Larry
Instead of criticising from the 'outside', then why don't you give some
'constructive-criticism' and become a DANDA member and 'speak-out' if you
want to change things from the 'inside'.
You are a Councillor and involved in NAS, are you not?
Are they a 'representative' of the 'neurodiverse' adult 'voices'.
Come-on Larry, 'get-real mate'.
As I said come an join 'us', instead of just bloody criticising 'us'.
Take-Care
Colin R
----- Original Message -----
From: "Larry Arnold" <[log in to unmask]>
To: "ColRevs" <[log in to unmask]>;
<[log in to unmask]>
Sent: Friday, August 13, 2004 11:32 PM
Subject: RE: 'REMINDER! 'FRAMEWORK FOR AN ACTION PLAN ON NEURO-DIVERSITY';
DISABILITY RIGHTS COMMISSION
> And do I think that DANDA who are an organisation that has no idea of what
> neurodiversity means and discriminate against other disabilities can be
> entrusted with that ?
>
> Bloody medical model all the way and then pretend they arent because they
> can repeat a few slogans.
>
> Diverstiy means not having a one party state or assuming that a self
> appointed Junta of malcontents can speak for everyone.
>
> No way.
>
>
>
> > -----Original Message-----
> > From: The Disability-Research Discussion List
> > [mailto:[log in to unmask]]On Behalf Of ColRevs
> > Sent: 13 August 2004 22:36
> > To: [log in to unmask]
> > Subject: Re: 'REMINDER! 'FRAMEWORK FOR AN ACTION PLAN ON
> > NEURO-DIVERSITY'; DISABILITY RIGHTS COMMISSION
> > Importance: High
> >
> >
> > ----- Original Message ----
> > Sent: Friday, August 13, 2004 10:25 PM
> > Subject: 'REMINDER! 'FRAMEWORK FOR AN ACTION PLAN ON NEURO-DIVERSITY';
> > DISABILITY RIGHTS COMMISSION
> > I invite everyone all again to a discussion forum at QuickTopic :-
> > 'FRAMEWORK FOR AN ACTION PLAN ON NEURO-DIVERSITY'; for our topic
> > To join in
> > (or just to read) use your web browser to go to:-
> > http://www.quicktopic.com/26/H/ymqhrmB62knV
> >
> > You don't have to register or sign in, and you can choose to receive
email
> > for newly posted messages -- just click the Subscribe button when you
get
> > there.
> >
> > QuickTopic is a free, extremely easy discussion space. You can start
your
> > own topic or document review in about 20 seconds by
> > visiting:-http://www.quicktopic.com/
> >
> > Please feel free to disseminate and share this email with other
> > individuals
> > and interested parties and groups.
> >
> > Kind-Regards
> >
> > Colin Revell
> >
> > 'FRAMEWORK FOR AN ACTION PLAN ON NEURO-DIVERSITY'
> >
> > Edited by author 04-14-2004 01:19 PM
> >
> > I invite all neurodiverse individuals, families, carers and professional
> > allies to join in an open discussion for constructive dialogue
> > and feedback
> > on the 'FRAMEWORK FOR AN ACTION PLAN ON NEURO-DIVERSITY', after
> > the meeting
> > of interested parties and individuals, at the Disability Rights
> > Commission,
> > held in Manchester, on the 8th April 2004.
> >
> > As you can see within this action plan there are numerous issues that
need
> > to be debated constructively and refined and a democratic 'agreed
> > consensus'
> > by everyone, before the deadline for the Action Plan, on 30th June 2004.
> >
> > Now I am given others the opportunities to hear the views on the draft
> > Action Plan. Feel free to make constructive comments and all feedback
will
> > be collated and taken back to the next meeting planned in the summer
2004.
> >
> > I would like the opportunity to thank Mr. Bob Niven, Chief Executive,
> > Disability Rights Commission(See his letter included below), in
> > given us the
> > 'equality of opportunity' to enable a platform to emerge, that will
enable
> > neurodiverse individuals, families and carers and also professional
allies
> > to form an Action Plan, that will enable everyone to be involved and
feel
> > empowered, in tackling all forms of human and civil rights
discrimination
> > and abuse against all neurodiverse individuals and their families and
> > carers.
> >
> > Kind-Regards
> >
> > Colin Revell, Research Executive for Developmental Adult NeuroDiversity
> > Association(DANDA), England
> >
> >
> > MEETING ON NEURO-DIVERSITY ON 8th APRIL 2004
> >
> > Dear everyone
> >
> > Thank you to everyone who was able to attend this very useful meeting
and
> > also to other colleagues who were not able to attend but who have let us
> > have ideas. Towards the end of our discussion, we started to put
> > together a
> > framework for an Action Plan to tackle the key forms of discrimination
and
> > disadvantage faced by neuro-diverse groups. I attach a draft of that
> > framework which seeks to reflect the comments which colleagues made
then.
> >
> > By 21 April, could you please let us know by e mail if you have
> > any further
> > points you would like to see reflected in the Action Plan (remember
please
> > that we are only trying to capture the main dimensions at the moment -
it
> > will be for the follow-up work to flesh these out in detail and
> > come up with
> > specific action points).
> >
> > Please could you also let us know by 21st April, in which of the main
> > headings you have the greatest personal interest, and in which you would
> > like to be involved concerning the detailed follow up work over
> > the next 2-3
> > months.
> >
> > In the light of this information from you, I will distribute the final
> > version of the framework and will propose groups of colleagues who might
> > like to work together and work up an Action Plan under each heading. By
> > 'Action Plan' I don't mean anything especially fancy. Rather, an
> > Action Plan
> > should list the things we want to achieve; who or what organisation
should
> > be targeted to bring this about; and when do we want certain sorts of
> > actions and outcomes to be achieved. That is; what, who and by when.
> >
> > When these various bits of the Plan are completed (shall we set a
deadline
> > of 30 June? I will call another meeting to put this all together
> > in a single
> > overall Plan, and for us to decide priorities (in terms of both timing
and
> > overall impact).
> >
> > Please feel free to share this e mail and the attachment with
> > anyone or any
> > group with whom you would like to share it.
> >
> > I look forward to hearing from you and to our working together in
> > the months
> > ahead (and I suspect years - the task is to achieve real, lasting major
> > progress).
> >
> > With all best wishes
> >
> > BOB NIVEN...See Framework for an action plan on NeuroDiversity below...
> >
> > FRAMEWORK FOR AN ACTION PLAN ON NEURO-DIVERSITY
> >
> > MAIN TARGET AREAS
> >
> > 1. Society at large, especially the non-diverse community.
> >
> > 2. Maximising the impact and influence of the neuro-diverse communities.
> >
> > 3. Public services.
> >
> > 4. The Justice System
> >
> > 5. Employment
> >
> > 6. Legislation and making best use of people action
> >
> > 7. Other points for consideration and action.
> >
> > Under each of the target areas, the need will be to identify urgent and
> > high-pay off issues, covering the short, medium and long term.
> > Some actions
> > will be common to all the target areas (e.g. raising awareness,
> > identifying
> > and disseminating good practice for example through Beacon Councils).
The
> > task will be to identify the best mix of target and instruments to be
> > deployed on each issue.
> >
> > What follows here, under each target area, is a first list for
> > confirmation
> > of more specific actions and targets that should be addressed through
the
> > action plan. The aim is to have worked up and agreed a full action plan
by
> > the end of summer 2004.
> >
> > Although the prime targets for action are within Great Britain, the
> > international dimension - with respect to legislation and other
> > action - is
> > also important.
> >
> >
> > 1. SOCIETY AT LARGE/THE NON-DIVERSE COMMUNITY
> >
> > . Tackle stereotypes (including 'disability equals visible
> > impairment only')
> > . Tackle simplistic notions of what is 'good' or 'normal'.
> > (Beware of those
> > selling 'cures' and other dubious approaches)
> > . Move beyond concept that neuro-diversity is only a feature of
'difficult
> > behaviour among children'
> > . Increase general understanding of what neuro-diversity is all about
(in
> > general and in respect of specific conditions)
> > . Address language/words used in this context, and shift thinking
towards
> > the social model of disability
> > . Be prepared to take on and end established rules and patterns
> > of behaviour
> > in society
> > . Strengthen and make more real the portrayal of neuro-diversity in the
> > media
> > . Get society to realise how best to relate to people who have high
> > intelligence and at the same time some other characteristics which may
not
> > fit the more traditional 'norm' in society as a whole
> > . Secure recognition that some activities are difficult for some
> > people with
> > neuro-diversity - e.g. these can include organisation, planning and
> > time-management as well as basic domestic and personal chores
> > . End bullying/harassment/oppression
> > . End marginalisation
> > . Recognise the range of conditions involved, including those which can
> > result from head injuries.
> >
> >
> > 2. MAXIMISING THE IMPACT AND INFLUENCE OF NEURO-DIVERSE COLLEAGUES
> >
> > . Boost mutual understanding between neuro-diverse groups - what
> > do we share
> > and to what extent are we different
> > . Emphasise working together, not separately or in opposition
> > . Key role for parents of neuro-diverse children (both the parents who
are
> > enlightened and those who are more traditional in their outlook)
> > . Strengthen pride and confidence
> > . Take control and wielding influence, not being passive recipients of
> > 'handouts' and decisions by others
> > . Develop strategy for communicating and projecting what
> > neuro-diversity is
> > all about
> > . Strengthen representativeness and effectiveness of bodies representing
> > neuro-diverse conditions.
> >
> > 3. PUBLIC SERVICES
> >
> > . All of them! But especially: education, health, social services and
> > residential care as well as psychiatric and similar units.
> > . Boost awareness and understanding . Shift awareness and attitudes .
Need
> > to greatly strengthen accurate diagnosis/assessments/screening
activities
> > (in the NHS and everywhere)
> > . Boost independent living
> > . At the same time, boost appropriate support arrangements including
> > advocacy
> > . Focus in particular on the critical stage/transitions at around age 16
> > Services can cease to be joined-up or adequate beyond this age
> > . Reflect neuro-diversity in training and qualifications curricula for
> > professionals
> > . Strengthen care and respite care
> > . Tackle eligibility tests for benefits
> > . Obtain educational special needs funding
> > . Effective delivery of services
> >
> >
> > 4. THE JUSTICE SYSTEM
> >
> > Tackle the following issues, especially in criminal justice but
> > all aspects
> > of the legal system.
> >
> > . Many of the same priorities as under public services (see
> > section 3 above)
> > . Intelligent questioning by the police
> > . An element of advocacy system together with expert witnesses
> > . Appropriate physical accommodation in courts and the tribunals etc
> > . Informed sentencing, based on awareness and accurate
> > diagnosis/assessment.
> >
> >
> > 5. EMPLOYMENT
> >
> > Focus on:
> >
> > . Getting the 'nuts and bolts' right, and applying technological
> > advances to
> > best effect.
> > . Techniques of assessment and appraisal, at all stages in the
employment
> > process - job advertising, recruitment, in-job training, development and
> > promotion
> > . Job design
> > . Making reasonable adjustments at work and elsewhere to accommodate
> > neuro-diversity
> > . The sensory environment at work (and indeed in society more generally)
> > . Putting an end to bullying and harassment.
> > . Recognising the difficulties that can be posed by open plan
> > environments.
> >
> >
> > 6. LEGISLATION AND APPLYING THE LAW
> >
> > . Influence existing domestic UK law and the new Disability Bill which
is
> > currently before Parliament.
> > . Affect European Union (EU) legislation and other EU action to
influence
> > what goes on in the individual Member States
> > . Influence the discussions underway in the United Nations on a Charter
of
> > Rights for disabled people (noting links with EU and other international
> > bodies)
> > . Work according to the principles set out in the draft Disabled
Persons'
> > Rights and Freedom Bill as prepared by the disability movement.
> > Work to make
> > these principles etc. the basis of the next generation of
> > disability rights
> > legislation over time.
> >
> >
> > 7. OTHER POINTS FOR CONSIDERATION AND ACTION
> >
> > . Get the figures right on neuro-diversity
> > . Establish a neuro-diversity action group
> > . Complimentary therapy where professionally offered.
> > . Hidden/suppressed symptoms - illnesses at home, depression etc
> > . Get 'Tourette' and other terms into the DRC website search engine
> > . Links and differences in relation to learning disabilities and mental
> > health service users
> > . Recognise parallels with race and gender discrimination, and
> > discrimination based on homophobia etc
> >
> >
> > DISABILITY RIGHTS COMMISSION, 13 April 2004
> >
> >
> >
> > __________________________________________________________________
> > __________
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> > Communications'
> > email Anti-Virus service and no known viruses were detected.
> > __________________________________________________________________
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> >
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