Dear All,
It is with a certain humility I write to include my own observations.
Jeremy's questions are certainly valid for the asking but if I might
offer my own experiences as an Epileptic I would have this to tell
you: it matters. That thing, so long as it remains nameless both
continues to be hospitable to stigmatization and encourages the
guilty belief within the individual that he is indeed suffering alone
from something he cannot name. In that he cannot call out to others
with the same differntness, he becomes self ostracizing. It matters
because the only tool we have to rally group strength with is our
ability to stand together and say I am thus and am unashamed to be so
created.
My sister's family includes 6 children: half are likely Asperger's
gifted and now the eldest son has a son and he fears the boy also has
Asperger's. Because he has not known what to call that manner by
which he has been different all of his life, he fears for his son and
the boy's future. All of his own life his parents have not wanted to
place this label and it has clearly mattered to this young man. He
was amazed to know that he was not alone, that his differentness is
not a failing. Being able to name the thing is a strength. Without
it, the individual is vulnerable .
I hope this was not too shrill a response. many thanks for reading.
Cordially,
Paula Apodaca
On Oct 5, 2005, at 12:28 AM, Jeremy Wickins wrote:
> Thanks to Russell and Larry for the comments in the last posting.
>
> My knowledge, and growing interest, in autism is recent, so I
> apologise if my
> questions are old ones, and well rehearsed. Russell states 'I wish
> that Lorna
> Wing had never coined the term "Asperger's Syndrome". It has led to
> endless
> problems (including autistic people not recognising that they are
> autistic!)'. My questions are; does it *necessarily* matter if
> people with
> autism don't recognise that they are autistic? Given the stigma
> attached to
> autism, isn't there an advantage for some people to be able to give
> a different
> name to their different abilities?
>
> Yours,
>
> Jeremy.
>
> --
> Jeremy Wickins,
> PhD Researcher, Biometrics and Social Exclusion,
> Sheffield Institute of Biotechnological Law and Ethics (SIBLE),
> Department of Law,
> University of Sheffield,
> 169/171, Northumberland Road,
> Crookesmoor,
> Sheffield. S10 1DF
> UK.
>
> Tel: +44 (0)114 222 6881
> Fax: +44 (0)114 222 6886
>
>
>
> Quoting Russell <[log in to unmask]>:
>
>
>> I agree strongly with Larry on this point. (I have a diagnosis of
>> Asperger's
>> Syndrome. My son is diagnosed as autistic and dyspraxic.) I wish
>> that Lorna
>> Wing had never coined the term "Asperger's Syndrome". It has led
>> to endless
>> problems (including autistic people not recognising that they are
>> autistic!).
>>
>> I should also like to point out (as Vice-Chair of DANDA) that
>> Colin Revell
>> does NOT speak on behalf of DANDA. The fact that he continues to
>> give that
>> impression is cause for concern within DANDA and will be addressed.
>>
>> Russell Stronach
>>
>> ----- Original Message -----
>> From: "Larry Arnold" <[log in to unmask]>
>> To: <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>;
>> <[log in to unmask]>;
>> <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>; <larry@LARRY-
>> ARNOLD.COM>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>; <[log in to unmask]>;
>> <[log in to unmask]>
>> Sent: Wednesday, September 28, 2005 9:19 PM
>> Subject: RE: [danmail] Autism:- Getting The Truth Out....
>>
>>
>>
>>> Autism is not differnet from Asperger syndrome I refer you all to
>>> this
>>>
>> paper
>>
>>> .http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=686&a=7821
>>>
>>> I also happen to know that the author of Getting the Truth out,
>>> also does
>>> not believe in the artificial distinctions of autism by type.
>>>
>>> The creation of these artificial divisions and lables is what is
>>> causing
>>>
>> us
>>
>>> so much grief.
>>>
>>> Larry
>>>
>>>
>>>> -----Original Message-----
>>>> From: [log in to unmask] [mailto:[log in to unmask]]On
>>>> Behalf
>>>> Of Colin Revell
>>>> Sent: 23 September 2005 16:49
>>>> To: [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask];
>>>> [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]; [log in to unmask]; [log in to unmask];
>>>> [log in to unmask]
>>>> Subject: [danmail] Autism:- Getting The Truth Out....
>>>>
>>>>
>>>> Autism:- Getting The Truth Out....
>>>> http://www.gettingthetruthout.org/
>>>>
>>>> Taken from:- http://www.neurodiversity.com/main.html
>>>>
>>>> You can see that Autism is definitely different to Asperger
>>>> Syndrome and
>>>> other neurodiverse impairments which impacts and is unique to each
>>>> neurodiverse individual.
>>>>
>>>> I agree with Adrian Whyatt, Co-Chair, DANDA, that we have to
>>>> distinguish the
>>>> differences very clearly within ASD's and he is in the opinion,
>>>> in which I
>>>> share, is that DANDA have to educate professionals, neurodiverse,
>>>> survivors
>>>> and disability communities and wider society of the differences
>>>> between
>>>> Autism( sometimes called Kanner Autism) and Asperger Syndrome
>>>> and other
>>>> neurodiverse impairments too.
>>>>
>>>> Yours
>>>>
>>>> Colin Revell
>>>>
>>>> _________________________
>>>>
>>>
>>>
>>>
>>
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