Am I ansering Mitzi on the danmail list, I can't be sure because of the way
Colin posts, where this is going
Suffice it to say, from my experience of growing up without a lable, it is
not entirely true that I did grow up without one, as hyperkinesis was in
vogue at one point, back when autism was not even in the encyclopedias.
I actually wondered if I was autistic back in the middle 60's however in
later life I always lived in the shadow of a tentative Sz dx which put me
off dealing with mental helth services for some time as I lived in fear of
being sectioned, indeed if I had not had the responsibilities to my mother
that I had, which would have caused enormous difficulties to social services
I think I would not have escaped.
Therefore AS made sence to me when she died and I was trying to discover who
and what I was, because I was well aware of my limitations and differences,
which were quite apparant.
Since then I have gone deeper into reserch, bringing to the equation all
that I have lernt from the disability movement, and dare I say it post
modernism.
I used to be angry with Lorna Wing because of the situation she lumbered us
with, but as I have got to know her, I realise it was not her intention, and
today her thinking accords very much with mine, it is others who took the
tentative lable and ran with it, securing a seperate definition in DSMIV,
Tony Atwood, a man I have disagreed with in the past, summed it up very well
recently. Some of us start out as pretty typical Kanners autism, and then
switch tracks as it were to what is generally described as AS while others
do not.
Underneath in the medical model world I am quite severely autistic, I also
happen to have been good at adapting and so my life course has led where it
has.
I call myself neurodiverse, some dispute the name, others try to medicalise
it in turn, but to me neurodiversity is a social identity in the face of
medicalisation.
I know exactly what getting the truth out is trying to say, but
unfortunately a lot of people have misconstrued the site, either not reading
to the end and not realising the spoof on the pity model (you have to have
seen the original Autism Soc of America site to realise it in full) and that
it is a site about empowerment and disability rights.
Others like Colin have misconstrued it in a different way and done what the
author did not intend to do, seperate themselves from the common experience.
The author is anonymos for a reason, but I do know who the author is, and
others maybe to, who are familiar with the discourse would realise what it
is about, and the context.
In fact it is not a particularly autistic context but relates to the whole
charity model of pityand the construction of the recipients of charity being
grateful recipients incapable of expressing full humanity in order to
validate the superiority of those who do not share the otherness of the
stigmatised.
It works in the context of racism and colonialism too, I resent the way that
academia is not better sometimes than charity in marginalising and
invalidating our own expression of our experiences by doing a Claude Levi
Strauss. That is why I like Derridas, take on the writing lesson.
We are the equivalent of an indigenos people and that is the way I see it.
Larry
> -----Original Message-----
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]]On Behalf Of Mitzi Waltz
> Sent: 05 October 2005 10:46
> To: [log in to unmask]
> Subject: Re: [danmail] Autism:- Getting The Truth Out....
>
>
> It may not matter is the lavel chosen or applied is one that
> isn't "negative" per se: for example, "eccentric," or
> "shy." It's fairly rare for the differences involved in ASDs not
> to be noted at all, although some people are lucky
> enough to have relatively mild symptoms, and to land in families
> and communities that see these things
> differently than most people do.
> It matters greatly if a different label is applied that leads to
> improper treatment, such as "schizophrenic,"
> "schizoaffective," or "borderline personality disorder," as has
> so often happened to people with undiagnosed AS.
> I know several people who have suffered permanant damage due to
> being misdiagnosed and mismedicated.
> And of course, without an ASD label, you can't access
> ASD-specific services, whch usually means being shunted
> into wither mental health or learning difficulties services,
> often inappropriate ones.
> There are additional advantages, depending on how the person
> learns about and uses information about ASDs.
> For example, many people with AS have sensory issues that
> employers, teachers and even family members
> refuse to acknowledge until some medical authority says, "yes,
> not coping well with flickering lights/large
> crowds/certain kinds of touch/certain food textures etc. can be
> part of this condition." Changes can be made to
> the person's environment, and coping skills can be taught as
> well, leading to a much improved quality of life. A
> label can also lead to greater acceptance of coping strategies
> that people with ASDs adopt to deal with their
> sensory issues. Sometimes there are even health implications
> (again, it depends on the knowledge level of the
> professionals involved as to whether these are communicated to
> the individual so labelled.) As Colin has noted
> before, many--though not all--people on the spectrum suffer from
> problems with peptide metabolism. Quite a
> few also appear to metabolise medications differently.
> So although I'm unhappy with some of the baggage that comes with
> the label, it can definitely be useful.
>
>
> ----- Original Message -----
> From: Jeremy Wickins <[log in to unmask]>
> Date: Wednesday, October 5, 2005 8:28 am
> Subject: Re: [danmail] Autism:- Getting The Truth Out....
>
> > Thanks to Russell and Larry for the comments in the last posting.
> >
> > My knowledge, and growing interest, in autism is recent, so I
> > apologise if my
> > questions are old ones, and well rehearsed. Russell states 'I wish
> > that Lorna
> > Wing had never coined the term "Asperger's Syndrome". It has led to
> > endlessproblems (including autistic people not recognising that
> > they are
> > autistic!)'. My questions are; does it *necessarily* matter if
> > people with
> > autism don't recognise that they are autistic? Given the stigma
> > attached to
> > autism, isn't there an advantage for some people to be able to give
> > a different
> > name to their different abilities?
> >
> > Yours,
> >
> > Jeremy.
> >
> > --
> > Jeremy Wickins,
> > PhD Researcher, Biometrics and Social Exclusion,
> > Sheffield Institute of Biotechnological Law and Ethics (SIBLE),
> > Department of Law,
> > University of Sheffield,
> > 169/171, Northumberland Road,
> > Crookesmoor,
> > Sheffield. S10 1DF
> > UK.
> >
> > Tel: +44 (0)114 222 6881
> > Fax: +44 (0)114 222 6886
> >
> >
> >
> > Quoting Russell <[log in to unmask]>:
> >
> > > I agree strongly with Larry on this point. (I have a diagnosis of
> > Asperger's> Syndrome. My son is diagnosed as autistic and
> > dyspraxic.) I wish that Lorna
> > > Wing had never coined the term "Asperger's Syndrome". It has led
> > to endless
> > > problems (including autistic people not recognising that they are
> > > autistic!).
> > >
> > > I should also like to point out (as Vice-Chair of DANDA) that
> > Colin Revell
> > > does NOT speak on behalf of DANDA. The fact that he continues to
> > give that
> > > impression is cause for concern within DANDA and will be addressed.
> > >
> > > Russell Stronach
> > >
> > > ----- Original Message -----
> > > From: "Larry Arnold" <[log in to unmask]>
> > > To: <[log in to unmask]>; <[log in to unmask]>;
> > > <[log in to unmask]>; <[log in to unmask]>;
> > > <[log in to unmask]>;
> > > <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>; <[log in to unmask]>;
> > > <[log in to unmask]>; <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>;> <[log in to unmask]>;
> > <[log in to unmask]>; <[log in to unmask]>;
> > > <[log in to unmask]>; <[log in to unmask]>;
> > > <[log in to unmask]>; <[log in to unmask]>;
> > > <[log in to unmask]>
> > > Sent: Wednesday, September 28, 2005 9:19 PM
> > > Subject: RE: [danmail] Autism:- Getting The Truth Out....
> > >
> > >
> > > > Autism is not differnet from Asperger syndrome I refer you all
> > to this
> > > paper
> > > > .http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=686&a=7821
> > > >
> > > > I also happen to know that the author of Getting the Truth out,
> > also does
> > > > not believe in the artificial distinctions of autism by type.
> > > >
> > > > The creation of these artificial divisions and lables is what
> > is causing
> > > us
> > > > so much grief.
> > > >
> > > > Larry
> > > >
> > > > > -----Original Message-----
> > > > > From: [log in to unmask]
> > [mailto:[log in to unmask]]On Behalf
> > > > > Of Colin Revell
> > > > > Sent: 23 September 2005 16:49
> > > > > To: [log in to unmask];
> > [log in to unmask];> > >
> > [log in to unmask]; [log in to unmask];
> > > > > [log in to unmask];
> > > > > [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask]; [log in to unmask];
> > > > > [log in to unmask]; [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask]; [log in to unmask];
> > > > > [log in to unmask]; [log in to unmask];
> > > > > [log in to unmask]; [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask];> > > [log in to unmask];
> > [log in to unmask]; [log in to unmask];
> > > > > [log in to unmask]
> > > > > Subject: [danmail] Autism:- Getting The Truth Out....
> > > > >
> > > > >
> > > > > Autism:- Getting The Truth Out....
> > > > > http://www.gettingthetruthout.org/
> > > > >
> > > > > Taken from:- http://www.neurodiversity.com/main.html
> > > > >
> > > > > You can see that Autism is definitely different to Asperger
> > Syndrome and
> > > > > other neurodiverse impairments which impacts and is unique to
> > each> > > neurodiverse individual.
> > > > >
> > > > > I agree with Adrian Whyatt, Co-Chair, DANDA, that we have to
> > > > > distinguish the
> > > > > differences very clearly within ASD's and he is in the opinion,
> > > > > in which I
> > > > > share, is that DANDA have to educate professionals,
> > neurodiverse,> > > survivors
> > > > > and disability communities and wider society of the
> > differences between
> > > > > Autism( sometimes called Kanner Autism) and Asperger Syndrome
> > and other
> > > > > neurodiverse impairments too.
> > > > >
> > > > > Yours
> > > > >
> > > > > Colin Revell
> > > > >
> > > > > _________________________
> > > >
> > > >
> > >
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