Hi Steve,
A couple of thoughts:
I used QUEST last year for my dissertation with a group of AAC users who
mostly had MND. Very few of them used their device (mostly LightWRITER
users) as they had other informal ways of communicating with their families
and carers. Hand signals, nods, winks, anything but using the technology.
And they were all effective communicators without the equipment!
I get the feeling that EAT is one of the last things on the minds of people
who've had a diagnosis of MND. They have all the emotional trauma to go
through first and then thoughts about supporting family, etc.
Have a look at the BUILD website for a flavour of what pwMND think about and
concentrate on
(http://www.magimedia.co.uk/buildforum/index.php?sid=9c6b73da76e61f842387a0f8d0f43aeb).
Although you don't want to use QUEST, I'd be happy to send you a copy of the
responses to questions. Some of the answers were very interesting.
Good luck with your paper!
Cheers,
Aidan.
----- Original Message -----
From: "Steve Conlon" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Tuesday, October 04, 2005 11:14 AM
Subject: Dissertation
> Dear ALL,
>
> I am about to embark on my MSc dissertation at King's and one topic of
> interest is UNMET need in the field of EAT.
> In the northwest we provide EAT to 48 people with MND; the estimated
> northwest population is 450-500. The question is why is it so low.
> My proposal is to do a questionnaire /survey of existing MND uses to
> generate questions for the non users, then interview non users to
> establish
> the reasons for not using EAT.
>
> My questions to the floor are:-
>
> 1. Do you think it is a sensible idea.
> 2. Has it got any mileage.
> 3. Any methods of qualitative data collection other than PIADS,QUEST,COM
> Grounded theory that i am not aware of.
> 4. Any electronic papers on unmet need( this does not need to be EAT
> specific).
>
> Any constructive comments will be apprieciated.
> There could be a teabag or pen for the winning comment.
>
> Regards Steve Conlon. EAT-NW
>
>
>
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