I believe we should hear what everyone has to say. Especially those of
who who have been ignored or disregarded should especially understand what
it is like to be ignored and so shouldn't do that to anyone.
"Michael Peckitt" <[log in to unmask]>
02/14/2005 09:44 AM
To
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Subject
Re: Medical Ethics Lectures
Mr Weber,
I appreciate this, for I have cerebral palsy and have not been listened to
either. But is this the issue here? Someone was almost silenced some
people did not like what they had to say.
Michael
>From: [log in to unmask]
>To: Michael Peckitt <[log in to unmask]>
>CC: [log in to unmask]
>Subject: Re: Medical Ethics Lectures
>Date: Mon, 14 Feb 2005 09:38:18 -0600
>
>Michael,
>Speaking for only me, as one man with a disability (a power wheelchair
>user because of Multiple Sclerosis)--which I have had for only a few
>years.
>To me the problem is, when "those people over there" want to speak, they
>want to tell me how I can be "fixed," or tell me how they can "fix" my
>situation. Or even worse yet, they really aren't fighting for what is
>best for me, but for what is best so they can keep their funding--(which
>isn't always necessarily what I need)--so often instead of trying to
>really "help us" they want us to help defend and protect their funding.
>I am perfectly willing (and even anxious) to listen & learn, but I insist
>that we also be heard (truly heard and not a token--"we understand" as we
>get the dreaded "pity pat" on the shoulder). To me (even as a
>"disabilities expert" working with the state Government) the battle for
>disability rights and even disability education & research extends way
>beyond (and even differs from) maintaining an agency's funding. I am
more
>concerned that people with disabilities be provided a fair and even (as
>much as possible) opportunity than if some particular agency maintains
its
>funds. When, just perhaps, some of the people fighting for funds may
>deserve to lose their funding.
>In just 4 years, I personally have heard too many;
> (1) "Experts" who are ambulatory tell me (incorrectly I may
>add--based on what I have personally experienced
> and what I have heard from other people who use
>wheelchairs and their families) how people in
> wheelchairs are;
> (2) "Experts" who can see tell about (incorrectly I may
>add--based on what I have heard from people who
> are blind and their families) how people who are blind
>are:
> (3) "Experts" who can hear tell about (incorrectly I may
>add--based on what I have heard from people who
> are deaf and their families) how people who are deaf
are:
> (4) "Experts" with no learning disabilities tell about
>(incorrectly I may add--based on what I have heard from
> people who have learning disabilities & their families)
>how people who have learning
> disabilities are:
> (5) "Experts" with no mental illness tell about (incorrectly
I
>may add--based on what I have heard from
> people who have mental illnesses & their families) how
>people with mental illnesses are.
>I understand you are in the UK and I am in the United States so we have
>many governmental & legal differences when it comes to agencies, funding
>etc. But here in the US we have agencies etc fighting for funding to keep
>on doing what they have been doing for years. When what they have been
>doing for years has led us to:
> (1) Around 70-80% of people with disabilities between the
ages
>of 21 to 64 are unemployed
> (2) Over 30 years after the passage of the Rehab Act we
still
>have students with & without learning
> disabilities graduating from high school without the
>ability to read simple sentences on job applications.
> (3) Approximately 15 years after the passage of the
Americans
>with Disabilities Act, we still have vast
> portions of our cities and towns with un-navigatable
>sidewalks and curbs
> (4) Most schools, churches, and other organizations without
>even their primary curriculum available in
> braile or other alternative formats.
> (5) In many communities people with disabilties still
battling
>to even get on the bus to start with--never mind
> if they get the back or front seat.
> (6) A case in Florida (Schiavo case) where we have a lady
with
>with serious physical disabilities where her
> husband has received court permission to starve her to
>death.
>I'm sorry, I didn't need to preach to the choir, but...
>Thanks,
>Jimmy Weber
>Disability Program Navigator
>Iowa Workforce Development
>2508 4th Street
>Sioux City, Iowa 51101
>Voice: 712-233-9030 x 1045
>TTY: 1-800-831-1399
>Fax: 712-277-8438
>[log in to unmask]
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>(Employment Information & Jobs For Anyone)
>The Disability Program Navigator is a result of collaboration between the
>Siouxland Tri-State Workforce Development System, local and state
>partners, the Federal Department of Labor and the Social Security
>Administration working together to increase the employment of people with
>disabilities in the Siouxland area.
>
>
>
>
>To all
>
>
>I a philosopher tutor at the University of Hull. One of my colleagues
>recently told me that he went a Medical Ethics Conference where there was
>to
>be a paper on Disability. Before that paper was givenlawyers had to be
>consulted as to whether the paper could actually be spoken. When it was
>given the green light, members of the auidence who had disabilities made
>it
>impossible for the speaker to read the paper.
>
>Now I am disabled and I am a philosopher and I would love to debate John
>Harris, Peter Singer or Helga Kuhse in person.
>
>Does the disability movement do itself any justice by saying, on the one
>hand that it should be heard, but that those people over there can't
>speak?
>
>
>Michael Peckitt BA MA
>Philosophy Dept
>University of Hull
>Hull
>East Yorkshire
>HU6 7RX
>UK
>
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