in Scotland (and none in Aberdee) but I am
aware
of the Midlands group, the Stuart Strange and the West Sussex and of
course
the Wegener's Granulomatosis/ Vasculitis Foundation (of which I
subscribe
to their newsletter.
But as an OHN, researcher and someone who believes in education I am
interested to find if any or how many of you have ever heard of this
illness in the first place.
I look forward to your replys.
Many Thanks
Maureen McBain (Mo)
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~~~~~~~~~~~~~~~
Please remove this footer before replying.
For list archives and documents, go to
http://www.jiscmail.ac.uk/lists/occ-health.html
FORTHCOMING CONFERENCES AND EVENTS:
http://www.jiscmail.ac.uk/cgi-bin/filearea.cgi?LMGT1=OCC-HEALTH
For Occupational Health jobs, go to http://OHJobs.drmaze.net
Find out about Occupational Health Nursing Education in UK at
http://home.wlv.ac.uk/~in6232/aohne/
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