You may be thinking of "Twitch and Shout: at Touretter's Tale," by Lowell
Handler. It's a book published by Plume, and also a video production. I'd
bet that the video would be available through WGBH in Boston.
Ron
----- Original Message -----
From: "Laurence Bathurst" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, February 19, 2003 1:02 PM
Subject: Re: social modle and turettes?
> Hi
>
> I can't help with the social model perspective but can recommend a
> documentary I recall seeing. I hope that recommending a video is not
> insensitive. I recall the program had the rather quirky title of "Shake,
> Rattle and Roll". I don't recall where it was made either I'm sorry. All I
> recall is the name and that it showed various case studies and was really
> quite interesting and informative.
>
>
> At 04:52 PM 18/02/2003 +0000, Mitzi Waltz wrote:
> >Sarah asked:
> > > HI, I wondered if anyone knows of any social model stuff on
> > > turettes or on
> > > people with tics and twitches? Similarly on intrusive thoughts?
> > > Thanks,Sarah.
> >
> >I've tried to slot it into my own work on Tourette's
> >& OCD, but my stuff on the topic is found in the
> >"self-help" section, not in academic volumes.
> >The most applicable thing I can think of is Howard
> >Kushner's "A Cursing Brain?: The Histories of
> >Tourette Syndrome". It's a sociomedical history of TS
> >that looks at shifting models of the condition.
> >Although the writing isn't as sparkly as it could be,
> >considering the great material he collected to work
> >with, it's well worth reading. Many good examples of
> >how acceptance of a specific model (in this case, one
> >based on Freudian psychology, i.e., tics as a
> >substitute for compulsive masturbation or emergence
> >of suppressed inner conflict) by practitioners meant
> >denial of the lived experience of people with TS--as
> >well as rejection of medical evidence that might have
> >been beneficial to those who find the condition
> >disabling. Kushner also did a great job of looking at
> >how a condition, and even a condition's history, is
> >"constructed."
> >I encourage picking it up, so I won't give a
> >spoiler...but if you've ever read one of those one-
> >paragraph canned histories of Tourette's that starts
> >with Mr. de la Tourette's supposed observation of
> >the "cursing Marquise," what you've read is falsified
> >history.
> >TS actualy provides a good lens for examining the
> >social model...in the majority of cases, the
> >condition causes little actual impairment, but the
> >reaction of others to even quite minor tics can be
> >tremendously disabling. For example, I'm familiar
> >with a US court case (Cohen v. Boston University) in
> >which a woman with TS was studying for a master's
> >degree in social work. She took a leave of absence,
> >during which she was actually doing work as a
> >disability advocate, and was refused admission to the
> >program on her return because of her disability (the
> >quote from one of the people who made this decision
> >was "If she is still uttering in this manner, I do
> >not see a place for her in clinical social work.")
> >This decision was upheld by the US courts. I do know
> >the woman in question has gone on to a career in
> >disability advocacy, despite having fairly severe TS
> >symptoms, but it's one of those cases that really
> >makes your blood boil...
> >So far as OC behaviours go, Ian Osborne's "Tormenting
> >Thoughts and Secret Rituals" has some good bits. I
> >also read a slim book called "Stigmata" some years
> >back (can't recall the author) that looked at
> >manifestations of OC behaviours in a sociocultural
> >context--in this case, the experience of stigmata,
> >religious obsessions and specific forms of anorexia.
> >Hope these suggestions are helpful.
> >-- Mitzi Waltz
> >
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> Best Regards
>
> Laurence Bathurst
> University of Sydney
> School of Occupation and Leisure Sciences
> PO Box 170
> Lidcombe NSW 1825
> Australia
>
> Ph: 61 2 9351 9509
> Fax: 61 2 9351 9197
> Mobile: 0407 069 441
> Email: [log in to unmask]
>
> Work for a living - Leisure for a life
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