----- Original Message -----
From: "Simon Gregory" <[log in to unmask]>
To: "- for physiotherapists in education and practice"
<[log in to unmask]>
Sent: Tuesday, November 08, 2005 9:58 PM
Subject: spondylo epipyseal dysplasia
> I have been approached by someone who wants some exercise /postural help
> with her 9yr old daughter(and in time) her 3 year old son who have been
> diagnosed with spondylo epiphyseal dysplasia. She currently is being seen
at
> Gt Ormond St by the genetics team but doesn't seem to be having any other
> treatment or support. The daughter is beginning to get back ache.
>
> I have trawled the internet for information but could find nothing
specific
> in relation to exercise in terms of damage limitation.
>
> Does anyone have experience of treating these cases with exercise?
>
> Are there teams of experts for these types of conditions-this lady lives
in
> the Midlands but I suspect she would travel a long way for good treatment?
>
> Are there any websites that may be useful-I've googled it and found some
> stuff?
>
> Thanks
>
> Angie Gregory
>
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